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Posts (9)

Oct 14, 2018 · Lyme Disease and its Co-Infections, Morgellons Disease and Parasites in Skin Health

You are one tough cookie, going through hell and still persevering. Please keep at it and keep us posted on your (successful) progress.

Oct 11, 2018 · Mast Cell Activation in Blood Cancers & Disorders

Great information and definitely worth pursuing. Thank you for taking the time to share.

Oct 11, 2018 · Mast Cell Activation in Blood Cancers & Disorders

I’m going to present this to the specialist and suggest this as my healing. Thank you for the info

Sep 10, 2018 · Body itching in Autoimmune Diseases

Mast cell disease is what my dr came up with after years of research. The persistent miserable whole body itch is triggered by who knows, often with face swelling double with the horrid itch. Steroids would calm it down but I’ve been given too much as it is so nothing now. Antihystemines four times daily, to 16 each day just to stay sane. Love working in yard however guarantee that my legs although covered doubly, will break into huge welts along with itch. Is this anything like yours? So very happy your lymphoma disappeared. May your cancer never return.

Sep 10, 2018 · Tinnitus and brain tumor in Brain Tumor

Cannot imagine what you are going through. One wonders why a human being must endure so much. I am with titunitis for years now, severe yet reading about your issues makes mine trivial. Hoping Mayo Clinic can help you at some point

Aug 21, 2018 · Mast Cell Activation in Blood Cancers & Disorders

Please, keep us posted on your results and dr recommendations. This is an extremely miserable whole body issue!

Aug 12, 2018 · Mast Cell Activation in Blood Cancers & Disorders

Ah, good to hear such kind and hopeful words. I need that hope as do many. Any and all information on MCD is much appreciated.

Aug 11, 2018 · Mast Cell Activation in Blood Cancers & Disorders

Finally someone that understands my plight. Yes, this disease is a nightmare and when I have an attack, my face almost gets disfigured due to extreme swelling and allergy type breakout. This in top of extreme itch that makes me want to use a knife and peel my skin off. One of my doctors states there is now a vaccination for mast cell, with conditions. First off you must have experienced this under Dr care for at l ast one year before being considered for the vaccine. He stated currently it is basically out of financial reach for those who need it (such as me) because it’s over four thousand a month, one vaccine and must be continued for around ten-twelve months in order to become effective. I failed to write down the name as he cost was enough to know I’ll never be getting it. Oh, and insurance as I am on Medicare, won’t pay any portion. This may change in the future however I shall not see this in my lifetime more than sure.