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Posts (39)

Sep 17, 2019 · Ketamine for chronic pain in Chronic Pain

Hi @pfbacon ! I wanted to mention that the Ketamine place I go to, is all outpatient. I am generally there for a total of 3 hours – 15 minutes to prep me, 2 hour infusion, 45 minute recovery time. I sit in a very comfy recliner, they dim the lights and continually monitor me. I have heard of people being admitted into a hospital for Ketamine Infusions, but I don't know anything about those.

Sep 17, 2019 · Ketamine for chronic pain in Chronic Pain

Hi @rwinney ! Thank you so much. I have had a lot of relief with the Ketamine Infusions. After my first infusion, I was able to get out of my wheelchair and start using my walker again. (I had a rough 2 years before being diagnosed with Autonomic Neuropathy. I get a lot of fainting sensations along with Orthostatic Hypotension, etc.). The infusions truly work well in reducing my chronic pain, inflammation, neuropathy and headaches. Absolutely amazing. I never thought I could ever feel relief, like I do after an infusion. The "booster" infusions I get are either 3 weeks apart or 5 weeks apart, now.

My insurance does not cover the cost for these infusions. Like you said, I don't believe insurance covers these yet since the FDA hasn't approved these infusions for chronic pain and/or neuropathy. I live in Arizona and we have several Ketamine centers here. Whenever I need a "booster", I call the day before I want to go and they fit me right in. It's a very well organized office with very caring and knowledgeable doctors. There have been 2 times where an infusion didn't take as well as my other infusions. The relief I generally get, is just phenomenal. I have been able to reduce and/or wean off of a couple of my medications, due to the relief these infusions bring to me. The infusions are pricey – $400 for each infusion (this is a good price, many other places can cost $1,000). This includes the cost for any anti-anxiety med, nausea med and nasal oxygen they give you. I still can't believe the relief I get, after every infusion. My doctors are truly delighted and a bit in awe, lol. I was in bad shape and have been for over 10 years. I am slowly rebuilding my core muscles and other muscles that atrophied. Just incredible. I hope this helps!

Sep 16, 2019 · Ketamine for chronic pain in Chronic Pain

Hello to all! I wanted to share a little of my Ketamine experiences. I was prescribed the Ketamine nasal spray (compounded at an apothecary) over 3 years ago. It is mild and it takes a little while to "build up" in your system. It seems to take the edge off the beginning stages of a migraine and also takes the edge off of my Small Fiber Neuropathy. I haven't had any bad side effects with the nasal spray. You will start off at a couple of sprays a day and then you gradually titrate yourself up, to more sprays a day, not exceeding the dosage you are prescribed.

I just started the Ketamine Infusions, in April of this year, for my chronic pain and widespread neuropathy. They are nothing like the Ketamine nasal spray – no comparison whatsoever. I am prescribed the Ketamine Infusions from my pain management doctor and my Neurologist approved of them, as well. I first started with 3 infusions on a Monday, Wednesday and Friday (every other day for the first 3 infusions). After the first three infusions, you will go by how well your body responds to them and how long it takes for your pain to return. Once your pain starts to come back (usually 2 weeks or more after your 3rd infusion), you then go back and receive a "booster" infusion. The relief can last well beyond 2 weeks and you then return for any "booster" infusions. For chronic pain and Neuropathy, the infusions are 2 hours long. You will need a driver to take you home after each infusion. I hope this sheds a little light for everyone. Best wishes to everyone. I hope to post again, real soon!

Jun 19, 2019 · Costochondritis in Chronic Pain

Thank you so much, @lioness. Absolutely, those fractures sure do cause quite a bit of nerve pain, which you can definitely relate to. I will always stay strong and keep as positive, as possible – stress and negativity don't agree with me, lol. Thanks for the support – you have my support and well wishes, too.

Jun 19, 2019 · Costochondritis in Chronic Pain

Oh yes, I have quite a few other pains, as well. I broke my back in 7 places ( thoracic vertebrae), in addition to fracturing my sacrum and tailbone segments in 2008. (I fell over 8 feet from a playhouse structure and landed on the hard earth). I had posterior back surgery as a trauma patient which involved repair work, hardware fusion with wire fixation. My T5, T6, T7 and T8 vertebrae all have over 50% loss of height with dehydrated discs. (Surgery is not an option). As a result of the hard impact to my body, I have a lot of nerve damage, muscle pain all over, osteoarthritis, etc. My ribs are always tender and I am pretty sure that is why I have Costochondritis. Do you have any past injuries or upper back problems?

Jun 19, 2019 · Costochondritis in Chronic Pain

Hello @jadillow. The pains you are describing in your sternum area and at times in your jaw and arm, sound like the pains I get too. Like you, I was referred to a cardiologist when I first started to experience these unusual pains and heart problems were ruled out. The cardiologist diagnosed me with Costochondritis. It's difficult, at times, to find a position or medication to combat certain flares that I get. If I lay on my stomach and put gentle pressure on my sternum at the edge of my bed, that seems to help. (It looks like I am laying across my bed versus the normal way we lay down in our beds). Taking an anti-inflammatory at the onset of a flare sometimes really helps. When I feel the jaw pain start to set in, taking my nerve pain medication (Gabapentin) has helped in many instances. I don't know if you drink carbonated beverages, but if you do…I have noticed that those beverages increase the pains during a flare. Not sure why that is, but it's something that induces more pain in those areas for me. I have tried massaging different types of pain balms onto my sternum area, just to see if any of those might help, but I haven't found one yet that helps the sternum pain. I keep trying different positions during the flares, eliminate carbonated beverages and take an anti-inflammatory med. So sorry you suffer with this too. If I discover anything else that helps me, I will be sure to share with you. Take good care and best wishes for some kind of relief during your flares.

May 20, 2019 · Frankincense and Myrrh for Neuropathy pain in Neuropathy

Hello @hotfooted . Yes, I have been following your posts – I am very thankful you are sharing your results and specific types of pain you feel in your feet and legs. It matches what I go thru with my hands, forearms and feet. I get freezing cold spells on my hands to where I need to wear gloves or even cover them with thick socks. Same with my feet – however, my feet are not as bad as my hands and forearms. It makes it difficult to type for me, due to all the different sensations. I have not purchased the F&M yet, but I will be soon. I have been using a CBD infused pain stick (THC free) the past two weeks. Best wishes for less pain and thanks again for your informative posts!

May 10, 2019 · Frankincense and Myrrh for Neuropathy pain in Neuropathy

Thank you so much for sharing your story. I have severe SFN and Autonomic Dysfunction – lots of nerve pain throughout my body. I experience all that you have described, in both of my hands and up to my elbows. I am going to purchase some Frankincense and Myhhr drops, to see if it will help my hands and forearms. I will let you know my experience with the drops combined with lotion. Fingers crossed, it will help! I am so very happy to hear you have found relief. Very nice to hear. May you continue to get daily and nightly relief!