Hi, @kimchi19 I’m sorry for just responding now. I must have missed your post. I have had PTS since February 2017. After a couple of months of trying to diagnose what I had my doctor referred me to an orthopedic nerve surgeon. I had an MRI done of my neck and an EMG. The surgeon assured me that I needed ACDF surgery (cervical fusion) so I agreed to the surgery. Unfortunately, the surgery didn’t help my condition – nerve pain in my right arm and hand. Even worse, two weeks after my surgery I developed the same nerve pain in my left hand. Fortunately, the pain is not nearly as bad as in my right hand, but it is something I live without. 🙂
A week after my surgery I saw the doctor for a follow up appointment and I told him my pain was getting worse. He put me back in the hospital where I had more MRIs and tests. The doctors, a neurologist included, couldn’t find what was causing my pain.
About 6 weeks later I saw two neurologists and the second one performed an EMG and concluded that I likely had PTS. A more recent visit to another neurologist confirmed that I had PTS. I was told that mine is unusual in that the pain doesn’t usually last this long.
Anyone who has PTS will tell you that this condition requires a lot of PATIENCE. I have tried many remedies, but I only get some relief from pain meds, compression gloves, ice, and heat. In the past 6 months I have had some improvement with the use of my right hand and arm, but I am still very limited with what I can do. More than anything, though, is the constant nerve pain that I experience on a daily basis. That has been difficult to live with.
I hope you get better very soon. Just know that you are not alone. There are lots of kind people who are here to help you!