elizabej (@elizabej)

Hi Cathy @cathylc58 – My situation is similar to yours. My idiopathic autonomic neuropathy affects my voice, blood pressure, bladder, bowels, and balance. I'm 63 and it all came on very gradually starting 5 years ago and took 3 years to be diagnosed. Thankfully I'm not diabetic but I do self-catheter and must now use a roller walker to get around. The good news is that an MRI-compatibled InterStim bladder therapy "pacemaker" is on track for FDA approval so hopefully that will ease the bladder problem. Maybe that's something you could look into as well? https://www.fiercebiotech.com/medtech/medtronic-submits-rechargeable-sacral-neurostimulation-device-for-fda-approval

@johnbishop ,@arnrob
Thanks John. I seemed to have a sudden drop in the emails for the past week or two also

Thanks for the good info @lois6524 and @jo54 I’ll do some more research!

@lois6524 I’m not sure what you mean by crystals in ears being out of alignment… can you elaborate and is there a solution?

Great info @elained – the culprit in my case could be sertraline. Did you end up discontinuing all SSRIs? Not sure I can manage that…

Hi @elained – I too have had syncope, and fractured my kneecap in December. Can you tell me which drug it was a side effect of?.

Hi @teetee7 I just saw your post that mentioned Midodrine – can you tell me how much you take and how it's working for you? I've been having a terrible time with low BP in the mornings and the mido (100mg I think) doesn't seem to do much for it…

@johnbishop you rock! I have autonomic neuropathy with voice, balance, bladder, and blood pressure issues, and am especially appreciative of the depth of the research you do in providing links to all kinds of useful information. @lisalucier thanks for sharing John's video!