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Posts (77)

2 days ago · Gastroparesis diet - a lot out there but nothing consistent in Digestive Health

I was just at my appointment yesterday at Mayo in Phoenix and they gave me an entire booklet for Gastroparesis diet. I also have an appointment with the dietician coming up to go through it and go over nutrition. It looks to me like it is almost the same as the low residue/low fiber diet I have been on for the past year. You might want to schedule an appointment.

Sun, Sep 22 10:27am · New diverticulitis patient in Digestive Health

I had to have surgery Jan 2018 for diverticulitis. The infection was so bad I had to have a temporary colostomy for 6 months. Was in the hospital 10 days. I was not at Mayo. Had it reversed July 2018 and while the reversal went well had complications w/ blockage in small bowel due to adhesions. Went home 17 days later on clear liquids and PICC line for TPN. Everything cleared about 3 weeks later, but in Nov, diverticulitis flared up again. Went to Mayo ER, sent home with antibiotics. 2 weeks later had to go back, in hospital for 6 days. Part of the sigmoid below reversal site was so blocked, they knew they would probably have to due surgery again. Went hone on Dec 20. Only clear liquids. I lost 17 pounds. Jan 2 had another test and blockage was even worse so back to surgery Jan 7, 2019. Ended up with Deloyers procedure and was in hospital for 6 days.
Feeling pretty good now , sometimes dealing with faster bowel transit time. This surgery was done at Mayo in Phx with a colo/rectal surgeon.
Some of my tests included CT scans, xrays, and the dreaded enema with contrast. I made them give me some pain meds when I was inpatient for that one. Naso gastric tubes are also in the realm of possibility. I have had to have them 4 times during this ordeal. They are unpleasant, but effective.
I would talk to your dr about the possibility of them having to do a colostomy and if they plan on reversing it.
Apparently, they cannot sew the bowel back together when it is really infected. Maybe they could treat and get the infection under control before they do the surgery, lowering your chances for a colostomy. I didn’t have that option at the time as my bowel was about to rupture.
Good luck!

Thu, Sep 19 8:58pm · Scar tissue surrounding organs in Digestive Health

I had surgery 1/7/19 at Mayo and they ended up doing Deloyers procedure. My issues were due to diverticulitis. It was my 4th surgery. I had a temporary colostomy for 6 months, they reversed it in July 2018, but then it failed due to poor blood flow. Diverticulitis came back 11/18 and then the subsequent surgery in Jan /19. They started laparoscopy, but due to adhesions had to open me completely back up. It took them 2+ hours to work on the adhesions. my small bowel was punctured during this. They fixed it and did the rest of the procedure. I have been doing really well all things considered. Going for follow up in a couple of weeks. My issue right now is it seems my stomach is not digesting very well. I was on clear liquids for so long, I think my stomach doesn’t process solid food very well. We will see what they want to do. I am thankful it seems like they were really able to clear the adhesions, and I haven’t had any issues.
I hope you get some relief!

Wed, Aug 7 10:54am · Side to side osmosis in Digestive Health

Found out during a colonoscopy that mine was done side to side. They were able to get through. Not too much later I was back in the hospital with diverticulitis and then another total blockage. Ended up with Deloyers procedure and am much better now. Surgeon said the reattachment site that was side to side failed and was not getting good blood flow. It only lasted 4 months, from 7/31 until 11/27. Was in the ER, went home on antibiotics, then admitted 12/13 to 12/20. Home on clear liquids only . It was a tough few weeks. I ended up losing 17 pounds which I did not have. 1/7/19 more surgery where they did the Deloyers procedure.

Wed, Jul 10 9:28pm · Obstructed bowel prevention - Miralax everyday in Digestive Health

I had Deloyer's procedure Jan 7th, 2019. I had bad diverticulitis in 2018, had to have part of sigmoid removed, temp colostomy for 6 months, reversal in July 2018, then a small bowel blockage due to adhesions, another surgery 10 days later to fix blockage that didn't work. Had to go home on PICC line on TPN. Blockage finally cleared, then diverticulitis came back in Nov, reversal site failed then the Deloyers procedure. I am doing really good now, things move pretty quickly, and if I do feel like things slowing down, my surgeon has me take some Senekot. I have only had to take it a few times. There are a few things that do bother me so I avoid them, i.e.: nuts, seeds, lots of roughage and really spicy, greasy stuff.

Thu, Jun 6 10:31am · Myectomy Incision in Hypertrophic Cardiomyopathy (HCM)

What I found that helps with the scars is massage when it has healed enough to be comfortable, keeping it moisturized, I use a lotion that has vitamin E in it, also putting Mederma on it, which is a gel for scars. Also important to put sunscreen on it if it will be exposed to the suns rays. I hope this helps!

Tue, May 21 10:15am · Chronic small bowel obstruction from adhesions in Digestive Health

When my small bowel obstruction was total, they did the NG tube and finally had to put me on TPN because I was basically starving and needed nutrition. Once some stuff started getting through, I was on the TPN until I could handle enough calories to maintain my weight. My obstruction was due to adhesions from my colostomy reversal surgery. Liquids are great….I like high protein Boost and Boost Breeze which is clear. Important to get calories and protein. Low residue diet, which is very low fiber. Nothing over 1 gram of fiber per serving. To me, the liquids are my safe space. I know those feed me and get through.
Slow baby steps are best . Add things gradually and in small amounts. Like a couple bites of scrambled eggs, a few bites of applesauce or pudding. See how it feels.
I am heading back into Mayo this Friday to have an outpatient procedure on my incision scar.
I hope some of my suggestions help

Sun, May 12 9:25pm · Recommended fiber amount for diverticulosis and tortuous colon in Digestive Health

I don't think it is related, as I have had IBS for years, but no tortuous colon,just the diverticulitis.