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Posts (4)

Thu, May 2 1:28pm · Metastatic Soft Tissue Sarcoma in Cancer

Two year ago my Dad was diagnosed with soft tissue sarcoma on his back. He had surgery with clear margins. It has now come back in his lungs. I am interested in learning from anyone had something similar treatment strategies, survival rates and any other help you may provide. Thank you.

Mon, Mar 18 2:33pm · ATM Gene Mutation and Care in Breast Cancer

Thank you for all the replies. I had the surgery on the right side and they put a new expander in the left side at the same time since they are going to place the implants above the muscle. The surgery was a disaster. I noticed a few days after the surgery that the expander had moved. I emailed and called the doctor but no-one would take me seriously. I finally was able to get an appointment 2 weeks later, staying in Rochester at my OWN expense. The doctor said yes we need to do another surgery. A week later, I had another surgery to correct the issue as it had moved 180 degrees. You might guess I was very unhappy that my calls were not taken seriously.

I was home for one week and started a fever and then some redness on the breast. I emailed the doctor and they said continue to watch. Over the weekend my fever was 103 and it was bright red. I received a call from the doctor on call and said you need to be seen right away. I cannot see anyone where I live so I flew to Mayo that afternoon and went right to the hospital. After another surgery to remove the expander and 6 days in the hospital it turned out I had two forms of staph and 2 forms of strep. It is only now in late March that I am starting to feel better. I have not been able to work or go skiing after we rented a place.

I went to customer relations and I was told the head of the department did not see any wrong doing. I was now out 2 months of hotel plus meals because no one would listen and you tell me nothing was done incorrectly. Customer relations never returned my calls asking for a further clarification. Needless to say, I am not happy about having to go back and have the implants in May and I will worry about another problem.

Sep 27, 2018 · ATM Gene Mutation and Care in Breast Cancer

Thank you so much for your advice. I have decided to move forward with the right side. I also realize that insurance changes may happen next year which would put me a terrible position down the road with potentially being denied coverage should a reoccurrence happen.

Aug 30, 2018 · ATM Gene Mutation and Care in Breast Cancer

I am the ATM gene mutation. I had early stage breast cancer in the left breast 4 years ago and I am considering having preventive removal of the right side after several scares. Does anyone have a point of view on this?