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Posts (3)

Mar 7, 2018 · Living with epilepsy - Introduce yourself & meet others in Epilepsy & Seizures

Hi Janna,..doesnt it suck!! I was always so active, and now, just like you brain damage. I would love to talk with you, you sound alot like me, lonly,..Plz let me know if you are interested in getting to know each other, I am,..Tracy

Mar 7, 2018 · Living with epilepsy - Introduce yourself & meet others in Epilepsy & Seizures

Greetings, when i smell dirt, i usually have meer seconds to get safe..When i first began seizures, i caused some brain damage. Now any highs or lows,.(extremes) seem to bring the seizure on,,,but it also seems to work itself up over a few days. I dont sleep well and I loose balance previous to a seizure. If i can answer any more questions, plz ask. I dont have a nero dr right now, im thinking of coming to Mayo…This has caused me to be on disability, and I think Im not getting benefits from my meds anymore…1000mgs of Keppra, 2x daily…thank you for what you are doing..tracy johnston
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Mar 7, 2018 · Living with epilepsy - Introduce yourself & meet others in Epilepsy & Seizures

Greetings, my name is tracy612. I have had siezures for about 4yrs now. They started on the operating table during my 3rd neck surgery. The first yr was horrible, with all the seizures and tests, and accsidents that went along with the seizures. That first yr was so active, that I ended up with slight brain damage in my frontal lobes. Nothing has been the same sence then. I have Chronic fatigue syndrum, a skin condition, called Sneddens Wilkenson, and my balanne is poor. I went from being a nurse for 25yrs and an EMT to not being able to leave my home. I recently had 7 seizures in 1 afternoon, and I lost 4 days from them…Before that day, I was only having 1to 2 a month. Although I did recieve some blessings from the seizures, like colors are so vivid, ive taken up painting rocks, and i now am involved in all types of crafts,(your trash is my craft)..I still dont understand my diseace very well, and im scared I might get early onset Altimers or/dementia. I just want to talk with others so Im not feeling so alone…I have unconscience onset gand maul seizures, im on 2000mgs of Keppra,..and everytime i have a seizure I cant remeber things. Sometimes I cant understand what folks are saying to me, and sometimes, I will say a complete paragraph, and its off topic and makes no sence to the people around me..I smell dark dirt right before a seizure and I loose my taste buds for days after..Thanks for listening,..im glad i found this group…Blessings Tracy612