Member has chosen to not make this information public.

Groups (1)


Member not yet following any Pages.

Posts (2)

Sep 5, 2018 · Antibody Mediated Rejection-Liver, anyone else?? in Transplants

Hi Rosemary, thanks for the warm welcome:)
AMR is a fairly recent discovery in the venue of liver transplants. It's been present in other organs and is commonly seen, but it doesn't typically occur in livers; if it does it's seen in about 1-1.5% of all liver transplants from what I've read in the medical literature.

There are acute and chronic versions of AMR, and mine is the chronic version. It was just discovered in April at my annual appointment of my second liver transplant, and is believed to have been ongoing for the entire 11 1/2 years that I've had this liver. It seems as though I'm just about to be listed, but they're just looking at the antibody levels now. I do need a re-transplant, but it is all about the antibodies.

There are treatments they can do, but I have some specific immune system subtypes that can make it a bit more complicated for me.

From what I understand there are specific antibodies that can cause complications for post transplant and preclude me from re-transplant, and I honestly wouldn't want to accept a third if it would destroy a donor liver that somebody else could use. This is why I would love to talk to somebody else who's experienced this.

I've been reading every study I can find to learn what I can, I'm not getting much from my transplant team unfortunatey:( I adore them, but they're very busy and I don't know that they've dealt with this much..

Aug 29, 2018 · Antibody Mediated Rejection-Liver, anyone else?? in Transplants

Hi everyone, I've previously had a liver transplant, 2 actually, each for different reasons.

I've just been told I'm in late stage chronic rejection…and my liver biopsy sample indicates stage 3/4 cirrhosis…and I need a third liver transplant:(
I have something called Antibody Mediated Rejection that is very rare in liver transplants and I'm trying to find anyone else who has experienced this…please let me know if you have, I'd love to chat.

This happens in other organs, but it's extremely rare in livers.