About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (7)

Sat, Jul 6 6:01pm · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

My PCP recommended I see my neurologist in regards to my fatigue. They tried the CPAP and it made it worse where I was falling asleep during the day. My appointment with my neurologist is at the end of August.

Wed, Jul 3 7:04pm · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

Doctor did not recommend. Just did a lot of research. I love nightshade vegetables, especially peppers. I've cut them completely out of my diet, increased my magnesium instake through topical lotions and my nerve pain and flare ups have decreased dramatically. Don't get me wrong, I still have symptoms daily, they're just not as bad and I'm not taking any opioids or benzos. Decreasing my intake of gabapentin, hoping to be off by the end of the year. I'm still struggling tremendously with fatigue. I hate taking medications, anything I can do without popping a pill that's going to screw up my brain, heart, or other organs, I'm all for.

Wed, Jul 3 12:07pm · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

Recently had routine blood work, of course everything is pretty normal, except cholesterol because of my muscle loss and inability to exercise as much as I used to. Eating extremely healthy, fruits, vegetables, and lean proteins only. Cut out nightshade vegetables and noticed less flare ups. Rarely eat processed foods.

Wed, Jul 3 11:59am · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

Symptoms are still there, some days better than others, but still no MS diagnosis.
Mayo diagnosed me with Fibro and Central Sensitization. Trying to keep on top of my exercises to build my muscle back up that I lost over the last year.
I downloaded the Emilyn app to track symptoms since 95% of my symptoms are the same as MS. It's a good app. You can set medications reminders too.

Wed, Jun 12 4:10am · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

Has anyone here had symptoms for years but no lesions? Last year I lost the use of my legs but went thru rehab and I am walking again. I still have many issues, extreme fatigue, dizziness, blurred vision, stability, headaches that I never used to get before, pins and needles, numbness, and spasms and urinary incontinence to name a few and I'm 46. All of my MRIs keep coming back normal. I know this is not in my head. My mother had MS and so I'm extremely familiar with the symptoms and everything I've been experiencing the last 2 years is deja vu of my mother's condition. Before 2 years ago, I was extremely active, running, social, and had a life. Now my life is just trying to survive through the day at work to pay bills. How long did you have symptoms before lesions appeared? Doctors have given me a diagnosis of Central Sensitization and Fibromyalgia which I'm not convinced of as all of my symptoms point to MS but lack the lesions. *sigh*

Mon, Apr 15 12:14am · Has anyone been diagnosed with Central Sensitization? in Brain & Nervous System

I went through the 3 week program and it helped tremendously. It's a lot of information and dedication to getting better. I also did the 2 day fibro clinic. Both have been helpful. Will never be back to what I was before but I'm slowly learning to accept and adapt.

Jun 8, 2018 · Has anyone been diagnosed with Central Sensitization? in Brain & Nervous System

I was just diagnosed with Central Sensitization Syndrome and I'm enrolled in the pain rehabilitation program at the end of this month. I have been dealing with issues since December 2017, which have ultimately led to me not being able to run or walk normally and the pain has been so severe that I have been unable to work. I am hoping and praying that upon the completion of the program that I will be able to return to work finally. If not, I don't know what I'm going to do. I would love to hear about other patient's experiences with the pain clinic and how they've been able to not let this take over their life. I was extremely active prior to all of this happening to me and it has been really depressing on the limitations it has caused in my life.