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Sat, Oct 5 4:22pm · HF 10 Spinal Cord Stimulation Device (Relieves back and leg pain) in Chronic Pain

@papawheelie Thanks for your response. I’m so sorry you have been through so many surgeries. You sound like you may be a good candidate for a spinal cord stimulator. I would like very much to hear how you make out.

After nearly a year I’m going to see the doctor who recommended a scs and will decide if I will go ahead with a trial. I don’t want to go ahead with the surgery if the doctor is not confident that it will help me. I’ll let you know if I do have a trial.

Fri, Sep 20 6:19pm · Parsonage turner syndrome * in Brain & Nervous System

Hello, @johnbishop, thanks for your concern and information. I did try myofascial release therapy, but after 5 sessions the therapist didn’t think it would provide any relief or benefit for me. She suggested I try physical therapy. I appreciated her honesty because the therapy was quite expensive. In the past I have tried occupational therapy, acupuncture, and a chiropractic therapy called Active Release Techniques. Nothing really helped very much. For now, I think I will continue to do exercises at home.

Fortunately, I have seen some improvement in my hand and arm in recent months. I can do more things than before. It’s just the pain that won’t quit.

I hope you will find some relief for your back pain. That must be very difficult for you. Thanks for all the help, support, and encouraging words you provide to so many of us here. It’s good that you are so generous with your time.

Fri, Aug 30 6:00pm · Feeling at my wits end with Chronic Pain and Fibromyalgia in Chronic Pain

Hi, Jen, I’m so sorry for the pain you are experiencing. You have been so encouraging to me and to others so I wanted to reach out to you. With regards to the opioids you’re taking I wouldn’t worry about becoming addicted, especially if you have taken them before and successfully stopped. They do help some people with chronic pain, myself included. I hope your pain becomes better, and I hope your husband has success with his spinal cord stimulator if he has surgery for it. Sending you prayers and good thoughts. 🙏

Mon, Aug 26 5:43pm · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

@karen00 Hi Karen, I’m sure there many others who have not been helped by CBD. I am one of them. It has not helped the nerve pain in my arm and hands. I tried three different brands of CBD oil. The last one I purchased at a pharmacy. It was very potent and very expensive. All it did was make me feel spacey. I know of people with arthritis who have been helped by CBD oil, but it doesn’t help everyone.

Tue, Jul 23 12:45pm · Parsonage turner syndrome * in Brain & Nervous System

Hi, @kimchi19 I’m sorry for just responding now. I must have missed your post. I have had PTS since February 2017. After a couple of months of trying to diagnose what I had my doctor referred me to an orthopedic nerve surgeon. I had an MRI done of my neck and an EMG. The surgeon assured me that I needed ACDF surgery (cervical fusion) so I agreed to the surgery. Unfortunately, the surgery didn’t help my condition – nerve pain in my right arm and hand. Even worse, two weeks after my surgery I developed the same nerve pain in my left hand. Fortunately, the pain is not nearly as bad as in my right hand, but it is something I live without. 🙂

A week after my surgery I saw the doctor for a follow up appointment and I told him my pain was getting worse. He put me back in the hospital where I had more MRIs and tests. The doctors, a neurologist included, couldn’t find what was causing my pain.

About 6 weeks later I saw two neurologists and the second one performed an EMG and concluded that I likely had PTS. A more recent visit to another neurologist confirmed that I had PTS. I was told that mine is unusual in that the pain doesn’t usually last this long.

Anyone who has PTS will tell you that this condition requires a lot of PATIENCE. I have tried many remedies, but I only get some relief from pain meds, compression gloves, ice, and heat. In the past 6 months I have had some improvement with the use of my right hand and arm, but I am still very limited with what I can do. More than anything, though, is the constant nerve pain that I experience on a daily basis. That has been difficult to live with.

I hope you get better very soon. Just know that you are not alone. There are lots of kind people who are here to help you!

Fri, Jul 12 7:09pm · Generic for Lyrica to be available in July 2019 in Chronic Pain

@bull I just checked with my pharmacy, and they did not have the generic for Lyrica yet. I guess you will have to check with your pharmacy. Hopefully, it will be available soon.

Fri, Jul 12 7:03pm · Generic for Lyrica to be available in July 2019 in Chronic Pain

@cdcc , I’m sorry you had such difficulties with Lyrica. I guess we all react differently to medications. I’ve been taking Lyrica for two years. When I was taking 300 mg a day, my left ankle swelled up. I also encountered brain fog. I wondered how much Lyrica was helping with my pain so I tapered off of it. Fortunately, I didn’t have too much a problem doing that. I stopped taking it for about a week, but I realized that it took the edge off of my nerve pain. My pain was noticeably worse. I slowly restarted taking Lyrica, but this time I only worked up to 150 mg a day. At this dosage I really don’t have any problems with it.

Like everyone else I’m sure, I wish I didn’t have to take any meds. Prior to two years ago I didn’t take any medication. Unfortunately, that has changed. I try to take as little meds as possible, eat healthy, and exercise as much as I’m able. And hope for a better tomorrow, one with less pain!

Thu, Jul 4 2:37pm · Living with Neuropathy - Welcome to the group in Neuropathy

@brendakaye I am sorry for the pain you are having in your feet and hands. You asked about whether compression gloves help with pain. My experience has been that they help a great deal. While I still have pain while wearing compression gloves, the pain worsens considerably as soon as I take them off. I have tried 3 different brands and the ones I like best are Isotoner. They provide adequate compression yet they are not difficult to get on and off. Some of the others are difficult to get on and especially off. That just contributes more to your pain.

I also use ice and heat to help with pain. They just mask my pain, but that’s still a relief. I’ve tried half a dozen creams, but unfortunately none have helped.

I hope you will find something that helps with your pain.