@mrector you have been so very helpful and I am very grateful for your responses. You have provided me with very important information.
Member not yet following any Pages.
Wow, you sure have been through a lot. Stay strong and proactive as you sound like someone that can conquer whatever challenge you are presented with. I do have questions that if you can answer I will greatly appreciate. 1. When do they shave the head? A day after surgery did they allow you to wear your own clothes? How quickly did they get you up after surgery? How did you handle the steroids? How long were you on steroids? Is it strictly pain in the incision area? How long did it take for the pain to subside? You mentioned that you were on morphine and don't remember a lot. I was given morphine when I had a total knee replacement and it made me very sick. Were you nauseated? If so, for how long? Thanks so much. Where did you have your surgery?
@mrector after meeting with Dr. Riemer he ordered another MRI to rule out the possibility of an aneurysm due to the impact of the ICA. I meet with his partner the day before surgery as both doctors will be involved during the surgery. Can you share with me what to expect after surgery, ie, while still in the hospital and then after going home. I hope you are continuing to heal and gaining strength. I think it would be helpful if we all lived close as to have group meetings to help each other through this. I lost my daughter 1.5 years ago to blood clots (she had pancreatic cancer).
Since my posting on 11/17, I have met with a neurosurgeon at Mayo in Jacksonville. I was not at all comfortable nor liked the neurosurgeon I met in my city and immediately made an appointment at Mayo. I am scheduled for surgery at Mayo on 12/14/18 and feel very confident with my surgeon and staff. This is not the best time of year to do surgery, ie, holidays, but as my eyesight lessens I am starting to have slight balance problems it is time to do the surgery. Dr. Riemer answered all my questions ( I had prepared my questions before my appointment.) He has scheduled me for several appointments with other specialists before the surgery which adds to my confidence. If anyone has any advise or ideas I need to be aware of please let me know.
Thank you so much. I have been researching and need to begin writing down questions (so far only thinking of questions.)
I am meeting Monday morning with a neurosurgeon at Mayo re a diagnosis of a brain tumor on the optic chiasm. Great list to use. I have completed several suggestions and am making my list.
The wait and see option scares me since there is a good possibility of becoming blind. I am aware that this is usually a slow-growing tumor, however, my L optic nerve is already stretched a lot by the mass. I really would like to know if anyone has had this surgery .