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Thu, Jun 20 8:04am · Deep Brain Stimulation (DBS) in Parkinson's Disease

Oh Maxine, I am so sorry to hear about all Walt and you have been through. You two are truly strong and amazing people. You persevere regardless of the situation. I send my thoughts and prayers to you both that Walt’s surgery goes well. Sounds like you have found a great doctor. Take care.

Sun, Jun 16 7:05am · Parkinson’s unresponsive episodes. in Parkinson's Disease

You bet Teresa!! I walk at least 5 days a week 3 to sometimes 6 miles. Most often around 4 1/2. Always have and plan to keep it up until I can’t. Great for my body as well as for my sense of well-being. I appreciate your support.

Sat, Jun 15 7:06am · Parkinson’s unresponsive episodes. in Parkinson's Disease

Hi Lisa. Thx for asking. Things are going pretty well. I really shouldn’t have anything to complain about. My neurologist lowered my dose of Carbidopa/Levodopa down to 1 pill three times daily instead of the gradual increase to 2 pills three times a day. After doing this I felt MUCH better. I sometimes have a little nausea with the morning dose, but a cracker, a bit of bread or a few pretzels and a couple sips of ginger ale does the trick. My other symptoms have pretty much disappeared. Occasionally I will get a little low grade pain in my right arm, but it usually goes away after a short period of time. NOTHING like the pain I was having when first diagnosed. That had been by far the WORSE thing about my PD. I am continually grateful to God that things are so good. There are so many others who, by far, have it so much worse.

Wed, Jun 12 5:15am · Parkinson’s unresponsive episodes. in Parkinson's Disease

Thx for your input Colleen!

Tue, Jun 11 9:54am · Parkinson’s unresponsive episodes. in Parkinson's Disease

Hi! What great news that you are doing so well! Does your neurologist know you are using the herbal supplement? What does he/she think? Are you taking other PD meds? I must admit that I am skeptical about natural remedies, but certainly not closed minded. Would be WONDERFUL if something natural worked!!! Your response would be much appreciated. Thx.

Fri, Apr 12 9:24am · Living with Parkinson's Disease - Meet others & come say hi in Parkinson's Disease

A number of questions…
1) If the thiamine regiment works, why don’t other neurologists recommend it?
2) Have you ever been on any PD meds?
3) Have you ever had any pain from your PD?
4) How long did it take for the thiamine regiment to work?
Thanks for taking the time to answer my questions.
Susan

Thu, Feb 21 7:08am · stop progression, suppress motor and non-motor symptoms in Parkinson's Disease

Thx. So you are only taking the vitamins and no medication?