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Oct 14, 2018 · Pulmonary Fibrosis* in Lung Health

hi, just got back in touch,as I said before I have Pulmonary Fibrosis & now also have pulmonary hypertension. I am 74 & was diagnosed in 2016 with IPF & this last yr.pulmonary hypertension. Am on Esberit ..maybe a year or not but close.I had so many health issues & surgery before the diagnosis which started around 2010 before that a healthy woman. But with the surgery on my feet I got infections & had to have surgery for those plus knee replacement & both shoulder need surgery which I will not have..Was in & out of wheelchair with foot surgeries also & put on to much wt. (need to lose it it wil help with the IPF &PH after all that …then 2016 The IPF so now have to work hard again because of lung issues. I have one son & 3 grandchildren @ greats too (TWINS) I am blessed but still a little fed up but certainly not giving up..Kathleen….to all of you I wish you peace & to feel better.

May 10, 2018 · Pulmonary Fibrosis and SUDDEN CHANGE IN BREATHING in Lung Health

your so welcome,anytime any of us on this page can be of help seems like we all answer the call….Be Blessed. Snook

Apr 7, 2018 · Stop smoking panic attacks. in Lung Health

Being mad & upset with yourself will only make it worse & why would you? be kind to yourself like you would if someone you love were trying to quit an addiction,would you help them?….be kind & supportive?…would you do something special for them? like take them to a movie ,a massage,or flowers? Tell them how wonderful it is that they are trying to do something good for their health?…All those things you should be doing for yourself,love yourself like you do others is most important…look in the mirror & Smile at that person who is trying so hard…………….Hugs……Remember it's hard but you are doing it girl!!!!……………I added media by mistake

Mar 15, 2018 · IPF How To Cope with Sick Feelings in Lung Health

I'm just with you & wonder the same thing if there are stages in this disease…Do they (at Mayo) somehow define what stage one is in?. Good Luck & this I know for sure …sometimes when one is boxed into stages or questions like "What happens next? we set ourselves up for disappointment, hurt & anger. I think it's good to listen & kinda know what is usually next & yet keep a healthy distance from "stages" & of course this is my opinion & how I feel….only. Ciao…Snookie

Mar 14, 2018 · IPF How To Cope with Sick Feelings in Lung Health

Anytime we can understand better we have less fear.

Mar 13, 2018 · Pulmonary Fibrosis and SUDDEN CHANGE IN BREATHING in Lung Health

I didn't know that,so much to learn and thank you for sharing that. Snookie

Mar 13, 2018 · Pulmonary Fibrosis and SUDDEN CHANGE IN BREATHING in Lung Health

I don't know much about it truthfully, just learning about so much. What I know is they take your income first and contact your insurance co. see what they pay if they will? then the grant writing is done by your Dr. or team of Doctors.There are monies available from different organizations I'm told IF they have not run out of monies..I'm also told that happens. Would be awful to go through so much to get on meds then reach the toward the end of line (getting everything done) and boom, no money available.But I like many others will try my best whatever the outcome…If I get more info I will surely share it…. Snookie…they chose Esbriet over Ofev because I need some surgery & that plays into what med would allow that..

Mar 12, 2018 · Pulmonary Fibrosis and SUDDEN CHANGE IN BREATHING in Lung Health

it's Esbriet & lots of work, testing to do before I start (grant writing for expense) but looking forward to it …anything to stay with people I love including myself. For my age have a lot of energy & told I do not look my age certainly don't feel it. Many things to do yet…Be Blessed…Snokie