elizabej (@elizabej)

@johnbishop ,@arnrob
Thanks John. I seemed to have a sudden drop in the emails for the past week or two also

Thanks for the good info @lois6524 and @jo54 I’ll do some more research!

@lois6524 I’m not sure what you mean by crystals in ears being out of alignment… can you elaborate and is there a solution?

Great info @elained – the culprit in my case could be sertraline. Did you end up discontinuing all SSRIs? Not sure I can manage that…

Hi @elained – I too have had syncope, and fractured my kneecap in December. Can you tell me which drug it was a side effect of?.

Hi @teetee7 I just saw your post that mentioned Midodrine – can you tell me how much you take and how it's working for you? I've been having a terrible time with low BP in the mornings and the mido (100mg I think) doesn't seem to do much for it…

@johnbishop you rock! I have autonomic neuropathy with voice, balance, bladder, and blood pressure issues, and am especially appreciative of the depth of the research you do in providing links to all kinds of useful information. @lisalucier thanks for sharing John's video!

Thank you @lisalucier for connecting all of us and hi to @tuckerdoodle @foggy and everyone else facing the challenges associated with autonomic dysfunction – you are not alone!! I was diagnosed in 2017, after 3 years of undergoing tests to rule out everything obvious and trying to convince specialists that the symptoms were connected. So now there's a name to it, but because it's idiopathic the best we can do is treat the symptoms, which for me right now means seeing a pulmonologist for shortness of breath, physical therapist for balance and gait, and urogynecologist for bladder dysfunction. The neurologist is so overloaded my next doublebooked appointment is June 2019… The latest challenge is getting approved for short-term disability from work to be able to keep up with all the appointments and treatments. What stage are other people in?