Member has chosen to not make this information public.


Member not yet following any Groups.


Member not yet following any Pages.

Posts (5)

Aug 8, 2018 · Lyrica in Bones, Joints & Muscles

i have been diagnosed with PTS in Jan this year & have also been prescribed to take Lyrica. but after reading the side effects and user reviews i have decided not to take this pill. i use alot of herbal ointments & willing to try the hempseed oil soon.

Aug 8, 2018 · Lyrica in Bones, Joints & Muscles

hi @michellerog1. i really hope you start feeling better soon and really sorry for your pain. have you tried hemp seed oil? i havent tried this myself but from the reviews i have read that this really helps for the pain. it is a bit expensive though.

Aug 8, 2018 · Parsonage turner syndrome * in Brain & Nervous System

hi @lisalucier. thank you for your support. the numbness in my arm remains however in my pelvic area it seems to have lifted a little and does not trouble as much a it used to. it is mostly at night when i feel the pain on my pelvic side. i have been really pushing my arm to do some extra stretches. it does help but still alot of pain.

Aug 6, 2018 · Parsonage turner syndrome * in Brain & Nervous System

since my last update on PTS, i have been going for physio and have been told on my last visit that there is nothing more that can be done for me. so i went home and started my own exercises doing wall climbs etc. what seems to help is push ups. i have been following Chris Drake on youtube. he highly recommends push ups. i can barely do 1 because of the pain and arm/shoulder weakness so i do something called "girl push ups (using your knees intead of the feet). also i have started with planks. it is very slow but progressive. i was prescribed lyrica meds but have read that the side effects are dangerous. so i have not been taking any pain or nerve medication for the past few months and deal with the pain on a day to day basis. i have slowly stated to move my am towards my head. with pain and some difficulty i have been able to do some movements above my shoulder. everyday i try grabbing the top of the wall which is about 2 meters high with just my affected arm. i do this for about 3 or 4 times depending on how puch pain i can tolerate. the muscle waste is still there as well as the numbness. i still do not have most of the range but have been making slight progress in terms of raising my hand above my head. the outwards range is still very painful and difficult. i guess we have to take things 1 day at a time and keep being positive.

Jun 9, 2018 · Parsonage turner syndrome * in Brain & Nervous System

Hello good people. I have been diagnosed wit pts for about 4 months now. Im a male 42 yrs. I believe it is more common amongs males to get this syndrome. With me there was no surgery or trauma. Just woke up 1 morning with neck pain & thought it from sleeping too much on 1 side. A week later had this stabbing pain on the shoulder bone. Been for MRI as well as nerve conductive studies. Doctors here dont have much experience with this type of syndrome. Currently going cor physio every 2 weeks but not much help there. I have also developed numbness and some pain on my right upper thigh jus below the hip bone. I think it is the pelvic area. I still have alot of pain. Part or the arm is totally numb. Theres also waste muscle. So from what i have been reading on this corum thus far is that this takes a long time to heal. I have also read somewhere that nerve transplant can also help with the recovery. I currently do not sleep much at night due to the pain. Pain is not as bad as the 1st couple of weeks though. Any advise regarding nerve surgery? Pardon me if i take some time to respond as im in south africa. The time zones are way different.