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May 10, 2018 · ~ IBS ~ in Digestive Health

I've had IBS-D since I was a teenager. Since this is a syndrome and not a disease there is no "cure" – you just have to find the foods that work for you.But, having said that, the food that is okay to eat yesterday, may aggravate the condition today. and, even though it is not a mental illness thing, your state of being is a very real trigger! So, I know that if I eat fried foods I will always have diarrhea. If I eat leafy green veggies, I will have diarrhea and really awful gas. Raw apples cause cramping. Ice cream, it's bad too but I love ice cream so I eat it at home. I guess because I've dealt with this for so long I've developed the ability to hold my bowels fairly well so I can't get to a restroom. My gastroenterologist recommended the FODMAP diet. Google it. It lists the foods that you should stay away from, the foods you can have in moderation and the foods that you can eat. But keep in mind, the food that you tolerated today, may not be okay tomorrow. You just have to pay attention to what you eat and how your body reacted to it and how severe that reaction was.

I still have IBS-D but have now been diagnosed with Lymphocytic Colitis. My gastroenteriologist has me on Budesonide 3mg 2 caps a day. Lymphocytic Colitis causes watery diarrhea multiple times a day(10-15) and is difficult to treat. The Budesonide is a synthetic steroid that does not metabolize in the liver so it is not as bad to take it for long periods of time. Bottom line, it has put me back to my new normal of 2-3 movements a day of soft to medium formed stools. I also tried Lialda but it didn't work as well as Budesonide. Talk to your doctor and see if he is willing to try either of these drugs.

Good luck. I know your frustration.


Mar 29, 2018 · Lymphocytic Colitis/Collagenous Colitis in Digestive Health

I am not sure how much help I can give you. I have Irritable Bowel w/diarrhea as well as Lymphocytic Colitis. Because of the IBD, I can't eat a lot of green veggies – lettuce, asparagus, broccoli, artichoke to name a few. Beans, whole milk products (milk, ice cream & yogurt). Fried food, too much red meat the list goes on. Oddly enough, I am not skinny, although I was all through high school until my 50's. I try to eat smaller portions (so have to "lose" smaller amounts if it doesn't agree with me). I know it's frustrating but you really just have to use trial and error & give yourself a treat sometimes knowing the consequences. Hope this helps some.

Mar 17, 2018 · Lymphocytic Colitis/Collagenous Colitis in Digestive Health

I have. Probably 10 years ago my doctor suggested I try Align. He said he'd had patient's either swear by it or it didn't help at all. I used it for a year or so & then stopped as I didn't think it was helping. But I'm going to try it again. As my doc said, it can't hurt. Thanks for your help.

Mar 15, 2018 · Lymphocytic Colitis/Collagenous Colitis in Digestive Health

Hello, I am new to this group. As a teen, I was told I had a spastic colon, later, they started calling it IBS-D. In 2006 I was diagnosed with GERD, a hernia and the bottom "flapper" of my esophagus no longer worked so I underwent a Nissan Fundoplication. That procedure wraps a portion of your stomach tightly around the esophagus to keep the acid from going back into the esophagus. On the down side, I now have difficulty swallowing and must periodically have a balloon dilatation to stretch it back out. For that, I take Pantoprazole SOD 40mg twice a day. In October of 2016, after several months of watery, explosive diarrhea 10-12 times a day, a colonoscopy was done specifically to look for Microscopic Colitis. I was diagnosed with Lymphocytic Colitis. I was started on Budesonide 3mg caps x3 a day. That stopped the watery, frequent diarrhea but my skin became very fragile and thin. I was changed to Lialda 1.2Gm 2 tabs twice a day. These are horse pills and very difficult to swallow. It has slowed the diarrhea to 3-4 times a day, depending on what I eat but the bowel consistency is very soft to loosely formed. Silly me, I thought I was going to get back to relatively normal bowel movements. I have arthritis in my neck, back & hands. My hands started swelling and hurting. I couldn't make a fist. My internist sent me to a rheumatologist because I had a high-ish ANA test. More tests and more drugs. While I don't specifically have rheumatoid arthritis or lupus, she believes it is an autoimmune thing related to the Lymphocytic Colitis. She has me on Cymbalta 60mg for the pain, Predisone 5mg & Plaquenil 200mg twice daily for the inflammation. My hands are much better but I am having severe hot flashes. I have gone from taking 4 meds a day to all of this stuff. I was told to consider the Mediterranean diet but, because of the IBS, there are no leafy vegetables that I can tolerate, several fruits and nuts that are triggers as well. I had an endoscopy Monday to dilate my esophagus and take a few biopsies and my doctor (I regularly see his most excellent PA) told me that the way my bowels are now are my new normal. I am okay with that but I hate taking all of these meds. I worry what they're doing to my body. It's nice to find people who understand and are going through this as well. Thanks for listening.