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Wendy

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Dec 2, 2018 · Collagenous Gastritis in Digestive Health

@dpsmarkia So sorry for all you've had to go through. It would be so helpful if you could let us know what you've tried, over the last several years, in regards to medication, diet, avoidance, triggers, doctors advice, etc. -things that didn't work, as well as what did. Wow… you are so right that there is not much out there. And, when something works for one Collagenous Gastritis patient, it very well may not work for the next one. So appreciate your sharing with us! Look forward to hearing more. 🙂

Dec 2, 2018 · Collagenous Gastritis in Digestive Health

@clif Thank you so much for your share! I'm so happy to hear that you have been able to get some relief with your change in diet. We've tried dietary changes – 6 food elimination, with no change whatsoever. I'll post what we are doing now under a doctor's care at Mayo up top. (So I only do it once) 🙂 So glad that you do have a diagnosis after so long. Wishing you much relief with your new plan!

Nov 1, 2018 · Collagenous Gastritis in Digestive Health

My heart just goes out to you! It is brutal watching our children go through so much pain- with so many unknowns. How old is your daughter? How long has it been since she was diagnosed?

Nov 1, 2018 · Collagenous Gastritis in Digestive Health

Our 15 year old daughter was diagnosed with Collagenous Gastritis just this summer. Her daily symptoms are severe abdominal pain, nausea, heartburn/acid reflux and vomiting (daily unless she is able to just lie still until it passes- even then, that doesn't always work). She has tried dietary restrictions (no dairy, wheat, soy, nuts, eggs, shell fish) and added them back in- NO difference without/NO difference when adding them back in. Stress, even for exciting/good things, and movement do aggravate her symptoms. Omeprazole and ranitidine made her much worse- on 300 mg daily ranitidine last month for a couple weeks, her symptoms were worse than ever- including painful, dizzy spells nearing black outs, large blenching periods and the worst the heartburn/acid reflux has ever been. We have stopped all medications, under her doctor's care here in Oregon, and she is simply back to square 1- original CG symptoms. Also, with the Gastric Emptying Scan, we have found that she also has Gastroparesis.

So, after much research and prayer, we are heading to the Mayo Clinic in Rochester, MN, this coming week, to see a pediatric gastroenterologist. I would love to talk with you personally to see what you have tried and share our stories. I'm not sure how we can connect, but would very much like to. We will know more when we return.

Aug 22, 2018 · Collagenous Gastritis in Digestive Health

Went in to doctor today for our 15 year old daughter who was just diagnosed this week with CG (confirmed by results from multiple biopsies from her endoscopy last week).

She's been severely nauseous, made worse with movement- more especially in the morning, vomiting, and abdominal pain for 9 weeks today. EVERY DAY is a challenge to get out of bed, gag and gag, sometimes throw-up and sometimes just go back to bed. Nausea and pain in the abdomen last all throughout the day. Like a switch flipped in her body 9 LONG weeks ago today.

We live in the Portland, Oregon, area. We would very much like to know if there are any clinical studies done for CG for pediatrics. We have spoken with the Mayo Clinic in Minnesota and they told us of only studies for adults. That doesn't make much sense. Please let us know. 🙂

Aug 22, 2018 · Collagenous Gastritis in Digestive Health

It appears a year has past since you posted this. So sorry for your daughter, we know exactly what she's going through. Our 15 year old daughter was just diagnosed this week with CG (confirmed by results from multiple biopsies from her endoscopy last week)… I read her @guaranlam, Aug 24, 2017, post- "Tough to wake up, throw up, then be ready for the day", and she said, "Yep, that's me!"

She's been severely nauseous, made worse with movement- more especially in the morning, vomiting- almost daily (sometimes a couple times), and abdominal pain for 9 weeks today. Her life has changed from how she knew it! Augh!

We're in the Portland, Oregon, area and were able to find a super Peds GI doctor with tons of compassion, and we are hopeful with his direction.

We were wondering 2 things- what your daughter has done this past year, and what she's feeling like now. Please let us know. I agree that we should all work/talk together for each other! Maybe you started a personal patient study/survey- we'd love to join. 🙂

Aug 21, 2018 · Collagenous Gastritis in Digestive Health

Our 15 year old daughter was just diagnosed today with CG (confirmed by results from multiple biopsies from her endoscopy last week)… I read her @guaranlam, Aug 24, 2017, post- "Tough to wake up, throw up, then be ready for the day", and she said, "Yep, that's me!"

She's been severely nauseous, made worse with movement- more especially in the morning, vomiting, and abdominal pain for just over 8 weeks now. EVERY DAY! So appreciate you taking the time to comment and share you struggles/challenges. Going to read more!