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Jul 25, 2018 · Non-Epileptic Seizures or PNES in Epilepsy & Seizures

so his reg doctor said we might need to go to mayo to see what the doctors there think. i am afraid they will just look over the records of all the er visits test and notes from all the many doctors he sees and say the same thing. with no help. he use to be a forman and a firefighter now he is off balance when he walks sometimes and he is confused about normal things he would have no problems with. so he retired and us on disability. i feel the seizures or attacks he has are making these things worse. just feel bad he is going thur this.

Jul 25, 2018 · Non-Epileptic Seizures or PNES in Epilepsy & Seizures

i make sure he isnt gonna hit anything or fall then i talk to him his neurologist gave me diazepam to give him to help stop them. but he holds his breath looks like he is being zapped his legs and arm arm stretched out fist are tight and he holds his breath. they look so painful sometimes i can get him to swallow pill between them. his last for 30 to an hour sometimes he has one comes out of it goes right back over and over. i dont want to not get him to er and something more happens

Jul 25, 2018 · Non-Epileptic Seizures or PNES in Epilepsy & Seizures

i feel for anyone and their families dealinh with this because it is so hard

Jul 25, 2018 · Non-Epileptic Seizures or PNES in Epilepsy & Seizures

My hisband was in a motorcycle accident 2014and he start having seizures he had a bleed on his brain. 2014 they said it was real seizures but after many many test doctors many things they say they are not real seizures. i dont know what to tell ER when i have to take him. he cant work because he is off balance and gets confused easily. So i know as a man father and always worked 2 to 3 jobs at a time. now cant work i know it bothers him. he sees a counselor and a psychologist but he still has them. the doctor at ER 2 Nights agosaid for me not to bring him to er unless he is hurt to just let him have these attacks seizures whatever at the house. sometimes they will go on for 30 min stop and then start back. i am afraid it will hard him doing it so long. the doctors at hospital say they cant do anything i just wish someone could help his reg doctor would like us to go to mayo see if they can help. We are afraid if we go to mayo they are gonna tell us the same and send us home with same as all do here. we live about 5 hours away so i dont know what to do its an awful thing we feel helpless