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First Name
Roy

State/Province
NM

Country of Residence
US

Health Interests
Neurology (brain and nervous system)

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Posts (26)

Tue, Jun 11 9:58am · Parkinson’s unresponsive episodes. in Parkinson's Disease

Parkinson's disease relief:
Diagnosed
2012
My regimen:
The positives: no bradykinesia, I cut my food with a knife, no button difficulties, brush my teeth now w/o needing elect brush, more strength. Getting in and out of bed, turning over is easier. No more constipation. Parkinson's progression stopped. Suppressed all motor and non-motor symptoms…
Entering my 7th year post diagnosis and have not fallen, not once, to the surprise of my neuro. Was seeing neuro every 6th month, last visit he set app one year. He said if needed we could do some changes earlier. He said my condition can change in as little time as one week.
New schedule, now I follow this regimen:
2 x day C/L 50-200 ER : 8 am, 5 pm. Because it is ER, I take with or w/o food.
2 x day (8 am 2g, and 5 pm 2g) Vitacost vitamin B1 (as thiamine HCL) 500mg, easy swallow capsules

B1 Thiamine therapy reference / stop progression, suppress motor and non-motor symptoms:
(Thiamine HCL is oral substitute to injecting B1) 2 x day (morning 2g and at lunch 2g)
Doctor Costantini strategy that I find helpful "thiamine hcl stops the progression forever…".
Parky people say the first five years is your honeymoon stage with Parkinson's. After that, progression more rapid.

I have gone from slow motion to normal motor action since joining the growing number of PwP that have started B1 regimen/protocol. –
Doctor Costantini – “Why is this? Because there is no medicine or drug that is able to affect all of the organs, whereas all of the organs function thanks to Thiamine. An important detail”, adds doctor Costantini, “the Thiamine therapy brings no collateral damage with time”.

Join my facebook group:
"parkinson's thiamine hcl"
https://www.facebook.com/groups/232260083958797 ; …
Parkinson's Relief, Questions and Answers
 
Guide:
1. Read page, About, open links.,
2. On Files page, open B1 FAQ document.
3. On Files page, download First Appointment document, answer and submit.
4. read Announcements
5. Website: Dr Costantini's guidelines on Parkinson

https://stopparkinson.org/en/table-of-content/

Fri, Apr 12 3:13pm · Living with Parkinson's Disease - Meet others & come say hi in Parkinson's Disease

Thiamine hcl or hci an over the counter vitamin.
Four grams daily, divided into 2 doses

Fri, Apr 12 10:56am · Living with Parkinson's Disease - Meet others & come say hi in Parkinson's Disease

Prior to high dose thiamine hcl I had trouble covering in bed.

Fri, Apr 12 10:53am · Living with Parkinson's Disease - Meet others & come say hi in Parkinson's Disease

1. Ignorance.
2. I am on carbidopa levodopa.
3. No.
4. Solved constipation by week one. Generally takes four months for gross improvement.

Thu, Apr 11 4:55pm · stop progression, suppress motor and non-motor symptoms in Parkinson's Disease

See the first post. Mayo Admin does not want me to repost.

Wed, Apr 10 10:11am · stop progression, suppress motor and non-motor symptoms in Parkinson's Disease

Thiamine hcl has not shown to have a tremor reducing affect.

Sun, Apr 7 6:25pm · Living with Parkinson's Disease - Meet others & come say hi in Parkinson's Disease

I will thank this Italian neurologist everyday of my life. He gave me my life back. Doctor Costantini – “Why is this? Because there is no medicine or drug that is able to affect all of the organs, whereas all of the organs function thanks to Thiamine. An important detail”, adds doctor Costantini, “the Thiamine therapy brings no collateral damage with time”.