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4 days ago · New Transplant Blog Posts in Transplants

Happy Spring Everyone!
As you likely know, April is Donate Life month so it's only fitting that we talk about organ donation, living donation, and transplantation during the month of April. The goal of Donate Life month is to bring awareness to the shortage of organs for those waiting and to encourage people to sign up to be donors. We have published a blog post today that we hope will do just that – convince those interested in donation to actually sign up – bridging the gap between interest and action. Share this blog with others who might be willing, but just haven't taken that step, and while you're at it, share your personal connection too if you are comfortable doing so. Sometimes that personal touch is what's needed for people to take the important action!
Have a wonderful day!

https://mayocl.in/2GjfOZR

Wed, Apr 3 7:51am · New Transplant Blog Posts in Transplants

Hello everyone! This isn't our new blog post, but there's a new organ donation post on the Champions page you all should see. In case you have friends, relatives, or anyone who isn't yet an organ donor, share this information with them too!

https://mayocl.in/2VfyJLl

Have a great day!

Wed, Mar 20 8:38am · New Transplant Blog Posts in Transplants

Good morning everyone!
Have you seen any of our infographics? For a few years, Mayo Clinic has partnered with news outlets around the country to publish information in a short and graphical way to help people understand transplant and organ donation. We wanted to give you an overview of some of the content we have published. You can find most of our infographics on the Mayo Clinic webpages, but here are a few easy clicks for you to view.

https://mayocl.in/2U2VN2s

Let us know if there is a topic you would like to see explained this way!
Happy First Day of Spring!
-Kristin

Wed, Mar 20 8:10am · Infographics Round-Up in Transplant

Many forms of information exist when looking for quick and easy transplant education. Online search will produce many websites about transplant, living donation and healthy living. Patients should be careful about making sure their information comes from a trusted source.2019-2-20 Infographic Blog

Mayo Clinic’s Transplant Center has a web page, a discussion group, and online toolkits just to name a few resources for patients. Web pages are great, but when it comes to finding quick and sharable information, one of the best resources might be our infographics.

Over the years, we have produced many short, graphical pages to provide the public with easy-to-read information on many transplant topics. We’ve included some highlighted topics below.

What topics would you like to see in an infographic?

HELPFUL LINKS

Tue, Mar 19 1:16pm · Transplant Events in Transplants

Hello everyone! If you are a post-transplant patient from Mayo Clinic in Minnesota, our annual patient and family picnic information is available for you! The picnic will be held this summer on July 28, 2019 from 11:00am to 3:00pm at Soldiers Field Park in Rochester. You can RSVP to transplantpicnic@gmail.com. We would love to see you there!

Tue, Feb 26 8:07am · New Federal Law for Living Donors in Transplant

Living donor transplant is becoming more common in the U.S. Ten years ago in 2008, around 6,200 living donor transplants were performed. In 2018, that number jumped to nearly 7,000. With nearly 114,000 people waiting for organ transplant today, we hope these donor numbers will continue to increase. When someone donates an organ, it not only shortens the waiting time for the person receiving the organ, but reduces the pressure on the waiting list for others. Living donation gives hope to people waiting for a transplant.2019-Jan 24 FMLA Blog Post

Deciding to be a living donor is a big step, but it also has a huge impact. Living donors account for approximately 50% of kidney transplants performed at Mayo Clinic. This means that patients can get a kidney sooner and avoid the long wait on the deceased donor waiting list. Often they can even avoid dialysis – this is called pre-emptive kidney transplant. By getting a kidney pre-emptively, recipients can have improved quality of life, improved survival rates and lower treatment costs. For living donor liver transplant, family members or friends can donate a portion of their liver to a recipient who may not survive a long wait on the list. Many donors have told us that being able to provide a new life for their loved one is the best thing they have done and most would do it again if they could.

Living donation is a decision that shouldn’t be taken lightly, however. There is risk for healthy people undergoing major surgery, and donors, just like recipients, must take time to recover from their surgery. Because organ donation isn’t a medically necessary surgery for the donor, sometimes employers and businesses aren’t able to support the time needed for evaluation, surgery and recovery. In past years, some donors have even lost their jobs because they made the decision to donate an organ when their employer wasn’t able to provide them with time off.

A recent development in the federal government may allow more people to donate organs without having to put their jobs at risk. In August 2018, the U.S. Department of Labor issued an opinion letter stating a healthy organ donor can use medical leave through the Family and Medical Leave Act (FMLA), to donate a kidney or part of your liver. Read more about the details of FMLA here, but essentially this means that living donors who are employees with FMLA have up to 12 weeks of unpaid, job-protected leave with their group health benefits maintained. This is a big win for those considering donation whose employers were previously not supportive of their employees being off work for surgery and recovery time. Of note, be sure to read over the FMLA policy if you are considering donation to be sure you meet the qualifications and understand the process.

Even with the new FMLA ruling, employees who are considering donation should still speak with their employers before beginning the process. Tell your employer about the surgery details and ask about disability insurance coverage and the possibility of paid time off for your recovery. Also let them know about your return to work and the restrictions or short-term special needs that might be required for you.

If you were a donor, did you have this policy in place for your donation? How was your return to work after your surgery?

Tue, Feb 26 8:03am · New Transplant Blog Posts in Transplants

Good morning!
After this last weekend in Minnesota, we all need some spring weather! I hope all of you are safe and warm in this still colder than usual weather.

Today's blog post is for our incredible living donors. Most of the time our donors do well with surgery and return to their lives as normal after a few weeks. But sometimes their employers aren't as understanding as we would like about their time away for surgery and recovery. In those cases, usually a plan can be worked out, but if it can't, the employee (donor) sometimes suffers the consequences of being away from the job. Did you know that now there is FMLA coverage for donors? In cases where you qualify for the Family and Medical Leave, you can utilize that plan to protect your job when you are an organ donor. Read more in our blog today!

https://connect.mayoclinic.org/page/transplant/newsfeed/new-federal-law-for-living-donors/

Hoping for spring,
Kristin

Mon, Feb 11 10:17am · Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this? in Cancer

@jerrydrennan,
Hi Jerry. I am sorry you have had a communication breakdown with our team. I am happy to try to help. If you are a transplant patient at Mayo, then I am certain you have seen a social worker, probably several times, in your appointment processes. You are very welcome to call the toll free number (866-227-7501) or send a secure online message directed to your nurse, your doctor, or your social worker. Any of them should be able to help with your questions, and your social worker, as stated above, can help you with your communication issue. It's important to us that our patients understand their care and their diagnosis and have a full understanding of what they are reading in their online records. If you have specific questions or want me to send a note to someone on your team, please message me privately and I am happy to do so on your behalf. Thanks!