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Posts (346)

1 day ago · Fatigue following thalamic stroke in Stroke & Cerebrovascular Diseases

The fatigue and weakness started about a 2 weeks ago or about 3 months following stroke. Feels like I am being sucked into sleep at times, however, I am taking exemestane for breast cancer so possibly the combination of lack of full sleep at night from that plus the stroke cause me to hit a wall. Concentration and sentence forming are not a problem, in fact, following the stroke my mental capabilities seem better! Since small strokes years ago I have had problems with dizziness if I lay flat and following this stroke it has all gone away, almost as if whatever was on my brain cleared a bit!

2 days ago · Fatigue following thalamic stroke in Stroke & Cerebrovascular Diseases

I suffered a thalamic stroke this last Memorial day losing the use of my right arm and leg. Function has come back in both extremities except with the two fingers in my hand I need to be cognizant of and push a bit harder when typing, but am thankful that is all the residual besides when I'm very tired my foot drags. The fatigue, however (and sometimes weakness) can be annoying. Does anyone know how long the fatigue goes on? I'm also a breast cancer survivor and have bronchiectasis so maybe the stroke plus those issues are cause of this great fatigue?

Mon, Sep 14 10:08am · Concerned about the side effects of anastrozole in Breast Cancer

My weight has been fine on exemestane – haven't felt extra hungry. Recently, I've gained a little but am in northern California and cannot go outside due to high particulates in air from all the fires as it would impact my lung disease so have not been able to go walking daily for about 5 days now (I usually walk 2-3.5 miles per day) as my exercise.

Tue, Sep 8 12:02pm · Lymphedema in the chest wall in Breast Cancer

I keep telling my family it feels like a chunk of cement. On top of that I have axillary webbing (cording) three times now. Finishing up with my physical therapist who suggested I get back to wearing the swell spot under my compression bra. What a difference that has made in that "cement" area as well as axillary webbing. She explained the radiation causes scarring which presses on lymphatics which causes the axillary webbing and/or lymphedema. The numbness in my arm has gone down and the "cement" area in my breast has softened up. She explained the swell spot helps the lymph system flow out. Here is a site that shows what it looks like, but the can be purchased anywhere (with my medical plan, they are covered): https://www.amazon.com/SwellSpots-Breast-Swell-Spot-Small/dp/B07QV9KRYB/ref=sr_1_7

Tue, Sep 8 8:33pm · Concerned about the side effects of anastrozole in Breast Cancer

If your Kaiser doesn't have it, asked them to check with Santa Rosa, CA

Tue, Sep 8 7:35pm · Concerned about the side effects of anastrozole in Breast Cancer

Not online – they are for Kaiser patients and taught in the Physical Therapy Department's exercise room. Check with your facility/medical doctors to see if you have something similar. Kaiser became aware of this and incorporated into their own program – the physical therapists gear the exercises to each individual, for example, there were a couple I just could not do as they were taught so they modified them for me.

Tue, Sep 8 12:11pm · Concerned about the side effects of anastrozole in Breast Cancer

I had horrific headaches with anastrozole and letrozole. Since going on exemestane, I have had no more headache and I also haven't had any bone or joint aches. Headaches are a side effect of anastrozole and there is no shame in changing medications. If one doesn't work, don't be fearful of trying another. Check and see if your facility has a "Strength After Breast Cancer" program. I belong to Kaiser which promotes this twice-weekly exercise program of warm up, stretching, core training exercises, weight training exercises, followed by stretching again. It only takes me about 30 minutes to do and I feel so much better afterward. I had a thalamic stroke on Memorial Day and recovered rapidly to the amazement of hospital occupational therapist, doctors, and my physical therapist, but attribute it to all the benefits from that exercise program! In addition, I was instructed to walk every day and my hubby takes me out for a 2 to 3.5 mile walk now.

Tue, Sep 8 12:04pm · Concerned about the side effects of anastrozole in Breast Cancer

After all the side effects from anastrazole and letrozole, I went on exemestane and haven't looked back. I don't seem to have the bone and joint aches as with the first two, nor do I have the horrific headaches I had with them. I've been on exemestane now for about 9 months. I do get "heat bombs" and sometimes have trouble with insomnia but have a Nook so don't fight the nights with that and just read. For constipation, I eat about 3-4 prunes a day and haven't had a problem since starting that. What we have to learn to do with these drugs…crazy!