About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (311)

3 days ago · Genetic mutations that can cause breast cancer in Breast Cancer

@sandyjr
It's a very personal choice and one only you can make. I was ready to have bilateral mastectomies and go flat, but it was the oncology surgeon in the Bay Area who said there is a new way of looking at it. Doing mastectomies can cause lifelong neurological pain because they are cutting through a lot of nerves and she also explained that they cannot take out all the breast tissue and that women with mastectomies can possibly get breast cancer again. I went from "Ma Kettle" breasts to about an A size, this after my first lumpectomy. I had some nerve pain in the beginning of the healing process but that has gone away. I also still have some feeling in the breasts as well as the nipples. The breast are fairly uniform except the affected breast that underwent radiation is a little bit fuller, but not noticeably. The regular breast surgeon I saw first would have gone for the full mastectomy as it is a simpler procedure for them. In the procedure that they did on me, it required removal and then re-shaping. I believe I was in surgery for about 6 1/2 hours. However, again, this is a personal choice only you can make after looking into all aspects. I wish you all the best in your decision making…it's a tough one.

3 days ago · abdominal swelling/bloating after a double mastectomy in Breast Cancer

@sandyjr
I'm so sorry you went through that at Kaiser. On a urological surgery that I had to have performed, I opted to go to a different Kaiser facility after looking at all the "my doctor" pages of the different surgeons. I met with that surgeon and felt he had more expertise and was willing to listen and include me. As for my breast surgeries, I also chose to go to a different facility in the Bay Area. Had I had the surgery at my home facility, they probably would have removed a large amount of nodes. Also, when I went to the other surgical oncologist, she agreed that I could have a breast MRI when that is not the standard of care and that's when we found the second tumor (neuroendocrine cancer which is very aggressive). Always listen to your gut and don't feel embarrassed to change doctors/surgeons.

3 days ago · abdominal swelling/bloating after a double mastectomy in Breast Cancer

@charisa, cindylb
I use a garden sleeve while out in the garden or brush as well to protect that arm.

4 days ago · CTS5 and Oncotype DX in Breast Cancer

@sandyjr
The Pathology Department of the hospital should house/store the slides.

4 days ago · abdominal swelling/bloating after a double mastectomy in Breast Cancer

@chamisa
I am so sorry you have gone through all of that without the doctors or nurses explaining the future possibilities. My health carrier is Kaiser Permanente and prior to any surgeries, they have patients attend classes guided by physical therapists. Another health carrier, Sutter, also offers classes and I found their lymphedema class was even more educational. Kaiser also offers their patients an "after breast surgery" training class by the physical therapy department whereupon one does a series of stretching, core, weight training (stretch bands and free weights), and then finishing with stretching exercises. Once the month-long class is completed, as patients we do those twice weekly at home and for me it takes about 30 minutes. I have not had lymphedema per se, but twice now have experienced axillary web syndrome or cording and cannot express to you how important the exercises are. I am so thankful you found a therapist who has helped you. Follow your instincts and if your doctor isn't responsive enough, keep looking for one who will attend to your health needs. All the best to you.

4 days ago · CTS5 and Oncotype DX in Breast Cancer

@chamisa
I was a pathology secretary years ago. Upon surgery, a sample tissue is always saved to paraffin blocks. From that, a minute sample is sliced off and placed on slides. Should further inspection be needed in the future, more slides can be made up. It's up to the facility how long they keep the blocks, but in the hospital I worked at they were kept for years.

4 days ago · abdominal swelling/bloating after a double mastectomy in Breast Cancer

@carr
That is great information…I'm going to check into belly binder. I already use compression camisole and do the lymphatic drainage, but the belly is annoying. I wondered also if it is because of being on the AI killing off all estrogen if that was having an effect.

Wed, Jun 24 3:19pm · LUMPECTOMY SCAR HEALING TIME in Breast Cancer

@danielad
Hi Dee – I had to go back four times to have hematoma/seroma removed following the first lumpectomy. After the second surgery where most of my breasts were removed (went from DDD down to A), was required to have 30 radiation treatments. I'm wondering if what you are feeling is the ridge that one can get from radiation. To me, it felt like a ridge of cement. My physical therapist showed me how to do lymphatic drainage massage and this helps keep the area softened. I, too, did massage for the scars, but the radiation effect causing the ridge area is different.