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Posts (191)

12 hours ago · Concerned about the side effects of anastrozole in Breast Cancer

@cfacarol Yes, by all means speak with your oncologist. If your medical group has access to e-mail, then e-mail your questions. I'm on my third AI (exemestane) and the side effects aren't as bad. The first two were quite difficult to handle. Everyone handles them differently and trying another one might be beneficial. Your doctor may order x-rays of your neck to be sure there is nothing suspicious there, but it could be something as simple as aethritis for which physical therapy can be of help

3 days ago · Conflicted on taking medication in Breast Cancer

@lisman1408 I'm going on exemestane now for about a month. Bone pain doesn't seem as bad as on the other two aromatase inhibitors. I have joined a therapeutic water exercise class and go two times a week and finding that is very helpful. Still having fatigue and some weakness, but learning to cope with that.

Thu, Oct 3 3:58pm · Aromatase Inhihibitors: Did you decide to go on them or not? in Breast Cancer

@kathyomaha55 I was ready to have bilateral mastectomies, but the surgeon said NO and that is for precisely the reason you stated. They did partial mastectomy instead. She advised me that with full mastectomies, they cannot remove all tissue and there is so much damage to nerves with patients having nerve pain following. I am happy she went this route. I went from quite large, pendulous breasts to smaller (A to B sized) and don't have the pain anymore. The scars are really not that bad actually. The radiation on the affected side tanned that area and hid the scar and then this summer I went topless in my backyard pool and tanned the other side!!! I do have to wear a compression bra now with a Joviak serratus swell spot that should help with the hard areas resulting from prior hematomas and radiation side effects.

Fri, Sep 27 3:38pm · Aromasin (exemestane) in Breast Cancer

@kathyomaha55
Kathy – I found my arthritis was so much worse with the anastrozole as well – feet elbows, spine, and hands. The exemestane isn't quite as bad on my joints, but I'm noting bouts of depression every once in a while.

Fri, Sep 27 9:10am · Aromasin (exemestane) in Breast Cancer

Addendum: And that's for 90 days.

Thu, Sep 26 9:23pm · Aromasin (exemestane) in Breast Cancer

@sparklegram
I pay $5, but I worked for a medical hospital/clinic entity and it was part of my employment to keep the same medical for ten years. Some companies have programs to help defray the costs of their medicines which might be looked into. And sometimes paying cash rather than going through insurance will cost less.

Wed, Sep 25 6:55pm · Zoledronic Acid: I need feed back for this drug please in Breast Cancer

@100154
I've only had one infusion and was pooped for a week, but I'm not good at drugs. One friend has had a number and she was affected for a week, then the next ones no problem at all. Side effects are flu-like feelings, fever, and fatigue.

Tue, Sep 24 8:40pm · Aromasin (exemestane) in Breast Cancer

@lisman1408 I'm glad you are going to the Huntsman Cancer Institute. I remember seeing an interview of John Huntsman speaking about the center – sounds wonderful. We've been through Salt Lake City several times on driving vacations going to Texas to relatives. We were lucky to go on a tour of the Mormon Tabernacle theater as well as going up on the roof top — what a wonderful sight that was. We also were at a church across the street which was just beautiful. Love the country there and the people.