About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (2)

Wed, Jan 2 1:55pm · where do I find testing for neuropathic OH in the Phoenix AZ area? in Neuropathy

Hello @atlas. I was recently diagnosed with Autonomic Neuropathy (also called Autonomic Dysfunction). Like you, I have Orthostatic Hypotension too. Phoenix Neurological Associates is now Honor Healthcare and that's where I was referred to in 2015. (In 2015, I was diagnosed with severe Small Fiber Neuropathy).

There were several tests performed to confirm my Autonomic Neuropathy diagnosis which included: tilt table, sweat output, breathing, etc. Those tests were done at the Scottsdale Mayo Clinic. I also had a brain MRI, hearing tests, EMG with NCS, and saw an Otolaryngologist. Blood samples were taken and also urine, which were sent to the Rochester Mayo Clinic for very specific tests – checking for autoimmune diseases, diabetes and encephalopathy.

After all test results were in, my diagnosis was determined. I don't have diabetes or an autoimmune disorder, so my Autonomic Neuropathy is deemed "idiopathic". My symptoms are being treated by medication and it has helped tremendously. I no longer battle dizziness/vertigo and fainting to the ground. My blood pressure stays at a healthy level now, during the day.

I wish you the very best and hope you see a Neurologist soon, who will help you.

Aug 17, 2018 · Pain management and anxiety disorders in Chronic Pain

Hi Lisa. I am brand new to this wonderful Mayo Connect group (this is my first post). After reading your post and the very thoughtful and informative reply you received from @19lin, I wanted to share that I also understand and share your concerns. Like you, I am under chronic pain management (10 years now) and I have anxiety and depression. These new laws make it difficult for us to continue taking our pain medications with benzodiazepines. I'm not sure if you see only one doctor who prescribes all of your medications or another doctor, as well. I see my psychiatrist who prescribes me my antidepressant and anxiety medication – and then my pain management doctor for my pain medications. All of my diagnoses are well documented and supported by images, a plethora of various tests, back surgeries, etc. I'm sure you have supporting documentation, too. In the event it may help you to have both a psychiatrist and a pain management doctor who prescribe your much needed medication, I thought I would toss this info out to you. I am a firm believer that we need to advocate for ourselves and reach out to our local politicians, regarding the challenges we face and our legitimate fears of having certain medications taken away from us. Hang in there and please know that you are not alone. Best wishes to you.