Badges (2)


Member has chosen to not make this information public.


Member not yet following any Pages.

Posts (26)

Oct 19, 2019 · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

I think maybe they won’t accept Medicare for a new patient. If you are an existing patient that transitions to Medicare, you can continue to be a patient.

Oct 11, 2019 · Emotional health after cancer in Cancer

Thanks Susandc. BTW, I am Connie, not Colleen. I love the idea of your list. I will do that. I also want both of us to make a list of jewelry and family items that we want our children and grandchildren to have. Many years ago when I was still a teenager our family dentist got a terminal diagnosis and they put everything in his wife’s name. She was in an accident and passed away before him and he had a nightmare straightening it out while ill. I keep telling him that no one on this earth knows our expiration date and while it would appear to be obvious, sometimes it isn’t.

Oct 10, 2019 · Emotional health after cancer in Cancer

@colleenyoung. I don’t think I do such a great job of taking care of emotional health. Getting a Stage 4 diagnosis threw me for a loop. We don’t have much in the line of friends since moving here and our 2 good friends moved to KY and the other set are moving to TN in Jan. My husband is the best and we have 3 sons who call almost daily. They are terribly supportive. My parents live a few blocks from us and they Molly sit when we go to Mayo but at 88 and 89, they need more help than they are able to give. I walk on the beach a lot, read and am doing acupuncture which is hopefully going to prevent more neuropathy with this round of chemos and immunotherapy along with relaxing me and all that hoopla which I can’t say I’m convinced of yet. My husband is insistent that I give it a fair shot. Medicare and the supplement won’t pay for it and nothing at Mayo Clinic is cheap so I stress over that too.
When I got cancer the first time, we hired a housekeeping service. I am going to go as long as possible without doing that this time because all I did was see what they didn’t do. My strategy is to accomplish 10 things a day and I keep a list of what I have done…I love lists! They don’t have to be big things and honestly I’m finding that my house is cleaner than it has been in a long time because 70 things a week is a LOT and doing 10 things a day keeps me just busy enough for a few hours (or minutes when I’m doing quick things on Mayo days as we live 1 1/2 hrs away). Last time, my husband took over grocery shopping and a lot of the cooking. He found that he enjoyed it and frankly after 48 years of doing it at that time, I was thrilled for him to do it. He’s pretty much continued that to my delight. After doing it for 3 years, he’s figured out what is likely to end up in the trash and does a better job now.
But the bottom line is that stage 4 triple negative breast cancer has a pretty grim prognosis. My oncologist was quite honest when I asked. I was hoping that she and Dr. Google would have different answers. I’m a big believe in quality over quantity and I don’t want my husband to end up an invalid from overdoing trying to take care of me. We’ve taken care of everything legally and are as sure as we can be that won’t be an issue. My husband refuses to discuss hospice or other end of life issues so we’ll just have to deal with it when the time comes.

Oct 10, 2019 · Emotional health after cancer in Cancer

@colleenyoung Our dog used to be a caring canine at Mayo Jax. While I was going through breast cancer treatment there, my husband trained Molly and she passed the testing with flying colors. After my treatment was done other than scheduled check ups, he enrolled Molly in the Caring Canine program and they went just twice a month because we do live 1 1/2 hrs. away. To be honest, we got lax and didn’t make her “follow the rules” when we were at home in our local neighborhood park with her doggy friends both human and canine. She flunked the test when she had to retest I think 2 years later…can’t really remember. As my cancer was returning, this took a backseat to other priorities. One day during her scheduled hour (and that was Mayo’s limit) we counted Molly’s business cards before starting. John handed out 83 business cards in maybe an hr and 10 minutes (because he was standing in the hall waiting for me to get a prescription filled). She loved it but she was totally worn out when her hour was finished. That is a wonderful program.

Sep 30, 2019 · Acupuncture helpful for peripheral neuropathy (PN)? in Neuropathy

I have had 2 sessions of acupuncture a week apart. My neuropathy is chemo induced. I am starting chemo again this week. The idea behind me having this is to prevent the neuropathy from worsening with additional chemo as much as helping reduce it. I don’t know how long I will last trying it. Medicare won’t cover it and acupuncture at Mayo Clinic isn’t cheap. I can’t say that it has helped the existing neuropathy at all so far. In fact, I’m trying very hard to convince myself that it isn’t slightly worse even before this next round of chemo starts. But my life has been all out of whack due to traveling for a family funeral and the addition of multiple dr. Appts. I haven’t been able to walk as much so perhaps that's responsible.
I don’t know how many needles she is using. She has put some in my ears, from my elbows down and my lower legs down. I had no idea what to expect. It doesn’t hurt at all but I’m not convinced it will help. I wonder if being a nonbeliever makes a difference like if you believe it won’t work, it doesn’t?

Sep 30, 2019 · Burning Feet syndrome in Neuropathy

I am trying it now….2 sessions so far and can’t tell any difference. I’m really doing it to hopefully prevent worse neuropathy caused by more chemo.

Sep 14, 2019 · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

Is Scottsdale a primary care clinic? I do know that in order to go to a primary care clinic, you need to have started going there prior to being on Medicare. They, I believe, will accept Medicare patients who started there while on another insurance and transitioned into Medicare. Another way to get in the door is to go through the ER. A neighbor of ours went to the ER in Jax and then was able to see drs. In the clinic…..not the primary care clinic but the one with the specialists. It’s very confusing to someone who doesn’t get how this all works. Yes, that 15% extra that Mayo charges could get expensive if your secondary insurance doesn’t cover most of it. Thankfully, ours does and I’m sure I didn’t pay more than $50 out of my pocket all last year.

Sep 14, 2019 · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

I first went to Mayo Jax breast unit 3 years ago. I have seen a lot of dif. drs. In dif. Units and the breast unit is the best, hands down. If you call up there with a question, you WILL get a call back the same day and usually within an hr. I believe Mayo standard is 48 hrs. While I have never found a rude or seemingly uncaring employee of Mayo, the breast unit goes above and beyond the rest. When I first called up there, I also had an appt. within a week. How I wish all depts were so easy to get into and deal with.