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Posts (104)

6 days ago · Meeting Members in MAC & Bronchiectasis

You guys are so beautiful!

6 days ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Oh my Clermont is an hour away from where I live!!

Tue, Mar 12 5:42pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thanks Jennifer! I really appreciate your help! I believe I’ll not be moving hugs rita

Tue, Mar 12 5:31pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thanks Irene5! Family means a lot to me and I know it the hardest thing to do. I have 4 daughters and I son and we are all 10 minutes away from each other. The good thing is we’re there for each and I know life would be empty without them. Thank you for sharing your experience it means a lot. Hugs Rita

Tue, Mar 12 3:15pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I came Florida 15 years ago from NY! I love this place but my husband wants to move because he thinks I’ll always be sick here. I don’t know what to do! My 5 kids all lives here and I love my grandkids so much. It will break my heart to leave them. I need help!!!!

Mon, Mar 11 9:29am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I do too and he doing what he thinks will work best for me. I have became very weak and I don’t eat well. He’s caring and listens to me. I see him in two months to be tested again.

Sun, Mar 10 10:28am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi Sueinmn! Thanks! I do speak with the nurse from time to time. I feel being closer would help but for now I’ll do what I need to. This disease is lot more complicated than I thought.. this group has helped me in many many ways. But it’s scary having one vocal cord, Sjogrens, RA, restless leg syndrome and so much pain daily. I do get discouraged from time to time. I am thinking about moving because in the Tampa area I think it’s infested with Mac. I would love any thoughts on this. Thanks again Rita.