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Nov 12, 2018 · AL amyloidosis in Blood Cancers & Disorders

Yes that would be fine. Thank you

Nov 12, 2018 · AL amyloidosis in Blood Cancers & Disorders

My husband has finished his 90 day treatment on CyborD the numbers are very slightly improved so the doc said to continue on the same however because of his ESRD and this AL Amy he seems to be deteriorating every day, no appetite, no energy and very low BP we give him midodrine 10gm 3times a day to try to get bp up however does not seem to be working as effectively as previously. He is 76 years old, has anyone been in this situation, eg; ESRD previous to being diagnosed with AL Amy ? PS he is on Peritoneal Dialysis since the onset of the AMY previously was on Hemodialysis for 3 years.

Sep 25, 2018 · More peritoneal questions in Kidney & Bladder

Thank you so much he is currently on SLED dialysis which is sustained low efficiency dialysis it is done on a gurney for 7-8 hours in a hospital right now 3 days MWF and maybe next week also this Puts much less stress on a he heart and keeps the blood pressure in check his BP h has hypotension with a systolic reading around 75-85 When it hits 90+ we are thrilled. This is mostly due for o the AL Amy. We are waiting for the PD catheter to heal. In the meantime the fistula can no longer be used and they put the only in a chest catheter. The AL Amy treatments going on to the 6th week so 6 more weeks before we know the if there is any improvement. Prayers needed and welcome

Sep 24, 2018 · More peritoneal questions in Kidney & Bladder

Now that he has had the PD surgery and waiting for it to heal before they can use it , he is at the hospital on SLEDD dialysis, his feet and ankles and legs are so swollen he cannot get on a pair of socks, also you cannot touch is legs as it is very painful,, he can barely get up from the bed to the wheelchair and from the wheelchair to the toilet, can he possibly do PD at home with my help, I am so scared. He is 76 years old and due to the AL Amyloidosis has taken a turn for the worse, the fluid build up is a combo of no kidneys and AL AMY. Doctors are trying all they can at his request.

Sep 24, 2018 · AL amyloidosis in Blood Cancers & Disorders

Now that he has had the PD surgery and waiting for it to heal before they can use it , he is at the hospital on SLEDD dialysis, his feet and ankles and legs are so swollen he cannot get on a pair of socks, also you cannot touch is legs as it is very painful,, he can barely get up from the bed to the wheelchair and from the wheelchair to the toilet, can he possibly do PD at home with my help, I am so scared. He is 76 years old and due to the AL Amyloidosis has taken a turn for the worse, the fluid build up is a combo of no kidneys and AL AMY. Doctors are trying all they can at his request.

Sep 21, 2018 · More peritoneal questions in Kidney & Bladder

Yes but they cannot use it for another 3weeks, hopefully. Meantime the fistula flatlined twice first time they were able to clear it but today they could not,which we figured, so they put a catheter in his chest and dialyzed him. The Amy is really taking its toll building fluid in conjunction with no kidney function it’s a real problem. Only hope is that the CyborD treatments for Amy will work. Has had 5 treatments and will not know until the 12th treatment I am told. Very tough

Sep 11, 2018 · More peritoneal questions in Kidney & Bladder

the reason for him to go on PD is that it is a lesser strain on the heart than Hemodialysis, which is what the amyloidosis is causing, and when he is on HD his BP drops and they cannot keep taking fluid. We have a consult coming up with the PD surgeon in another week. He is very weak and they may not be able to perform the procedure

Sep 6, 2018 · More peritoneal questions in Kidney & Bladder

My husband who is on hemodialysis wants to switch to PD. We were just told if the stomach has too much fluid it is not recommended. He has AL Amyloidsis and hemo cannot pull enough fluid. As his BP drops too low. Any information would be appreciated