Posts (55)

Tue, Dec 5 9:08am · New Transplant Blog Posts in Transplants

Today we have a special treat for you – a guest has written a blog post for us! As most of you know, Rosemary is one of our Mayo Clinic Connect Mentors and has been a special part of our discussion group for a long time. Rosemary was kind enough to share some of her tips on how to stay positive during those difficult pre-transplant times. We hope you enjoy hearing her story. We are so thankful for her willingness to write for you all!
-Kristin

https://connect.mayoclinic.org/newsfeed-post/staying-positive-while-waiting-for-a-transplant/

Tue, Nov 28 11:32am · New Transplant Blog Posts in Transplants

Hello everyone, in today’s blog post, you can meet Dr. C. Burcin Taner, the surgical director of our liver transplant team in Florida. Dr. Taner not only loves his work, he also loves his kitchen! Read more about Dr. Taner and his love of cooking and transplant. Have you had the chance to meet Dr. Taner?

http://mayocl.in/2nd3EeV

Have a lovely day!
-Kristin

Tue, Nov 14 8:41am · New Transplant Blog Posts in Transplants

Good morning everyone,
Today’s blog post talks about the MELD score. If you are a liver patient, you are likely intimately familiar with the MELD score and how it affects your placement on the waiting list. Did you closely follow your score before transplant? Was your score high when you received your liver?

https://connect.mayoclinic.org/newsfeed-post/the-meld-score-definitions-and-frequently-asked-questions/

Have a wonderful week,
Kristin

Fri, Nov 10 10:23am · Transplant stories that inspire: What's yours? in Transplants

Hello everyone,
Recently, our face transplant recipient was able to meet the family of his donor at Mayo Clinic. We thought you might enjoy this video – make sure you have your tissues ready!
If you’ve had a deceased donor transplant, have you had the honor of meeting your donor family?

https://newsnetwork.mayoclinic.org/discussion/mayos-first-face-transplant-patient-meets-donors-family/

Have a wonderful weekend!
-Kristin

Thu, Nov 9 1:06pm · Safeguard Your Health This Flu Season in Transplant

@howard_newkirk, @rosemarya
Hello everyone! Thanks for the flu questions. As Rosemary and others already responded, I will add just a few more thoughts about this topic. After speaking with our physician’s assistant from our Infectious Disease Department, I learned a few more details about the flu vaccines.

Flu vaccines can be very confusing as there are twelve approved seasonal inactivated influenza vaccines available for the 2017-2018 flu season. They differ by whether or not they are trivalent or quadrivalent, recombinant (produced without the use of influenza virus or chicken eggs) and high-dose formulation for older age individuals only. A specific vaccine formulation should be chosen based upon recommended age. Please note, that live attenuated influenza vaccine is not recommended for use by anyone during the 2017-2018 flu season because of concerns regarding its lack of effectiveness in preventing influenza in prior years.

Routine annual influenza vaccination is recommended for ALL persons aged 6 months or greater who do not have a contraindication to the vaccine. The CDC does NOT give any preference for one influenza vaccine over another as long as the vaccine given is age appropriate and licensed. Several of the vaccines have specific age groups that the vaccine is licensed for and they should not be given outside of those age groups.

Our recommendation for most patients is to just get a flu vaccine and do not wait for a specific formulation to become available in your area or with your provider. We don’t want people not getting vaccinated at all because they were waiting for their provider to get a specific formulation that never arrives.

The final take home message from our infectious disease team is this – people can receive ANY licensed, recommended, age-appropriate influenza vaccine. Unless your physician tells your otherwise or you have had an adverse reaction in the past, ALL persons 6 months of age and older should receive a seasonal inactivated influenza vaccine. Do not take the live attenuated (Flumist) vaccine.
I hope this information is useful for everyone. Have a wonderful Thursday!
-Kristin

Tue, Oct 31 11:54am · New Transplant Blog Posts in Transplants

Happy Halloween everyone!
Today’s blog post isn’t about candy….but remember that every little chocolate piece you eat is another trip around the walking track! 🙂
When we answer our emails at Mayo Clinic, one of our most often discussed topics is transplant eligibility. People want to know if they or their loved ones are eligible for an organ transplant. As some of you know, there are a lot of factors that go into making sure someone is able to have a successful organ transplant, so we thought we would write a blog post about this topic to help people understand the criteria a little bit better.
If you are going through the evaluation process, have you encountered some of these consultations/tests and questions? Which criteria surprised you the most?

http://mayocl.in/2hstsOC

I wish everyone a safe Halloween,
-Kristin

Tue, Oct 31 10:16am · Current wait times for a cadaveric kidney transplant in Transplants

@parboy, Thank you for your questions about wait time for a kidney in Arizona. As you may know, wait time for deceased donor kidneys across the country is an average of 3-6 years. This, of course, depends on multiple factors including blood type and the number and severity of illness of the other patients waiting. I hope this message explains the wait list a bit – the data can be complex, but I will do my best to describe the current kidney situation at Mayo Clinic’s campus in Arizona. Since kidney transplant patients wait such a long time, many patients investigate living donor transplant. Those patients who have a donor willing to donate, but who doesn’t match them, can also benefit from kidney paired donation where they “swap” their donor with someone else on the list who has a willing but nonmatching donor.

All transplant centers in the country are required to report data on transplants and wait list patients to a government organization called the Scientific Registry of Transplant Recipients (SRTR). I would be very careful about using any website that doesn’t reference this data, as transplant centers only report to a limited number of organizations, all within the government. Unfortunately, while there is data on SRTR regarding the wait list, the detail does not include average number of months patients wait. The Organ Procurement Transplant Network (OPTN) uses the data from the SRTR and reports more detail, which I have included below. The OPTN is a public website, and you can search data on any transplant center using https://optn.transplant.hrsa.gov/data/view-data-reports/center-data/#. When I searched our kidney program in Arizona, I found the following data on blood group B patients on the list and the amount of time they waited before transplant.

For blood group B patients, as of October 29, 2017:
Total blood group B patients = 100
Those transplanted within 30 days = 6
30 to 90 days = 8
90 days to 6 months = 5
6 months to 1 year = 20
1-2 years =28
2-3 years = 11
3-5 years = 21

Another metric important to patients waiting is outcome. The SRTR gives a nice summary for each transplant center and includes information on how that transplant center ranks with the national average. You can find the Arizona kidney program summary here: https://www.srtr.org/transplant-centers/mayo-clinic-hospital-azmc/?organ=kidney&recipientType=adult&donorType=. This web page gives a nice summary of transplant rates, wait list data, and outcomes.

I hope this summary is helpful to you. I am happy to help with further questions. You can also email us at transplant-rst@mayo.edu. Thank you!
-Kristin

Tue, Oct 24 1:57pm · New Transplant Blog Posts in Transplants

Hello everyone!
Today’s blog post touches on a topic that no one really wants to do – get a shot. As transplant patients, you all are thoroughly poked at each time you go to the doctor. I am sure the last thing you want to do is see another needle, but the flu vaccine is a crucial part of your health and well-being before and after transplant. Learn more about flu season and the vaccine in our blog today!

https://connect.mayoclinic.org/newsfeed-post/safeguard-your-health-this-flu-season/

– Kristin