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Apr 20, 2018 · Cleveland Neuropathy Clinic in Neuropathy

Good morning all, has anyone here been treated for your neuropathy at the Cleveland clinic? My pain team is sending me there for a ketamine protocol consult and some potential tests. I've heard they are one of the top neuro clinics in the country, but would like to know if anyone has any insight. Thanks in advance.

Apr 3, 2018 · Ketamine Infusion in Neuropathy

The ketamine was slowly increased (titrated), and I noticed some initial effects and slight relief by mid-day Tuesday. At that point the pain was going down as the meds were being titrated up until late Thursday, at which time I felt no pain (I walked in on Sunday evening at a high 7 nearly 8 pain level). As the meds were decreased over the course of Friday the pain slowly returned to around a 5, which is not uncommon and occurs every time that I get infusions. It took a day or two, but by Monday I was at a 4 and was 3 by that evening. This Friday will mark a month post-infusion, and I am at a steady 5. One thing that my pain management and I believe is that my booster infusions have not been frequent or long enough to maintain the lower pain levels. I just continued going in for a 2-hour infusion every other week, which was what I was doing before the 5 day treatment. Doctors will tell you that there is no set protocol for infusions, it is entirely based off response by each patient. I've had relatively good luck keeping the pain at a tolerable level through the use of ketamine, although its use has not (so far) led to a reduction in my other meds (Lyrica, Savella and Tramadol as required). Hope this information helps to some degree, its just so tough finding the right regimen, and when you seem to have done so the pain is creeping up even more!

Apr 2, 2018 · Ketamine Infusion in Neuropathy

I just want to follow up now that I've completed the inpatient 5-day infusion. Going in I was averaging between 7-9 on a 10 point pain scale, now three weeks out I'm averaging 4-5. There have even been days where I'm at a 3, although rare because just about anything I do shoots my pain up. I would continue to push your doctors to give you another try, and this time go with the inpatient setting, the infusion is continuous (titrated), and I believe more effective because there is no break in the treatment.

Mar 3, 2018 · Ketamine Infusion in Neuropathy

Thanks so much John!

Mar 3, 2018 · Ketamine Infusion in Neuropathy

Does anyone on here undergo routine ketamine infusions for SFN? I have been receiving infusions for 12 months now, starting out at 1hr 60mg a month to my current 2hr 120mg twice monthly. Although the treatment does not eliminate pain altogether, it does take the edge off and I get several days following each treatment where I have increased energy. My primary reason for asking is that I am going in for an inpatient 5-day infusion this Sunday and would like to know if anyone has undergone a multi day treatment? If so, what was your experience like and did you receive a longer period of relief. Thanks in advance!

Feb 18, 2018 · Has anyone else given up? in Chronic Pain

It is so challenging, but you have to fight the urge to give up. I've been there so many times, times that honestly I curled up in a ball and cried thinking that there was no way that I could continue to fight the disease. But in each instance I realize that the disease is winning, and I refuse to allow that to happen. Yes its tough, and certainly a roller coaster ride of emotions, not just for me but my family and friends as well. Don't give up Parus, keep the faith and continue to find ways to overcome the urge to quit, and if that means professional help please do so. It took me far too long to realize that just having someone to vent with, as well as be provided insight and suggestions on how to cope was long overdue. My pain psychologist is the absolute best at what he does, and is the one who has helped me maintain my sanity through my personal journey.

Feb 18, 2018 · Savalla in Chronic Pain

I've just recently switched from Cymbalta to Savella. So far some of the side effects like sleep deprivation has improved, but it also appears that Savella is not as good in reducing pain. I have tried many medications over the past 9 years, and am still trying to find a combination that provides both relief from pain and so many nasty side affects. I wish you the best in finding an effective means of relief.