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Posts (145)

Wed, Sep 4 5:00pm · Polymyalgia rheumatica in Autoimmune Diseases

Glad you wrote about taking a small amount of predsnosone when tapping down or up John I have been meaning to do this A little goes a long way. Beryl

Sun, Sep 1 11:31am · Polymyalgia rheumatica in Autoimmune Diseases

Hi dreamer we just have to do our best for the people round us and try to smile , but I is hard to live with and there never seems to be a pattern that you can see anyway…..we just need it to go away …..all the best Beryl

Sat, Aug 31 3:24pm · Polymyalgia rheumatica in Autoimmune Diseases

Thank you for your nice words. It has been a bit disheartening but we must keep our chins up Beryl

Sat, Aug 31 2:54pm · Polymyalgia rheumatica in Autoimmune Diseases

Good attitude Beckie I am having a return of PMR and trying hard to smile and keep happy
All the best to you Beryl

Wed, Aug 7 3:06pm · Scoliosis & back braces, devices in Spine Health

Hello Justin this is Beryl as far as I know I haven't got scoliosis so can't help with this one ……now I know my husband has but he hasn't so far had any special help……Beryl

Tue, Aug 6 3:04pm · Polymyalgia rheumatica in Autoimmune Diseases

Yes it helps a lot to hear others are having the same experience It helps if you can try to 😃 difficult I know. Beryl

Tue, Aug 6 11:37am · Polymyalgia rheumatica in Autoimmune Diseases

This is Beryl …..I honk what John says is a more sensible move as you do not what a flair up….

I myself have been having trouble and am on 7.5mg with methotrexate 20mg once a week folic acid also …..I am improving but as usual very slowly …..pain level is never the same as it seems it goes with how much I have done that day ……but the good thing is where I had pain up to my waist it is now from thighs and down ……th stiff back was very difficult to deal with …..

I think I would say to you don't be in too much of a hurry this thing has a mind of its own …..but we are all different …..Beryl

Tue, May 21 5:45pm · Polymyalgia rheumatica in Autoimmune Diseases

Hello this is Beryl …..have an update on my condition …….our travels to Sicily were too much and coursed my PMR to spread to my waist …..now gone down to the hips and of course a lot more pain with it ……
Had my six month visit to OHSU in Portland and my Doctor, to put a long story short , wants to get me off Preds as I have been on it for ten years …..and has put my preds up to seven and a half for two weeks to get the inflamation down, and then five until I see him again….added to this is Methotrexate and folic acid…..tapering …..so it's watch this space and see how I get on with this new mix of meds….well must smile and put on a happy face …….Beryl