I am sorry for your pain and health issues. I have seen two neurologists both of whom diagnosed my condition as Parsonage Turner syndrome. It has left me with nerve pain in both hands and right arm as well as muscle atrophy. There’s not much you can do for it other than pain meds and physical therapy. I’ve tried several different rub on creams, but haven’t found anything that helps reduce the pain.
The first doctor I saw was an orthopedic spine surgeon who diagnosed my condition as being in my neck and performed ACDF C6/C7 surgery (disc removal and fusion). Unfortunately, the surgery didn’t help. Following the surgery I was seen by a neurologist. I wish I had seen the neurologist prior to seeing the surgeon.
After much research and consideration, I decided against a spinal cord stimulator. My neurologist advised against it, and I read too much accounts from people who had problems with it. I don’t want to go through more surgery and possibly be saddled with even more pain. I know you have a trial done first, but I have read stories from people where the trial works well, but the implant doesn’t. My doctor said that they don’t know why this occurs. So, it was a “No” for me.