About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (7)

Nov 6, 2018 · Help on treatment for Erythema Multiforme Major in Autoimmune Diseases

The worst ones would last three weeks and seemed to be triggered by stress. At the time, my diagnosis was lupus (perhaps a part of MCTD—I’m not a medical professional). Lupus is known for these ulcers, I understand. I always used Biotene toothpaste and mouthwash as well as many tubes of an oral analgesic. I think it was orabase. The best one contained tannin but it stopped being available. I began drinking a lot of tea that contains tannin. Stress was a constant in the work I did and I also became caregiver for my 86+ year old mother who lived until almost 94, and later my husband. As the symptoms of my autoimmune disease morphed into RA and OA, the mouth ulcers receded in frequency. These illnesses are so complex. My husband and I have had several different dermatologists ; as you know, some physicians are more knowledgeable or dedicated and seem to have more resources for information. I would encourage your grandson to seek another opinion—preferably Mayo if at all possible. The communication among physicians in different practices often falls by the wayside, I’ve discovered. Dermatology and rheumatology are tough fields and often seem to have no solid answers. Please don’t give up hope for successful treatment.

Nov 5, 2018 · Help on treatment for Erythema Multiforme Major in Autoimmune Diseases

I am so sorry. I used to have horrible mouth ulcers with mixed connective tissue disease and as a child, my palms were constantly blistered and very painful. Empathy won’t help much, but as a grandmother I understand your pain for your grandson

Nov 5, 2018 · Help on treatment for Erythema Multiforme Major in Autoimmune Diseases

I hope your grandson has access to specialists in Dermatology and rare disease treatment. My husband had erathema multiforme 3 times. We were fortunate to discover the trigger the first two times. First was a prescription for a statin; next was a viramin supplement; and the last may have been other medical conditions. He was treated by his internist the first time; by his regular dermatologist the second; and referred to the special wound treatment department of a local hospital for the third—which was the most serious. We were able to get home health care for this treatment since I was recovering from hip replacement. That was over three years ago and he’s had additional major surgery since then with no recurrence. I hope your grandson gets relief soon

Jun 7, 2018 · unexplained illness in Autoimmune Diseases

His symptoms remind me of my own battles with migraine; also I worked with the mother of a boy about his age who suffered horrible migraines. I hope you soon learn the diagnosis and that he gets relief.life is so stressful for our young people—and their parents

Apr 28, 2018 · When the Caregiver Needs Care in Caregivers

As a new member but with 16 years of caregiving for my mother and my husband, I recognize this as one of the most difficult issues we face. I find your comments very helpful and encouraging.

Apr 28, 2018 · Saying HI to all our caregivers! in Caregivers

Thank you for your words of encouragement.