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Mar 7, 2018 · Living with epilepsy - Introduce yourself & meet others in Epilepsy & Seizures

@colleenyoung: We live in Wa. State, so it's a rec and medical legal. We currently get RSO oil that is super concentrated and dilute it in grapeseed oil to make it easier to dose. But from what I understand (which is very little) it calms his brain down. He has a pretty high dose of CBD but low THC, and it works best that way. Hemp oil didn't do much. There has been a lot of trial and error. We had heard it could work for epilepsy and his Neuro said go ahead and try it but he can't really advise much since there is so little research. He was having break through seizures at least once a week when on his other meds. He hasn't had any for 3 weeks and that one he did have was cause he was sick(fever) so his threshold was lower. Sorry it's not more helpful. Since he has epilepsy from a genetic disorder (OPHN) we don't have much hope for him to "outgrow" the seizures.
I will say since coming off of the pharmaceuticals, his cognitive skills have grown immensely, went from 3-4 word sentences to long compound sentences. And he is retaining more information so not as much re-teaching.

Mar 7, 2018 · Living with epilepsy - Introduce yourself & meet others in Epilepsy & Seizures

Hello, My name is Katie, my son is 10 And has a genetic disorder that causes partial complex seizures. He is currently using CBD to control them. He has tried Trileptal, kepra, and Lamitcal for AED's , he has been screened for temporal lobectamy, and been on the Modified Atkins Diet. So far the CBD is the only thing that controls the seizures with any accuracy. He's only had 1 seizure since he was weened off Lamitcal and that was due to a fever. Always good to connect with others dealing with epilepsy. Thanks!