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Nov 28, 2018 · Salt Rooms for MAC in MAC & Bronchiectasis

Yes I get concerned about the medication. Do I think for one second that Drs love us being ill and are prescribing medications to make money…. no and find that a bit offensive. What I don’t understand Is people going to Medical Doctors and being surprised that they are prescribed medications. We have the choice to decide for ourselves if we want traditional medicine, holistic, or combination. Medical professional follow specific scientific model…. Is it the best treatment for everyone, no it isn’t. In fact, I’m having to make the decision to go back on the meds or not… due to side effects. But that’s my choice and we all just do the best we can. I wish this disease had one cure and it was instant. Unfortunately it, along with many illnesses don’t. I’m thankful their are MDs that are willing to work 80 hours a week to try to help. Some may be in it for money as you said you have heard, but being married to one, I know he wants nothing more than for his patients to have a good response and would never “ love” for his pts to be sick so that he makes $. Choose Western Med, Eastern, Holistic, or no treatment at all…. that’s on each of us.

Sep 10, 2018 · Frustrated in MAC & Bronchiectasis

I was on Ethambutol 1800mg, Rifampin 600mg, and Azithromycin 500 mg….. taking on Mon, Weds, Friday. I’ll see the Pulmonologist Thurs and then ID on Friday. Will see if they come up with different plan. TU so much!

Sep 8, 2018 · Frustrated in MAC & Bronchiectasis

Thank u! I am more emotional but don’t know how much of it has to do with the “ unknown “ and how to get it all coordinated. Be interested in others as well. Thanks for reply

Sep 8, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

It just seems impossible to stay up with all the different recommendations sometimes. Thank u for sharing this! Guess I’m on “overload “ trying to figure what to do. Thanks!!!!!

Sep 8, 2018 · Frustrated in MAC & Bronchiectasis

Has anyone else needed help at home while on the antibiotics? I’m off due to horrible side effects the last time… including “halutionations, extreme dizziness and foggy thinking”. I live alone most of the time. Am considering hiring someone to come twice a day when I go back on them in a couple of weeks. Thoughts/options so much welcome. Love

Aug 20, 2018 · Treatment: Did MAC treatment make you anxious and feel faint? in MAC & Bronchiectasis

Sadly yes I too had problems with the meds. In addition to side effects mentioned I was also having horrible pains in my abdomen. Like I was getting punched over and over. Dr took me off all 3 so now I’m not sure what to do. I’m trying to get into Mayo or NJewish but my insurance will not cover either. I’m 63 and not on Medicare. Hope you feel better and adjust to meds soon. ❤️

Aug 7, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

That Is wonderful to know! Thank you so very much. I will send u a PM right away.