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2 days ago · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

Hi Cindy~ I found Opdivo and Tecentriq to be about the same as far as side effects. I have horrible muscular pain and some joint pain, especially when trying to sleep. Whether that is from being on immunotherapy since 2015, no one knows. I am also 65 and a retired PE teacher and personal trainer so my body has taken a lifetime beating! My skin is very sensitive but that could be from teaching in the sun forever and now living at the beach. I can deal with all of this and that is what counts!! Were you able to go on Inspire.com and find some answers?

2 days ago · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

Hi Cindy,
Try going on Inspire.com to the lung cancer survivors. You can type in Infinzi or Durvalumab in the top right hand corner and it will open up all the discussions on that drug. I was on Opdivo for 3 1/2 years and now on another immunotherapy called Tecentriq. Mayo sent my tissue samples to Foundation One. There are people on Inspire with unknown primaries. Hope this helps…let me know if you need help on the forum.
Karen

Fri, Mar 15 7:10pm · Immunotherapy and chemo; Keytruda side effects in Lung Cancer

Yes, there are a few Keytruda threads on there. I have been on Opdivo since Sept 2015!!!

Fri, Mar 15 5:10pm · Immunotherapy and chemo; Keytruda side effects in Lung Cancer

birdsforever -go on inspire.com the the lung cancer group. You will find articles regarding the use of THC/CBD oils. As wonderful as they can be for cancer patients, not so with patients on immunotherapy. You will also find many patients who had their thyroid wiped out.

Sun, Feb 10 1:02pm · Lung Cancer and Looking to 2019 and Beyond in Lung Cancer

conniechoi84 – I just wanted to add that until a biopsy is performed it is only assumed it is cancer. Since they found multiple spots on her lungs I am hoping they will do a CT scan with contrast from the neck to the thighs. They then can see if there are other spots where it may of spread to and give a better idea where to do the biopsy. This can be a long journey so hang in there and thanks for supporting your mother in law.

Fri, Jan 25 10:13am · Pericarditis/Constrictive Pericarditis in Heart & Blood Health

Thank you Colleen for thinking of me! As it turned out, I was misdiagnosed all along. I had a nodule in the subcarinal lymph node that was pressing on my heart and esophagus. Went for a 2nd opinion, had a biopsy done and was given radiation. I was all better within days and the nodule remains resolved.

Dec 27, 2018 · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

@margot69 – Please try to remember and understand that until you have these biopsies, you do not really know if you have cancer. I can understand how anxious you are as I have been through all of this myself. As I told you before, I had 2 lung biopsies, one liver biopsy and one vertebrae biopsy. None are very painful although my vertebrae was sore for weeks. You will not be knocked out for the lung biopsy because you need to breathe properly. They completely numb the area, do the biopsy which is very fast while looking at your scan on the screen next to you, and then give you a shot through your IV for pain. If you need more, they will give you more. The liver biopsy is pretty easy, again you will be numbed, feel pressure and hear the tool pop to get the biopsy and it is over. None were a big deal to me. I guess once you have been through labor nothing is as bad! You will never have to worry about nudity issues….you will always have on a hospital gown and blankets. The lung biopsy is done through your back. The liver biopsy is done in the front but you are completely covered except for the tiny area being biopsied. Take some deep breaths and try not to worry …..easy for me to say but hey, I been terminal for over 4 years!! Hope you got home safe and will sleep well in your own bed tonight!

Dec 23, 2018 · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

I too had spots (3) on my liver and went through a liver biopsy that proved they were they were nothing!