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Sun, Jan 6 8:09pm · Anaplastic astrocytoma: Can anyone recommend a great neurosurgeon? in Brain Tumor

bjh369, the moderator suggested I contact you. My husband was diagnosed March 1, 2018, had radiation, took Temozolomide for 6 months concurrent with the Optune cap. We have been very pleased with the Optune cap. It takes awhile to get use to and it is a team effort but well worth it. The Novocore Company is very supportive and informative. Feel free to ask me any questions you might have.

Sat, Jan 5 11:14am · I'm a parent of an adult child, recently diagnosed with astrocytoma in Brain Tumor

Justin,
I understand the need to share with everyone. I just wanted to give her some specific names at Mayo and wasn't sure if Mayo wanted me to do that. I will share more for everyone. There are very few of us out there dealing with the anapestic astrocytoma.

Fri, Jan 4 10:42pm · I'm a parent of an adult child, recently diagnosed with astrocytoma in Brain Tumor

My husband has a grade 3 astrocytoma diagnosed at Mayo Rochester after having an MRI done by his GP in our city. Sounds like your son has had the similar protocol, except my husband could not have surgery because of location of tumor. He has done most of his treatment at Mayo and we have been pleased with his Mayo doctors. Has been wearing Optune cap for 7 months. Wish I could communicate with you by email or personal message and give you more details.