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Posts (7)

Jul 11, 2018 · Concern over Gadiolinum dye in MRIs in Breast Cancer

Congratulations with being clear. Keep up the good work and just keep an eye out for how you react to the dye. From what I've read most people are fine with it.

Jul 10, 2018 · Systemic lupus erythematosus (SLE) in Autoimmune Diseases

Thank you. My sister is 85 and did pretty good except for the joint pains and fatigue until she had a stroke a few years ago which seems as though the lupus has worsened. Her days and nightsv are switched. She stays up late and doesn't get up or at least going until 2 or 3 in the afternoon. She also has Hashimotos disease and has trouble keeping her thyroid regulated. But we are thankful that it was a slow progression for her.

Jul 9, 2018 · Concern over Gadiolinum dye in MRIs in Breast Cancer

I think that's an excellent idea.

Jul 8, 2018 · Concern over Gadiolinum dye in MRIs in Breast Cancer

I'm glad you are discussing this with your doctor. I have mentioned my liver and kidney concerns to my surgeon and radiologist. They indicated the test would not be as effective without having the dye and still recommend me having a MRI yearly. However, my case is different from yours. I have not had any diagnosed breast cancer. They are monitoring me because I am brca1 positive and have calcification/cysts. I am 72 and since my mother did not have breast cancer but did have liver and kidney issues, I'm weighing the risks of something that did show up in my blood work against something that might show up. Of course either one of them could have serious consequences. I would suggest if you decide to get the MRI to make notes of how you feel for at least 48 hours. Such as headache, dizziness, slurred speech, vision, skin coloration changes and let them know what you observe so you can decide whether you want to do additional ones in the future. Thanks for responding.

Jul 8, 2018 · Systemic lupus erythematosus (SLE) in Autoimmune Diseases

Hi. I just wanted to share some information we found out about my sister. She had drug-induced lupus from Inderal. She stopped taking it but was not aware that it caused the drug-induced lupus and a year or so later went back on it or an equivalent beta blocker. She developed symptoms again and I did research and found out the connection and contacted the company. Their response was no one knows how the second exposure 2 one of them will workout. This was many years ago and the second exposure did go into full lupus. I guess I'm just wanting to warn you to stay away from similar drugs that gave you the drug-induced lupus. they may have more knowledge now than they did back then but it is possible to go into full lupus.

Jul 7, 2018 · Concern over Gadiolinum dye in MRIs in Breast Cancer

After having a breast MRI with the dye added, I was very jaundice. 3 weeks later I had blood work done for an unrelated matter which showed kidney and liver slightly off. Two months later it was normal readings. My mother had kidney and liver issues so I am sensitive to this. Does anyone know of a connection with the dye used in this and liver. I know people with failing kidneys should be alert of complications. They want me to have an MRI yearly and I am concerned about my last reaction.