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Posts (23)

Tue, Mar 5 4:08am · Optic Nerve Meningioma patients in Brain Tumor

Is there anything simple about this surgery and recovery. On 2/28/19 I was taken by ambulance to the hospital. Suddenly I became dizzy, nausea, and my legs gave way. For about 2 hours I had slurred speech and my left side was weak. I was tested for a stroke and a seizure. All good. My NS thought it was PLEDS….had to look up and still not sure what "that" is. I am fine and again told, "do nothing". The words "do nothing" are not in my life. Very difficult for me as I have always worked out every day.

Tue, Mar 5 4:02am · Optic Nerve Meningioma patients in Brain Tumor

How was your check up? Sending prayers to you for a clean and healthy checkup.
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Tue, Feb 26 5:50am · Optic Nerve Meningioma patients in Brain Tumor

I came home yesterday with railroad tracks on my head. My NS did a "burr hole" on my L side behind my original craniotomy that is 3 " and on the R side did a craniotomy with a 4.5 " track. Thanks for your prayers, how are you doint?

Sun, Feb 24 12:56pm · Optic Nerve Meningioma patients in Brain Tumor

Tired and continue to have headaches. Too many holes in my head!

Sun, Feb 24 12:08pm · Optic Nerve Meningioma patients in Brain Tumor

The NS tried a blood patch but ended up having emergency surgery Friday night for Hematomas . I am writing this from my hospital room at Mayo.

Sun, Feb 17 8:59am · Optic Nerve Meningioma patients in Brain Tumor

I had a CT scan on 2/15/19 . I was concerned about a "bump" that is hard and above my at the corner of my L eyebrow. NS ordered the scan and this is the result. New acute and subacute bilateral holohemispheric subdural hemorrhages. Has anyone had this? Results? Treatment? Have not heard from my NS. Balance and headaches are an issue. Had removal of M on my optic chiasm on 12/14/18.

Tue, Feb 12 6:17am · Optic Nerve Meningioma patients in Brain Tumor

I had my surgery on 12/14/18 at The Mayo Clinic, Jacksonville. I had made a list of questions for my NS before surgery and he answered all. I was informed that I may lose (temporarily) my sense of balance and memory. I wasn't informed about losing my sense of smell, which I did. I would have liked more information re the actual process of the surgery, i.e. the removal of the skull and how it is replaced. Will I have screws? How will the first few days be like? I was very happy with my NS's (three were in surgery with me) and the hospital stay. The nurses were amazing. I had a lot of nausea even with meds for nausea. The first couple of weeks I walked and rested when tired. You tire easily. My headaches are hit and miss. After my 6-week post op appointment, I was given the okay to start back to the Y to work out.
My tumor was on my optic chiasm. They had to leave a small portion of the tumor. The NS informed me that they remove the tumor piece by piece as not to damage the optic nerves or artery.

Dec 11, 2018 · Watching a Meningioma Brain Tumor in Brain Tumor

@mrector you have been so very helpful and I am very grateful for your responses. You have provided me with very important information.