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Fri, Nov 1 2:52pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thanks!! How are you? Talk to you soon 🙂 Rita

Tue, Oct 29 6:26pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi All! I have coughed for 5 years and thought it will never end. I have one vocal cord and Sjogrens plus RA so I thought that’s how it’s going to be for the rest of my life. But I stopped all the coughing 3 months ago and I still can’t believe it myself! In July I was tested negative for Mac and pseudomonas and that’s when I stopped coughing. I am not sure if it’s meds or results but it stopped at the same time. I still sip water at night because of the dryness in my throat because of Sjogrens but no coughing. So I do believe it will get better. Hugs to all Rita

Fri, Oct 18 9:30am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thanks Terri!! It’s a great feeling to be well again! Mac is negative and pseudomonas also! My new doctor is great and I’m just enjoying this moment. It’s amazing how life Could be at times so sick when it feels like you never going to get better. But hope and pressing on is what helps and never giving up! I don’t know what tomorrow may bring but for the moment I’m just in a place where I’m content and happy to feel alive again. After being in the hospital for a week with pneumonia and it was scary! I’m so blessed to be well and tested negative!! I do still have Bronchiectasis but it’s really not slowing me down. Dr Johnson has me on some daily meds and it has been working great. So be encouraged everyone there is HOPE!!!! Hugs to Terri who has been a my motivator!!! Hugs to all Rita

Sun, Sep 29 4:09pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi Terri and everyone! It’s been so long since I’ve been here. But I just want to say that I am doing great!!! I have been so much better for the last 2 months!!! I hope you all are doing good or getting better every day. Hugs to all Rita.

Thu, Jun 6 8:33am · fatigue and muscle weakeness in MAC & Bronchiectasis

We all need each other and encouraging one another is one of the greatest tools to keep us going. I am blessed by your courage!!! Hugs

Thu, Jun 6 8:29am · fatigue and muscle weakeness in MAC & Bronchiectasis

Now that inspiration!!!

Fri, May 31 10:47am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I do remember having flu like symptoms also. Rifampin did make me sick 🙁 MAC makes us sick. Grateful for this group and help from Windwalker (Terri) I am much stronger. I have a lot going on in my body and sometimes I feel like staying in bed all day but when I think of how many of you are going through difficult times… I get going and I know and hope we will find a better way to treat Mac. My prayers for us all to keep going!!! Hugs to all! Rita

Mon, May 27 10:43am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi, I have been diagnosed with Mac and some of his friends 🙂 6 years ago and I am on the same dose of synthroid and never had a problem. Some of us can’t use the generic and need the real thing! Also it’s very important to talk to your doctor because if your thyroid is not functioning! You are not going to function also!! All the best 🙂