Our 15 year old daughter was diagnosed with Collagenous Gastritis just this summer. Her daily symptoms are severe abdominal pain, nausea, heartburn/acid reflux and vomiting (daily unless she is able to just lie still until it passes- even then, that doesn't always work). She has tried dietary restrictions (no dairy, wheat, soy, nuts, eggs, shell fish) and added them back in- NO difference without/NO difference when adding them back in. Stress, even for exciting/good things, and movement do aggravate her symptoms. Omeprazole and ranitidine made her much worse- on 300 mg daily ranitidine last month for a couple weeks, her symptoms were worse than ever- including painful, dizzy spells nearing black outs, large blenching periods and the worst the heartburn/acid reflux has ever been. We have stopped all medications, under her doctor's care here in Oregon, and she is simply back to square 1- original CG symptoms. Also, with the Gastric Emptying Scan, we have found that she also has Gastroparesis.
So, after much research and prayer, we are heading to the Mayo Clinic in Rochester, MN, this coming week, to see a pediatric gastroenterologist. I would love to talk with you personally to see what you have tried and share our stories. I'm not sure how we can connect, but would very much like to. We will know more when we return.