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Wed, Feb 20 7:40pm · burning mouth syndrome very severe in Just Want to Talk

I too take 1,000-2,000 mg l-lysine daily to control the cold sore/fever blister outbreaks that seem connected to BMS but I have not yet had shingles. I also have a supply of both 500 and 1,000 mg valtrex if l-lysine does not suffice. I was just tested for heavy metals and my system has a lot so will be detoxing – hoping this may lead to helping my burning mouth.

Sun, Feb 17 4:42pm · burning mouth syndrome very severe in Just Want to Talk

B12 sublingual does NOT take away my burning mouth-(are you talking about B-12 injections perhaps?)

Sat, Feb 16 7:01pm · burning mouth syndrome very severe in Just Want to Talk

It helps for 2-3 hours, sometimes longer

Sat, Feb 16 6:59pm · burning mouth syndrome very severe in Just Want to Talk

@ristu
Have you gradually increased your dosage? Amitriptyline stopped working for me after 10 mos of working great. I gradually went completely, took a couple months break then start back up gradually, eventually getting to 40-50 mg in split dose (10 mg am, 10 mg mid-day, sometime 10 mg early evening and 20-30 an hour before bed….this works somewhat, never really gone like the first 10 mos of 30 mg at bedtime- good luck

Fri, Feb 15 7:09pm · burning mouth syndrome very severe in Just Want to Talk

Destinnana-no I bought GABA on Amazon

Fri, Feb 15 3:45pm · burning mouth syndrome very severe in Just Want to Talk

I have had BMS for the past 3 to 4 years and I’ve recently tried this GABA product- One spray sublingual when the burning is worse mid afternoon. But this is just a supplement to my amitriptyline which I take 10 mg first thing in the morning, another 10 mg around noon and 20 to 30 mg just before bedtime.

Wed, Jan 16 9:07am · burning mouth syndrome very severe in Just Want to Talk

@lauren123
How did you determine the exact cause?

Sun, Jan 13 11:51am · burning mouth syndrome very severe in Just Want to Talk

@megjean
Sorry for your pain. I get what I call canker sores and cold sores (fever blisters) when I slack up on taking l-lysine 1,000 mg once or twice daily. If it gets too much for the lysine then I use Valtrex 500 – 1000 mg as mine seems to be herpes simplex 1 related. I had not gotten these sores for many years until the burning mouth started up now it’s a regular aggravation. Have you ever been tested for the herpes simplex one?