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Oct 17, 2019 · Liver transplant support group in Transplants

thank you Rosemary 🙂 thank you for the direction!

Oct 17, 2019 · Liver transplant support group in Transplants

Hi everyone 🙂 my transplant was 4 years ago on Nov 16 (overshare warning, just in case…I don't want to take up anyone's time…never posted on really anything before support wise) ~ i'm turning 40 this year…my transplant was a little unusual. I went from healthy to complete liver failure and kidney failure in 3 weeks time. I was at the time defending my Phd proposal…and somehow passed that, went to a meeting with my dad driving to convince my mentor and head of student affairs to let me continue that semester only to go directly to the ER on campus right after. 4 months later I was discharged, 7 surgeries, a transplant, and a month on life support later. I know i'm young for an adult to go through this. my kidneys recovered initially but lately they are acting up again. Since my transplant I'm in and out of the hospital about every 2-3 months. My pancreas is now causing the main issues. I'll never forget what one of my dr.s said the day I agreed to a transplant in ICU – the reality is you aren't getting cured. you are trading one disease for another. So when I got off of official medical leave from my school I completely restarted my PhD dissertation to be on liver transplantation. I figure if it's going to eventually get me, I want to know as much about it as I can. I'm not really sure what to expect here….I've accepted my cycle of in and out of the hospital. What shamefully I'm struggling with is writing a letter to my donor's family. I just don't know what to say to them that would make them think I deserved a longer chance than someone else. soooo…yea …hello…this is me. our hospital has zero options for transplant support and the longer time passes the more I realize I need to be able to talk to other people that have been through this. <3