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Posts (67)

Tue, Apr 9 10:06am · Tips for managing chronic Small Bowel Obstructions in Digestive Health

Mine were caused by adhesions from previous surgeries. (I had 4 this year). The last surgery , 1/07/19, they started to try laparoscopic but when they saw all the adhesions, they switched to open and spent the first 2 hours clearing the adhesions before they could start the actual bowel procedure. Ended up perforating the small bowel during that and had to fix that too. I am now 2 months post surgery and everything seems to be passing through ok so far. The liquid nutrition I have mentioned in previous posts are good, plus the gentle abdominal massage . I wouldn't be surprised if they put you on a low residue diet.
Good luck and feel better!
Also, I hate the NG tube as well, but it does work. Had 4 of those this year too! UGH!

Mon, Mar 18 11:05am · Tips for managing chronic Small Bowel Obstructions in Digestive Health

I have only had the one in my small intestine due to the adhesions, but when it was total, they didn't let me eat anything. When it partially cleared, I was on clear liquids and then regular liquids, but they also put me on TPN. I did that and the massage and after a few weeks, it finally blew open and I had diarrhea probably 30 times over 2 days and all the distention was gone. I was able to get off the TPN but they kept me on low residue diet for a long time. Then the diverticulitis came back, the reattachment site from my colostomy reversal failed and I had a BAD blockage in my colon and ended up having surgery again. It worked and now I am feeling good and eating normally.
Did anybody recommend the low residue diet to you? Nothing to eat that has more than 1 or 2 grams of fiber in it, no seeds, nuts, etc.
Basically you are eating a toddler diet, but hey, I am a big fan of Mac & cheese! You can google low residue diet and it gives you lots of ideas.

Mon, Mar 18 10:18am · Tips for managing chronic Small Bowel Obstructions in Digestive Health

For me, as far as the nutrition went, getting enough protein was my doctors biggest concern along with enough calories. I pretty much stuck with the high protein Boost and the Boost Breeze which is clear. I didn't have the energy while recovering from the surgeries to make my own smoothies. And definitely lots of water, and I did a gentle massage which I feel really helped.

Sun, Mar 10 11:32am · I was diagnosed with diverticulitis in Digestive Health

I have had 4 surgeries this past year that started with diverticulitis. Jan 2018 surgery to remove part of sigmoid. Had temporary colostomy for 6 months, then reversal surgery. The reversal went as planned, but ended up with obstruction in an bowel, went home after 17 days and another surgery that was unsuccessful to clear SBO,with PICC line on TPN. Things began clearing and was on low fiber diet when diverticulitis hit again late Nov. ER visit and antibiotics. 2 weeks later, back in ER, admitted with bad blockage at reversal site. Went home after 6 days on only clear liquids. Was on clears for almost a month and had another enema with contrast that showed blockage was worse. Had 4th surgery 7th 2019 and ended up with Deloyers procedure which removed all sigmoid/descending colon, part of transverse and part of my rectum. The transverse is now my new descending and 2 months out everything seems to be working great. I actually had popcorn at the movies recently and am fine. I can honestly say I think I am much better off without the sigmoid. I have heard that it takes a while to feel "normal" again and I am looking forward to that.
I hope things go well for you! If you have any questions about diet, etc please feel free to reach out

Tue, Mar 5 5:19pm · Chronic small bowel obstruction from adhesions in Digestive Health

I was on strict low residue for 3 months, then as soon as I tried to re introduce some fiber, the blockage and diverticulitis hit again. On antibiotics for a week, then 10 days later back in ER with almost a total blockage, but this was down in sigmoid. I then got the small bowel backing up into stomach and had dreaded NG tube. But since this last surgery everything has been ok thank God. Being very careful about what types of fiber I eat. No nuts, seeds or raw veggies yet and no fruit with skins

Wed, Feb 27 9:46pm · Chronic Small Bowel Obstruction in Digestive Health

When my small bowel obstruction was total, they did the NG tube and finally had to put me on TPN because I was basically starving and needed nutrition. Once some stuff started getting through, I was on the TPN until I could handle enough calories to maintain my weight. My obstruction was due to adhesions from my colostomy reversal surgery. Liquids are great….I like high protein Boost and Boost Breeze which is clear. Important to get calories and protein. Low residue diet, which is very low fiber. Nothing over 1 gram of fiber per serving. To me, the liquids are my safe space. I know those feed me and get through.
Slow baby steps are best . Add things gradually and in small amounts. Like a couple bites of scrambled eggs, a few bites of applesauce or pudding. See how it feels.
I am heading back into Mayo this Friday to have an outpatient procedure on my incision scar.
I hope some of my suggestions help

Mon, Feb 25 11:44pm · Redundant / Tortuous Colon in Digestive Health

After my 4th surgery this year, which ended up being a Deloyers Procedure, one of the things the surgeon recommended if I needed it was Senekot. I came out of the hospital with very consistent diarrhea so it was not needed. After about 4 weeks, things started firming up and I was feeling a little bit of discomfort, so I took some and it did help. Not nearly as harsh as a laxitive. I am also doing a yogurt probiotic daily as I am not digesting pills very well. All the potassium pills they gave me in the hospital came out in the toilet completely whole days 3 & 4 post discharge. Freaked me out, but at least I knew small hard things were making it out.
Still being careful, eating easy to digest foods, eggs, pancakes, applesauce, etc and drinking high protein Boost. But if I start feeling like it is getting hard to go I will take the Senekot. I hope you feel better. And I am now 7 weeks post Deloyers procedure.

Thu, Feb 21 3:02pm · Five Things I Wish I’d Known Before My Chronic Illness in Neuropathy

I hate it when people tell me "oh, you shouldn't eat that, it's going to make you sick…". I know they mean well, but there are very few things that don't make me sick, and sometimes I want to eat what I want anyway deal with it!
The part about grieving the version of yourself that doesn't exist anymore is very true! I went through a tough time when I had to have the colostomy bag, even though I knew they could reverse it. Then dark days when that surgery caused the adhesions and small bowel blockage . I remember packing up all my ostomy supplies to donate to a clinic and I started crying. I was still partially blocked, on TPN and clear liquids. I was so bloated I looked like I was 5 months pregnant. I said to my husband that this wasn't how this whole thing was supposed to go. My plumbing was supposed to be fixed. Donating all those supplies was supposed to be a happy thing because I didn't need them anymore. And while that was true, I was dealing with another bad situation. I count myself very lucky now that after this last surgery everything is going well, but I think all of us on here that are dealing with these types of issues are hyper aware of every little pain, twinge etc in our abdomens and the anxiousness/ fear that goes with it.