Member has chosen to not make this information public.

Groups (1)


Member not yet following any Pages.

Posts (3)

Mar 10, 2018 · Bladder and Urethral Pain in Kidney & Bladder

Thanks for the support and advice. I will continue to seek help. She's been to a few doctor's in NY and haven't had help but we need to keep making phone calls. Just have to find a way to keep her motivated.

Mar 10, 2018 · Bladder and Urethral Pain in Kidney & Bladder

Thank you for the reply! I have constantly pushed going outside of CT for help but she thinks it will be a waste of time. We went to Loyola last year which ended up being a huge waste of time and a killer for her out look. She's continues to go to Yale but no one wants to go above and beyond to treat her.

Mar 10, 2018 · Bladder and Urethral Pain in Kidney & Bladder


I am posting this on behalf of my significant other. She is 27 that is chronically ill with a bladder and Urethral pain issue. She has had the pain for 6 years and has gone to every doctor you can imagine but has had no success. Some of her side effects aside from pain include frequent urination, weak urine stream, OCD, depression, nausea, anxiety, and frequent mood swings. She gets UTI'S frequently and recently has treated a severe entereococcus and pseudomnas infection in which required IV antibiotics for treatment. We thought that might have been the answer but unfortunately provided no relief. She has a degree in biology and chemistry and was once aspiring to be a PA/doctor but hasn't been able to get better. Doctor's have not been willing to help and she is starting to lose faith that she will not get better. I am at a loss as I do not have an answer for her. She mentioned that she tried to get into the Mayo clinics undiagnosed disease program but was subsequently denied. I don't know what else to do and hope someone has some guidance on where she can go or what she can do to get better.