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Posts (5)

Oct 9, 2018 · seizure watch-monitors in Epilepsy & Seizures

Thanks Lisa – What I have attached is a bit off topic from the Epi-watch but the beginnings of a method for taking data between neuron and cell structure attributes to identify functions that could be modeled through any type of control system analysis for downselecting autoimmune disorders, since autoimmune disorders could very well start at this level. Attached is a learning tool that could be brought into doctors by patients for kicking off discussions getting to an autoimmune diagnosis, where structural functions needing neurostabilization are required. If the doctor says the spreadsheet is necessary for helping research teams take data for eliminating autoimmune disorders, then it is a good day, if they say it is not needed, then it is an even better day!

Oct 9, 2018 · seizure watch-monitors in Epilepsy & Seizures

Is anyone using the new epi-watch? If so, is it just a watch like a fit bit or is more equipment involved?

Sep 29, 2018 · Proposed Auto-immune Disorder Eliminating Root Cause Tool Approach in Autoimmune Diseases

Hi! Just wondering if anyone ran across any doctors that have consolidated inputs, functions, and outputs to every autoimmune control system model? If so, patients themselves could have a good idea about how to eliminate autoimmune disorders before appointments, thus being proactive and opening bi-directional feedback between themselves and doctors as root cause analysis of a brain disorder diagnosis is achieved. For example it would be somewhat of a difficult situation if someone was certain they had epilepsy, got the treatment for it, but then later on, started to wonder why the treatment was not working due to some deeper autoimmune disorder entailing a broader range of impact across the brain. A spreadsheet has been PDF'd for trying to understand neuron inputs, functions, and outputs at a general high level. From there the strategy would be to pinpoint which inputs, functions, and outputs within a seemingly stabilized neuro-exchange become unavailable given an autoimmune disorder. Goal would be to have one of these matrices for each autoimmune disorder, but to first understand Autoimmune diagnosing use-cases in the near term. Thank you for reading, as your input is most welcome. Also if anything that I have mentioned about this approach seems askew or seemingly impossible to decompose to feasible activities with progressive research development please let us know. Here to learn.

Sep 2, 2018 · Living with epilepsy - Introduce yourself & meet others in Epilepsy & Seizures

Is it too late for the Albuquerque doctors to communicate with the seizure doctors at Rochester Mayo Clinic? I know they may not work for the same boss, but I would check if any of the Albuquerque seizure doctors were from that Rochester Mayo Clinic and if whether Rochester and the Albuquerque Doctors maintain communication about seizure treatments, in any way. I just hear alot of good things about the Rochester Mayo Clinic on this feed for seizure treatments and it is probably already old news to you. Will be praying for Talia! I have a younger brother, Matt, of 28 years that has had about 10 Grand Mal seizures this year and the doctors had to switch him to Vimpat. He has had 2 more since the switch, so less now than before.

Aug 11, 2018 · Living with epilepsy - Introduce yourself & meet others in Epilepsy & Seizures

Hello and Good Afternoon!

My younger brother Matt of 28 years has just had his seizure medication changed to Vimpat since he had close to 10 Grand Mal seizures this year, having been seizure free since November 2009.

My Questions:

Do doctors usually have more inputs than just a person's weight, age, and last Grand Mal seizure for seizure medication adjustments?

Do medical teams reporting to prescribing doctors, use the genome of the patient to mathematically model upcoming nerve stimulations?

If so, would the intent of the model be to predict the magnitude of neuron release from the synapse based on blood content circulating through the brain in addition to the air content being inhaled?

If so, would all Mayo Clinic sites do this type of modeling, or would the Rochester site be solely assigned to modeling neuron output of a patient's synapse?

I see many parts of both questions could possibly be answered from this thread.

Thank you for being my brother's voice.