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10 hours ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi Terri! I have a question for you you. I had to get off the the Toby again. I love using the Toby because it’s directly to my lungs but my throat get so irritated that it hurt to swallow. Is there anything that I can use to coat my throat because of Sjogrens? And have you heard of Levaquin? Please I need some help! Thanks Rita.

3 days ago · Doctor recommendations in the Tampa area? in MAC & Bronchiectasis

@america, Hi I live in the Tampa area! I have tried some doctors in the area but I recommend going to Mayo Clinic in Jacksonville. The doctors are very helpful! I was there in September and I have an appointment in March. They do all the testing and try to work with you in the best way possible. I highly recommend it. Good luck.

Thu, Jan 3 5:00pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I’m so excited for you! God is good. Hugs to you.

Dec 21, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi everyone I want to wish you all a Merry Christmas!!! I wish you all good health and happy New year. I hope and pray we all will have a great year ahead. Maybe a cure? 🙂 anyway hope is good! So hang in there and we can all do this one day at a time. Hugs to all Rita.

Dec 8, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi summer 33! I have horrible pains in my legs. I tried so many different rubs and and meds for inflammation but it won’t stop. I got gabapinten from my RA doctor and it helps but I feel so drained the next day. First they said it’s RA but when I went to Mayo I saw an RA doctor there and he said I don’t! So I just suffer every night with this too. I was told it could be coming from low sodium and anemia. I wish I could help. Take care Rita.

Dec 8, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thanks anniepie! Keep me posted on how you’re doing. It will get a bit easier as time goes by. Hugs Rita.

Dec 7, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi anniepie, I took the big 3 about 3 years ago. And I was doing good with no meds after that for about 2 years. This year was not good to me I got sick a lot and I found this group that actually saved me. Windwalker is amazing! She told me about Mayo Clinic and I am being treated there. I was on Tobramycin for almost 2 months and I started with the sore throat and I had to stop. So I’m not on any meds now. But I will be starting something different soon. I may be staying azithromycin not quite sure until I speak with my doctor. And yes I did use it and got ringing in my ears not constantly it would come and go. I wish I could help. Hugs!!! Hang it there it’s a long journey but we are doing it. Rita

Dec 6, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi annipie, I am so sorry to hear you hear you have Sjogrens. It’s so difficult to eat and swallow and the dryness all over my body is insane. The most difficult thing for me is eating without saliva. And with NTM it’s become a daily struggle. I was sick for the last six weeks coughing and sore throat… it was so hard to even drink water. But today I feel a bit normal and like my self again and for that I am overjoyed. I still have a little soreness in my throat but I’m not going to complain. I wish all the best. Please keep in touch Rita.