Hi! So sorry to hear of your diagnosis. I'm sure your doctors have mentioned this, but could gluten be causing the itching? I have autoimmune hepatitis and celiac to name a few, but if I get gluten for some reason, I have itching. Good luck.
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Mon, Mar 11 1:29pm · Has anyone done a doctor ordered gluten challenge? in Digestive Health
@frozsquash Thank you for replying. I'm glad to hear that you are feeling better! I will be doing some research on the SIBO diet you mentioned, but will wait to try anything new until I get these results. I've tried the FODMAP diet per my former GI doc without much help. Dairy doesn't seem to bother me either. In the past I have had problems with c-diff from antibiotics and actually had a fecal transplant to get rid of it. I'll let you google that one. 😄 It did work though. Please continue to let us know how you are doing.
Thu, Mar 7 11:24am · Has anyone done a doctor ordered gluten challenge? in Digestive Health
Good morning. A little back story first. I was diagnosed with Crohn's and Celiac on the same day 5 years ago. I had had all of the diarrhea, wt loss symptoms for about a year. I admit it took me almost a year to come to grips with being totally gluten free, but I did it. I also quit smoking at the same time. 3 years ago today actually, I was hospitalized with extremely elevated liver enzymes, right side pain (which I still have). Biopsy's of my liver revealed some kind of hepatitis which they at first thought was due to the Remicade I was on for the Crohn's. I was transferred per ambulance to the Mayo Clinic in Rochester, MN because I was in liver failure and it looked as though I was going to need a transplant. It was determined that I had Autoimmune Hepatitis and slowly got better, but I am still on anti-rejection meds and prednisone. I was also diagnosed with Fibromyalgia. Any way, long story longer, here I am. Most days I feel like crap and never really know what is causing it. I feel that I have done a pretty good job of being gluten free, but we do have regular bread and such in our home. Twice in the last year my awesome doctors at Mayo have asked me if I'm sure I have Celiac because my endoscopies look too good. Since I have been gf for so long my Dr. is having me do a gluten challenge, where I eat 2-10 grams of gluten per day for 6 weeks at which time I will have blood work and an endoscopy. I've been eating gluten for over a week now (which is kind of fun, but also feels wrong) and the only difference I can tell is that I am constipated, which I have had problems with off and on. I feel more bloated, obviously, and feel even more exhausted than usual, plus a nagging headache.
I apologize for the long story. Has anyone had to do a gluten challenge, and what has been your experience?
Sure! I was confirmed with Celiac 4 years ago. I also have Crohn's, Fibromyalgia, and Autoimmune Hepatitis. I try pretty hard to stay gluten free, but there are those times…. To be truthful, with the other things I have going on, I'm never sure what is making me feel like s**t. One of my problems is that it takes a day or 3 before I realize I've been glutened and often don't know where I got the gluten. Such fun. Things could be worse. Merry Christmas!!
I had my dvr set plus I watched it. So very interesting!! Well done Mr. Burns, well done!!
I know your frustration @wandahondaconda. I'm sorry that you feel un-noticed. Please don't give up! I have several autoimmune diseases and it seems sometimes like no one is hearing me. Most of these symptoms are so hard to describe to people and then of course they chime in with "oh, I have that too, it sucks getting old." I mostly hear that from friends and family. I have had some great doctors at Mayo Clinic who listen to me and try to understand what I am going through. The day a doctor told me I definitely did have Fibromyalgia and that I wasn't crazy, was one the the happiest days I had had in a while. Hang in there!!
Hi! I have problems with increased facial hair as well, but mine is related to prednisone and Imuran. I swear I could grow a better beard than my husband if I really tried. 🙂 I pluck and use a cream from Avon for the upper lip and chin. Works very well. The rest of the face I just pluck the longer ones I see and also take a small scissors and kind of snip away. I hope you find out what is causing your problem. Take care.