654321 (@654321)

So sorry about your news and being on prednisone . It s is a difficult drug all the way around . Only thing that helps temporal arteries . So they tell me. I’ve now gotten to 5 mg daily.
Been on this second round for about three years. Good luck to you. Any way I can help please let me know.
Not so bad every three months blood work and s evaluation

That sling shot video was awesome! Thanks for sharing

Bless you as you have many issues ! I thought you had to have a biopsy to be sure about g a .

Normal oh yes! I have been dealing with this for several years . Prednisone has been with me for many years now . unfortunately it s the only medicine that really helps .

It s a real mysterious disease. frustration for sure .
At least it s not a disease that totally takes
Us down from all
Life s activities . Good luck and hope it goes in remission soon
.

Oh my you really hit the jackpot! Good luck and hope you remain med free. Thanks for sharing .
I am still on five mg and it s been a long journey for me

I had high calcium score not any where near yours Checked parathyroid have they mentioned that to you? Had mine removed and it has stayed in normal range. Just letting you know may
Be totally different than your problem

Thank you so much for this valuable information. I have been on 5 mg of prednisone for a long time . Not a lot of information out there about this . So thanks again.

I promised I would tell the name of the book and author about Giant Cell Arteritis . The name is Giant Cell Arteritis , one man s experience. The author is Mason A Clark . It is an easy read and he has done a lot of research. He is also 95 years old.
This is for those of with Temporal Arteritis or GCA..