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Posts (139)

Tue, Jan 7 12:28pm · scar tissue after knee replacement in Joint Replacements

Good God! Are you able to walk? I suppose sometime in the future people will look back and talk about barbaric joint replacements. I'm so sorry for all you've gone through. Btw, you're a good writer.

Mon, Jan 6 3:52am · Spondylolisthesis and DDD in Spine Health

@spondi64 Hi – I'm sorry you are going through so much pain – I'm right there with you.

It is unacceptable to have a doctor who doesn't listen to you. I learned the hard way to find doctors on my own, through research and simply asking around. Do you live near a big city or teaching hospital? Often that's where the best are. Are you being seen by a pain doctor/anesthesiologist? That's what has helped me, though I'm annoyed about the wait between treatments for my back: in my case nerve ablations.

I have lived with back pain for over 10 years, finding relief sometimes, but really suffering/not-functioning during other times. It was only when I sought out my own care providers and insisted on a treatment plan that things improved. Our medical system is so broken, I think this is the only way we can get the help we need. We shouldn't have to, but it's the way things are now.

I hope you begin to feel better soon.

Sat, Jan 4 4:02am · Does Back Pain ever Get Better? in Chronic Pain

@ashby1947 I'm so sorry to hear about what you're going through. I'm right there with you. I have had severe lower back pain for 10 years – and all of the diagnoses you mention! I'm 62, and over the past 2 years have had the back pain, of course, but also a total knee replacement which had to be redone completely one year later. The back pain really complicated my PT. I will say that I had a nerve ablation right before my revision surgery so this round of PT went better…until the effects of the ablation eventually wore off. (I got about 3 months of relief.) So, it's back to the pain doc to, presumably, do it all over again.

Like you, I'm used to being an active person. I was an athlete when younger. Now I can barely move around my kitchen to cook a meal. My parents lived to be near 90 and were in great health until their early 80s; I didn't expect to be felled by so much disability at what I consider a young age!

Anyway, best of luck to you – I hope you'll post again after your procedure.

Fri, Jan 3 12:13pm · Deep Brain Stimulation (DBS) in Parkinson's Disease

@lisalucier Thanks for reaching out. My friend is not doing well. The initial DBS had no effect, so the surgeons thought they would go in a reposition something. She had her first programming session for the re-do last week to no effect. I'm going crazy, not able to help (I live over an hour away and have had ortho problems, including knee replacement and revision.) What I'm trying to find out is whether it's realistic to expect improvement. I saw her over the weekend and honestly? If it were me I'd end my life. I've never seen anything like and of course I remember us as wild and free 20somethings.

Dec 31, 2019 · Swelling and stiffness, 3 years after total knee replacement in Joint Replacements

I hope your doctor was joking – I've had 2 MRIs since my TKR!

Dec 30, 2019 · Having knee replacement: how to prepare and questions about PT in Joint Replacements

Hi – I'm sorry you have to have a revision I had one about 10 weeks ago. I researched my options for a year and had the best possible surgeon and outcome after a year of living hell. Where do you live? Are you willing/able to travel?

Dec 28, 2019 · Chronic,debilitating pain after knee replacement in Joint Replacements

I'm so very sorry to hear you are going through this and you should not be! You're barely a month out from your surgery.

There is a lot of discussion out there about PT, its efficacy, whether gentle or aggressive is best, etc. When I was recovering from my first knee replacement many months ago and having trouble with PT, I was lucky enough to find bonesmart.org. Here are their guidelines for PT and exercise post TKR:



When I had to have my TKR completely redone, I found a surgeon in Boston who is against aggressive PT. He said it should not be painful. You can push to the point of discomfort, but then stop! Pain is your body's way of saying something is wrong. You have a lot of inflammation and tissue trauma from the surgery, aggressive PT just adds more trauma.

I hope you can find a PT who understands and practices gentle PT. I did and it has made all the difference as I recover from my revision.