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Posts (5)

Jul 25, 2018 · Small Vessel Disease in the Brain & Cavernous Malformation in Stroke & Cerebrovascular Diseases

Thank you Nancy….I appreciate your words very much!

Jul 24, 2018 · Small Vessel Disease in the Brain & Cavernous Malformation in Stroke & Cerebrovascular Diseases

Goodness 3 times in a week….that is a lot…from my readings there is no way to tell what makes them bleed or when they will bleed. People seem to all be very different. They did a angiogram and he said they would do a scan in like 6 months. I just really have no idea when it does bleed. It causes me no pain. Just put me into sleeping and I feel like I am far away. The first time I finally drove myself to the Medical Center I don't remember driving there…and the nurse came in to ask me questions…I couldn't answer any….they transferred me to the ER and did a scan to find it….finally got in touch with my husband. The second bleed…. I just felt somewhat away…not as bad as the first time….and it was about 1 1/2 year after the first time. I sat on it that long because the Asheville doctors had no idea what it was…so I was fine with it…but then when I went back and he kind of made me feel like a crazy woman for coming back…I ask for a second opinion. I went to Duke and the doctor told me right away what I had. It really takes yourself getting to know it all the best way possible. I feel that is what I am doing….hope its the right way! Keeping you in my prayers! 🙂 (hope this made some sense!…I am awful at writing!)

Jul 23, 2018 · Small Vessel Disease in the Brain & Cavernous Malformation in Stroke & Cerebrovascular Diseases

Hi Maria….I'm glad you are recovering. Do you know how long you had your cavernoma before you and your doctors decided on removing it? I have one on my thalamus. I am trying my best to keep it from bleeding! I wish I had some answers for you but I have no idea. I will be keeping you in my prayers!

Jul 22, 2018 · Cavernoma in Stroke & Cerebrovascular Diseases

Hi thank you for your response. I have symptoms of going out. I go to sleep. That is what happened on my first bleed. The second time was a mild one just made me feel out there. Not concentrated on anything. I am blessed I still work. We all have things to get through. I’m very blessed just wish I knew what made them bleed.

Jul 21, 2018 · Cavernoma in Stroke & Cerebrovascular Diseases

Hi. I am Brenda and found out I have a cavernoma on my thalamus. I had pneumonia and it was discovered then. The doctors in Asheville didn’t know what it was so I sat with it for about a year and a half. Then I think it bled again and I went for another scan. I didn’t feel comfortable at all with the brain doctor. Kinda strange for going back. It stayed on my mind and I ask for a second opinion. Thank goodness his new doctor referred me to Duke. Within 30 mins the doctor told me I had a cavernoma. He sent me for a angiogram and a couple more test. I have to go back sometime before the end of the year for another scan. I’ve read a lot about these cavernous malformation but still have no idea what makes them bleed. That is my main concern. I want it to go away!! I try to go on with my normal life then I get scared I have made it bleed again. I also have to take blood thinner because I have a
Factor 5 Leiden. I have decided this is the new me but at the same time I’m not sure about the new me. I pray about it so I know I will have the answers I need. Thanks for letting me share. Brenda.