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Posts (65)

5 days ago · Has anyone one tried the HF10 Spinal Cord Stimulation Device? in Chronic Pain

I am sorry for your pain and health issues. I have seen two neurologists both of whom diagnosed my condition as Parsonage Turner syndrome. It has left me with nerve pain in both hands and right arm as well as muscle atrophy. There’s not much you can do for it other than pain meds and physical therapy. I’ve tried several different rub on creams, but haven’t found anything that helps reduce the pain.

The first doctor I saw was an orthopedic spine surgeon who diagnosed my condition as being in my neck and performed ACDF C6/C7 surgery (disc removal and fusion). Unfortunately, the surgery didn’t help. Following the surgery I was seen by a neurologist. I wish I had seen the neurologist prior to seeing the surgeon.

After much research and consideration, I decided against a spinal cord stimulator. My neurologist advised against it, and I read too much accounts from people who had problems with it. I don’t want to go through more surgery and possibly be saddled with even more pain. I know you have a trial done first, but I have read stories from people where the trial works well, but the implant doesn’t. My doctor said that they don’t know why this occurs. So, it was a “No” for me.

Mon, Jul 20 1:29pm · Low Dose Naltrexone and Neuropathy in Neuropathy

I will update from time to time my experience with low dose naltrexone. I have read that some doctors start their patients with 1.5 mg and increase it by 1.5 mg every two weeks until they reach 4.5 mg. Starting at 4.5mg is unusual, I think. I have read that you should “start low and go slow.” People who do this often start at 0.5 mg.

When I was on an opiate my doctor prescribed ultra low dose naltrexone (ULDN). That was okay to take with an opiate. I think that was unnecessary since the dose was so low, between 1 and 10 micrograms. I don’t know how that would have helped me. It was supposed to enhance the effect of the opiate, but I didn’t experience it. Once I was off the opiate I began taking LDN.

Sun, Jul 19 6:33pm · Low Dose Naltrexone and Neuropathy in Neuropathy

Hi Hank, my doctor told me about making LDN from a 50 mg naltrexone tablet and then I looked it up on the internet for more details. Measure out 50 milliliters of DISTILLED water and pour it into a small bottle. I use a small brown bottle that a nerve supplement I used to take came in. You also need a bottle cap that you can insert a syringe into. I use a 1 milliliter syringe, but a 5 milliliter one might be better for larger doses. Once the distilled water is in the bottle put in a 50 mg tablet of naltrexone. Place the bottle in the refrigerator. From what I read it takes 2 hours for the tablet to fully dissolve. Once dissolved the full bottle contains 50 mg of naltrexone in 50 milliliters. Therefore, 1 ml equals 1 mg of naltrexone. The bottle must be kept in the refrigerator at all times. You must also shake the bottle well before you take each dose. I believe everything I just stated is accurate, but it’s best to look this up if you want to make LDN yourself. Your doctor will advise you concerning this as well. Good luck!

Sun, Jul 19 1:03pm · Low Dose Naltrexone and Neuropathy in Neuropathy

I have been taking LDN for nearly four months. I have a condition known as Parsonage Turner syndrome which causes severe nerve pain in both hands and my right forearm. I began with 0.5 mg of LDN and have slowly increased it to 2.5 mg. So far it hasn’t helped me. I plan to keep working my way up to at least 4.5 mg to see if I will find an effective dose. I make my own LDN from a 50 mg tablet so it is very inexpensive to use and it gives me flexibility when changing doses.

Sun, Jul 19 12:17pm · Does anyone find that a type of shoe helps your foot neuropathy? in Neuropathy

A website, NutritionFacts.org, by Dr. Michael Greger might be helpful to you. He has many videos concerning nutrition and diet. Search for ones on diabetes.


Tue, Jul 14 8:42am · Low Dose Naltrexone and Neuropathy in Neuropathy

I’m not sure if anyone posted this website about low dose naltrexone, but it has a wealth of information about it. I thought it would be helpful to anyone considering trying LDN.


Sat, Jul 11 5:13pm · EMG painful? in Neuropathy

I had two EMGs done about a month apart by two different neurologists. The first neurologist had 30 years experience. I don’t know what the problem was, but he had me jumping off the table with pain. He finally zapped me one last time and said. “We’ll stop here.” I wish I had stopped him myself. A month later a second neurologist did an EMG test and I had no pain at all. I should mention that my condition hadn’t changed during this period. EMGs needn’t be painful. The skill of the doctor or technician has a lot to do with it.

Wed, Feb 5 5:58pm · Does Back Pain ever Get Better? in Chronic Pain

@arlenejc Thank you so much for your post and your reference to Curablehealth.com. I looked into this website and am now a subscriber. I can’t believe I haven’t seen something like this before. I have tried so many other remedies for my pain. The information on the website looks like it will be helpful. I encourage others to take a look at it. I hope you will be helped by this program. Thanks for sharing!