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Sep 25, 2019 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

Hi. I have had the surgery to remove my AN.. It was in June 2018. My tumor had grown the year I was caring for my husband.After he passed I went for an MRI. The tumor had grown and radiation was not an option. I lost total hearing in my right ear. Went for Vestibular Therapy. I had trouble swallowing and couldn't pass the swallowing test. Had to have all my food pureed for over a month and a half. Taught myself how to swallow. Couldn't get rehab for this. My insurance stated I would have had to have a stroke for it to be covered. I was in hospital for a week. There were and still are times when daily functioning are a struggle. I am thankful for no paralysis in my face. Headaches are frequent and weather changes affect my head. The barometric pressure is a real problem.The incision area is still sensitive even after 15 months. I have Phonak hearing aides. They can be challenging to use. I hear things but don't know which direction they are coming from. The fatigue is real. I just take it easy now and don't push myself. There is always tomorrow to do things.Would I go through this surgery again? Yes and No. I wouldn't have traded the time I had with my husband. I would have loved to have preserved my hearing. A small price to pay but in the end I wouldn't have traded that year with my husband. I have learned don't take life for granted. We are not promised tomorrow. Best wishes to anyone dealing with an AN. Don't give up. Anything worth having has to be worked for. I would love to hear from anyone who has had the surgery and how they are coping with this new way of life. A year in and still coping.

Sep 3, 2019 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

In response to waiting. I was told we would wait and see. My husband is handicapped and I put myself and my health aside. I didn't have my MRI due to caring for him and his health failing. By waiting and not getting it checked my AN grew beyond radiation as a treatment. The best I could do was to have surgery. My husband passed away and then I had the surgery. I lost my ability to swallow and couldn't pass the swallowing test at the hospital. Couldn't even do the test where a camera was put down my throat to see why I couldn't swallow. I had to have all my food pureed for over a month. My insurance wouldn't cover the Speech therapy unless I had had a stroke. Determination made me learn how to swallow. Thankfully I had no facial paralysis. I lost complete hearing in my right ear. I bought the cross over hearing aides. It can be very frustrating to not know where the noise is coming from. Dizziness and Balance are a daily struggle. It's been a year since my surgery. I recently had a sharp pain behind my ear along with tenderness still behind my ear. The pain had made me nauseous and left about 30 minutes after it came. The barometric pressure in the weather really causes a lot of dizziness. Moving too fast or bending down and getting up fast can bring on the dizziness. I've heard people on this board talk about how great they feel. I hope in time these symptoms subside some. Anyone else on the board deal with headaches?I'm so glad for this group. It helps me to know other people are experiencing these things and maybe I can help them like others have helped me.Wishing healthy days for all.

Jul 12, 2019 · How does hearing loss change you? in Hearing Loss

I totally agree with you. I work in a grocery store and am a people person. When I cashier the difference is really hard to deal with. Even with hearing aides it is difficult to carry a conversation. So many times I don't hear them and find it embarrassing to get them to repeat what they say. What I hear is not always what they say. Life has definitely changed and is frustrating at times. Due to an Acoustic Neuroma tumor I have total hearing loss in my right ear. I am learning to deal with it and learning to be grateful for what I do have. The tumor was non cancerous and I'm still here for my children.

Jul 9, 2019 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

How would I join your group? I had an AN removed 6-8-2018. I just celebrated my year anniversary. I had my surgery at Johns Hopkins Hospital in Baltimore, Md. I lost hearing in my right ear. I have hearing aides now. The one hearing aide tells my other ear what it hears. It is very challenging some days. I am thankful to come through the surgery, and also for the challenges I endure daily while still being alive.Balance and headaches seem to be the lasting symptoms that come and go.My name is Vicki.

Feb 25, 2019 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

At least we can be thankful it was non cancerous. The balance problem is ongoing. It's better than what it was in rehab. The ringing in my left ear is a daily thing. Life is definitely different since the tumor removal. Best Wishes for continued healing.

Feb 25, 2019 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

I have Phonak hearing aides. The right hearing aide tells the left one what it hears. It's confusing to know where the sound is coming from. Total hearing loss in right ear after surgery. It could be a lot worse. Keep positive all who are going through this.

Feb 24, 2019 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

Hi Its me after a long time. I had my surgery June 2018. The 8th Cranial nerve was cut. This has affected my balance a lot. After reading other peoples testimonies, I feel Blessed. I do have very few lasting effects. I have found that when the barometric pressure changes, it causes the dizzy feelings more. Walking straight can be a challenge, but at least I'm still here to stagger. After losing my hearing in my right ear the sound can be deafening at times. I will say through all of my experience, there is always someone who has it worse off.

Oct 30, 2018 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

So true. Everyday is a new adventure. I noticed when the barometric pressure changes, my dizziness is worse. I googled this and it really is something that can happen. A coworker told me about this and migraines she experiences. Life has sure changed. My safe place is when I'm home. The dizziness and balance seem to be bearable at home, if that makes any sense. I'm now having sensations of things trying to heal behind my ear. I miss my hearing the most. My Phonak hearing aides help, but the hearing loss is still a struggle. I am thankful to have this behind me. Just making the most of each day. Just remember you might have a bad day, but a good day is around the corner. Just keep pressing on. Our lives are fleeting.Tomorrow is not promised so make the most of today.