Yes! My thyroid was normal and all my blood work normal. I saw an allergist and he did not think it was an allergy. My antibodies were low. He just called it unexplained angioedema 🙄
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Hi, an update on my situation… my doc sent me to a nutritionist to test for food sensitivities. So I’ve cut out gluten and dairy. I noticed a big difference cutting out out gluten… the face swelling/neck swelling has gone away. My tongue is about once a month but seems to be somewhat better after cutting out some of the major food allergy. I am waiting for blood results on food sensitivities… so I’m curious what that comes back as. I’m still on Zyrtec and Prilosec. My doc mentioned singular but haven’t dared to start it. My tongue gets ridged like yours @johannahansen and my doc said that was swollen but normal ….which I know isn’t true cause my tongue isn’t always like that! I’ve seen multiple specialists and they have no answers for me… lots of blood work and a CT scan. Nothing. I try to stay calm now when I get the tongue swelling… I try to relax my jaw and take deep breaths and not focus on it. It seems to help some. I’m
Sorry you’re going through this … it is really frustrating and scary.
Hi @jerrd … I have been having slight tongue swelling since March…along with under the chin swelling. I had a cat scan and it showed my lymph nodes were slightly swollen…. no one can figure out why this is happening. I’ve seen several doctors and all with no help. All I have gotten for dx is acid reflux. I took a purse of prednisone and that helped but came back when I stopped. I’m on Zyrtec 2x a day right now and Prilosec. My doc mentioned singular as well. After reading your post I might try it. Been reluctant. The newest dx is food sensitivities… off to a new doc in a month for that. The tongue thing no one can explain. I’ve had a few doc tell me it’s anxiety or globular sensation…. so so frustrating when I know it’s not either of those.
I started taking pics of when my chin and face is swollen to show the doctors now. They just can’t explain it. I’ve had allergy testing but he only did environmental and it showed no allergies.
I have a lot of post nasal drip and congestion with all this.
I’m glad I found this feed.. I’ve been helpless for months now with these symptoms and no answers.