I am scheduled to start IVIG in two weeks. I, too, would appreciate any information shared. Thank you.
Member has chosen to not make this information public.
Member not yet following any Pages.
thanks for your reply. I use a small dose Lorazepam when the autonomic system flares up, and that really seems to help. I've read about (and tried a couple of times) using a NEW toilet bowl brush and rubbing it lightly over areas on my skin that are burning/painful. It is a desensitizer. I try it from time to time. I'm interested in any info/successes on healing nerve damage.
Hello. I'm new to this group, and I have been diagnosed with Small Fiber Neuropathy. I have itching (general body and scalp), in addition to the burning on my thighs, and occasionally pain and burning in my feet. I take OTC anti-histamine for my itch, on an as needed basis. Lately I have been taking it every other day. There are times I can go for a week. I've found that's the nature of this confounding disease.