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Posts (12)

Sep 25, 2018 · Need to find out what's wrong with me in Autoimmune Diseases

@ jimhd So now a neurologist did a ANSAR test and told me I have advanced autonomic neuropathy. Now I am going to do a gastro-emptying test on Thursday, which I think will show that I have gastroparesis. I have diabetes, but now unmediated because they say it's under control. I keep getting the run around. It's too much. I wanted to ask how you manage your autonomic neuropathy. I will add I did not trust this neurologist today and put a call in to a friend whose husband is one and I am hopeful that I can get more comprehensive testing and insight from him.

Sep 25, 2018 · Botox Injections placed near and/or around the Pyloric Sphincter. in Digestive Health

@montgomery41 How are you now? Have you gotten and relief? Treatment?

Sep 25, 2018 · Botox Injections placed near and/or around the Pyloric Sphincter. in Digestive Health

This is great news, @kamg. I am just beginning this path and have a gastro-emptying test on Thursday. Seeing a neurologist today. Everything is point to Gastroparesis. I can eat a little but it comes and goes, and the nausea is tough. I have to resort to Zofran to get through some nights. I am praying a lot and hope once there is a diagnosis there is a plan. The hospital I attend does the Botox, so I am hopeful if this is what it is I can respond to this and then maybe have the ability to look into a G-POEM that people have been saying has been a Godsend. My life shifted as if overnight… I am trying to work, but it's really a challenge.

Sep 24, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

@darla, can you explain more about this. I am getting tested for Gastroparesis in Thursday, but having bowel issues too. I have not been well for a while.

Sep 23, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

@johnbishop So strangely the pins and needles and electric shocks have gotten better since acupuncture and really upping my vitamin B12. I still have some tightness in my left elbow and left knee. I am still struggling to eat and have an impact there and also with my colon. Testing revealed not much going on inside, so gastro-emptying test to see if I have gastroparesis, which is also neurological. My new ENDO said extremity neuropathy is not diabetic in nature in his opinion (he ran tests and I passed all sensitivity), which is weird. Again, I was vitamin B12 deficient for some time and don't know if all of my health problems are back to that, or if there is something else going on. Acupuncture has made it so I can actually sleep some and not wake up with dead hands or have shooting pain in my hands. I was healthy in April and then everything went to heck. Although I just wanted to recommend acupuncture and ensuring you are testing for vitamin b12 and vitamin d deficiency; I have been dealing with both and a doctor that was not testing me after I tested low. I have a long road ahead of me I think, but there are moments I feel better, which is hopeful. Ironically, they took me off all diabetes meds, saying I have it managed. A bit weird.

Sep 11, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Yes, and the symptoms all came at once…like a hurricane. The hands / arms were really bad but after the vitamin b 12 have been better. My stomach still having a lot of problems. I really think this all links back to the years of a vitamin deficiency and my doctor's negligence not to test me for it while giving me Metforim, which he said had almost no side effects. I am so mad at myself.

Sep 11, 2018 · Gastroparesis with severe symptoms! in Digestive Health

I will talk to my doc about it. Thank you!