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Posts (28)

Thu, Aug 8 9:31am · Diagnosed with Meningioma in Brain Tumor

Hi back..and think of you often. I have had issues. Bilateral bleed that required emergency surgery (crani and burr hole) three weeks later had another bleed with a midline shift that required emergency surgery and had it in Savannah as I didn’t have time to get to Mayo. Spent 5 days in ICU and hated the ICU at the local hospital. So between December and the middle of March I have had 3 craniotomies and 2 burr holes. So far so good but was told “it is critical that you don’t raise your blood pressure or your heart rate.” I am back at the Y and working out. How is your journey going?? Sending you a hug.

Thu, Aug 8 5:57am · Diagnosed with Meningioma in Brain Tumor

I am sorry to hear about your recent diagnosis. My tumor was on my optic chiasm causing sight loss in both eyes but mostly in my L eye. I was told that if I didn’t have it removed I would lose my vision. I had surgery at Jacksonville Mayo in December and my vision has improved. I was in the hospital for 3 days. Please write down all your questions to ask your surgeon. On this site there have been suggestions from many patients as to what questions to ask. Wishing you good juju as you begin your journey. I will be happy to answer any questions you may have and hopefully I have an answer.

Mon, Jul 22 6:55am · Your Tips on How to Get Off to the Best Start with a New Specialist in Visiting Mayo Clinic

My PCP has advised for me to begin taking a statin. My cholesterol is 210 ( I am 76 yrs old and have been working out my entire adult life). I had a brain tumor removed from my optic nerve 12/18 and then a subdural bilateral bleed requiring a craniotomy and burr hole on 2/22/19. On 3/13/19 had to have another emergency surgery for a bleed requiring another craniotomy and burr hole. This bleed also caused a midline shift. All of the above put me at a higher risk for a stroke therefor the recommendation of a statin. I am not convinced that this is necessary and am very interested in your information. If you have any other information that may help me decide I would be very interested.

Mon, Jul 8 6:42am · scar tissue after knee replacement in Joint Replacements

I asked my surgeon about surgery for my scar tissue and he told me it was too late (14months) to take care of the surgery. How long after the TKR was your surgery for scar tissue?

Thu, Jul 4 8:30am · Post Total Knee Replacement - Pain and Burning in Joint Replacements

I had TKR 15 months ago. Recently I experience serious pain while walking. Iced and pain went away,however, I now have burning in front of the knee and over all aching. Has anyone experienced this? I had made an appointment with my NS but cancelled since the serious pain is gone..

Tue, Mar 5 4:08am · Optic Nerve Meningioma patients in Brain Tumor

Is there anything simple about this surgery and recovery. On 2/28/19 I was taken by ambulance to the hospital. Suddenly I became dizzy, nausea, and my legs gave way. For about 2 hours I had slurred speech and my left side was weak. I was tested for a stroke and a seizure. All good. My NS thought it was PLEDS….had to look up and still not sure what "that" is. I am fine and again told, "do nothing". The words "do nothing" are not in my life. Very difficult for me as I have always worked out every day.

Tue, Mar 5 4:02am · Optic Nerve Meningioma patients in Brain Tumor

How was your check up? Sending prayers to you for a clean and healthy checkup.
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Tue, Feb 26 5:50am · Optic Nerve Meningioma patients in Brain Tumor

I came home yesterday with railroad tracks on my head. My NS did a "burr hole" on my L side behind my original craniotomy that is 3 " and on the R side did a craniotomy with a 4.5 " track. Thanks for your prayers, how are you doint?