Thank you Nancy….I appreciate your words very much!
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Goodness 3 times in a week….that is a lot…from my readings there is no way to tell what makes them bleed or when they will bleed. People seem to all be very different. They did a angiogram and he said they would do a scan in like 6 months. I just really have no idea when it does bleed. It causes me no pain. Just put me into sleeping and I feel like I am far away. The first time I finally drove myself to the Medical Center I don't remember driving there…and the nurse came in to ask me questions…I couldn't answer any….they transferred me to the ER and did a scan to find it….finally got in touch with my husband. The second bleed…. I just felt somewhat away…not as bad as the first time….and it was about 1 1/2 year after the first time. I sat on it that long because the Asheville doctors had no idea what it was…so I was fine with it…but then when I went back and he kind of made me feel like a crazy woman for coming back…I ask for a second opinion. I went to Duke and the doctor told me right away what I had. It really takes yourself getting to know it all the best way possible. I feel that is what I am doing….hope its the right way! Keeping you in my prayers! 🙂 (hope this made some sense!…I am awful at writing!)
Hi Maria….I'm glad you are recovering. Do you know how long you had your cavernoma before you and your doctors decided on removing it? I have one on my thalamus. I am trying my best to keep it from bleeding! I wish I had some answers for you but I have no idea. I will be keeping you in my prayers!
Hi thank you for your response. I have symptoms of going out. I go to sleep. That is what happened on my first bleed. The second time was a mild one just made me feel out there. Not concentrated on anything. I am blessed I still work. We all have things to get through. I’m very blessed just wish I knew what made them bleed.
Hi. I am Brenda and found out I have a cavernoma on my thalamus. I had pneumonia and it was discovered then. The doctors in Asheville didn’t know what it was so I sat with it for about a year and a half. Then I think it bled again and I went for another scan. I didn’t feel comfortable at all with the brain doctor. Kinda strange for going back. It stayed on my mind and I ask for a second opinion. Thank goodness his new doctor referred me to Duke. Within 30 mins the doctor told me I had a cavernoma. He sent me for a angiogram and a couple more test. I have to go back sometime before the end of the year for another scan. I’ve read a lot about these cavernous malformation but still have no idea what makes them bleed. That is my main concern. I want it to go away!! I try to go on with my normal life then I get scared I have made it bleed again. I also have to take blood thinner because I have a
Factor 5 Leiden. I have decided this is the new me but at the same time I’m not sure about the new me. I pray about it so I know I will have the answers I need. Thanks for letting me share. Brenda.