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Wed, May 27 12:50pm · Cerebral amyloid angiopathy in Stroke & Cerebrovascular Diseases

If she wants to sleep, I suggest you allow her to do so. Mom's doctor said that rest from the bleeds is the best medicine there is. Only when she is better, should she be encouraged to strengthen her brain (read, games, etc). When Mom would have her bleeds, I would bring her to my house and she slept on the bed in my office nearly all day (getting up for bathroom and nourishment only). It would usually take 3-5 days before she would be interested in being up a few hours at a time. Your wife needs her rest more than anything right now. She will get better.

Wed, May 27 11:42am · Cerebral amyloid angiopathy in Stroke & Cerebrovascular Diseases

She really liked and respected him. Throughout the years, even if he hadn't seen her for awhile, he consulted with our local doctors when we had setback. When she was being a bit impossible, we were able to say, "Remember what Dr Rabinstein said?" Sometimes I would use some of his same questions to monitor her condition.
There are people who enjoy things like puzzles and games, which help keep the mind occupied. My mom was not one of them. She was a retired nurse and enjoyed visiting with her peers (once we got her to the right facility) and she always loved dancing, even if only with her hands near the end. She claimed to have been able to feel when she had more bleeds and her balance would go way off. Having her get a lot of sleep was extremely important. We could see a huge comeback.
We feel very blessed that unlike a lot of (dementia related illness) patients, she actually got nicer and more loving, and we still thank God that she always knew who we were. Her mind was actually quite brilliant in many ways throughout her entire illness.

Wed, May 27 11:38am · Cerebral amyloid angiopathy in Stroke & Cerebrovascular Diseases

Wishing you the best.

Wed, May 27 11:40am · Cerebral amyloid angiopathy in Stroke & Cerebrovascular Diseases

I hope your journey goes as good as ours did. Please know you are in our prayers.

Tue, May 26 4:30pm · Cerebral amyloid angiopathy in Stroke & Cerebrovascular Diseases

When my mother was diagnosed by Dr Rabinstein (MN Mayo) with CAA we found his knowledge extremely helpful and encouraging. There are things you can do to slow the progression down and some activities that could be helpful. Wishing your wife and you the very best.

Tue, Mar 10 8:58am · COVID-19 Coronavirus and Lung Health: What can you do? in COVID-19

Congratulations on recovering! Keep being strong.

Sat, Mar 7 10:41am · COVID-19 Coronavirus and Lung Health: What can you do? in COVID-19

We decided last week when the virus reached LA that we would not be going on our cruise. I like to live by, "if I can live with worse case, go for it." We are not willing to risk my husband's health, nor getting stuck in isolation. Everyday I check the NYTimes Coronavirus map and sure pray there will be an improvement soon.

Tue, Mar 3 9:58am · COVID-19 Coronavirus and Lung Health: What can you do? in COVID-19

Exactly what I was thinking. Thank you!