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Sun, Apr 14 8:21pm · Post liver transplant booklet in Transplants

I have my copy of the one from both my second liver transplant in 2007 and my kidney transplant in 2012. What part of the book are you looking for? The medication/weight/blood pressure/lab record keeping part or the part that talks about the transplant and the aftercare? I don't know if it has been updated since 2007, but I would be more than happy to make a copy for you and mail it to you. I am also on Facebook and you can send me a private message there if you are unable to get access any other way. (Charice Lind Mehring)

Dec 20, 2018 · This and That and Talk - My Transplant in Transplants

I had my kidney transplant 6 years ago at Mayo. My mom was my living donor. I stayed in the hospital 4 days postop. Then we stayed in a hotel that had a kitchenette for about 4 weeks from the time we went prior to transplant to when we left. As long as you schedule a stay for at least 4 weeks in a hotel, they will not charge you sales tax on your stay. This worked out great for us as there was a bedroom as well as a Murphy bed in the living room area. The only complication I encountered postop was with the Bactrim which they felt was the cause of interstitial nephritis and is now on my allergy list as being allergic to sulfa based antibiotics. I had a liver transplant in 1995 and a second one in 2007. The anti-rejection meds were the culprit for taking out my kidneys as well. As in all things we have to take the good with the bad, but always looking on the positive side we wouldn't be here without the miracles that can be done these days.

Dec 19, 2018 · Primary Biliary Cholangitis and Autoimmune Hepatitis in Transplants

I share with anyone who asks, especially when someone sees me out and about wearing one of my numerous t-shirts that have to do with organ donation or transplants. If someone can benefit from my experiences, all the better. It is important to share and get the knowledge out there. Ironically, I found out at my 20-year high school class reunion that one of my classmates became a pediatric gastroenterologist and had encountered several patients over the years of his practice that had AIH. He was based in Seattle at that time but has since moved to Montana.

Dec 16, 2018 · Primary Biliary Cholangitis and Autoimmune Hepatitis in Transplants

Mahdi,
My original diagnosis was autoimmune hepatitis. I was diagnosed at the age of 12 and had my first liver transplant at age 22 in 1995. I received a second liver transplant due to graft failure of the first one at age 34 in 2007. I then ended up with kidney failure due to the anti-rejection meds in 2010 with a living donor-related kidney transplant in 2012.

Having lived with autoimmune disease for the majority of my life, I would be happy to answer any questions I can regarding this particular aspect.

Dec 2, 2018 · This and That and Talk - My Transplant in Transplants

I have been doing well since my kidney transplant. I haven't had any topical skin cancers. Last year during my annual checkup, they found a spot on my liver that ended up being a hepatocellular carcinoma. I had it removed with radiofrequency microwave ablation last March. Since then there has been no recurrence of the spot. I was rechecked every three months over the course of almost nine months and am now moving out to six months for my next recheck. You can ask me any questions and I will do my best to answer them.

Dec 1, 2018 · This and That and Talk - My Transplant in Transplants

I have had a total of three transplants. My first was a liver transplant in April of 1995 (age 22). My second one was another liver transplant in May 2007(age 34) due to failure of the first transplant due to unclear cause. I then had a kidney transplant in November 2012 (age 39) due to the antirejection meds taking their toll on my kidneys. I was fortunate enough to have my mom be my living donor for my kidney transplant. I am coming up on my 46th birthday this coming Tuesday (December 4). I am thankful for all my donors and being able to still be here. Prior to receiving my kidney I spent 2 years and 3 months on dialysis, which is definitely not a fun way to live.

Sep 5, 2018 · Antibody Mediated Rejection-Liver, anyone else?? in Transplants

I had a second liver transplant in May 2007. My first was in April 1995. After my second liver transplant, I experienced antibody-mediated rejection in late 2008/early 2009. I underwent plasmapheresis and IV Ig therapy at Mayo Rochester, which was experimental at the time for liver transplant recipients. Upon completion of this treatment, I have been able to maintain without rejection. I do have cirrhosis but have not been told that I would need another liver transplant. I did undergo a living-related donor kidney transplant in November 2012 as a result of the antirejection meds.