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Posts (5)

Aug 29, 2018 · Scoliosis - Introduce yourself and meet others in Spine Health

Hi my name is Cynthia and I spinal fusion in 1974 at Walter Reed Medical hospital. My rod goes from the bottom of my neck to the top of my hips. As a 14 yr old going thru pupuberty it was awful. I could not sit for an entire year because my rod extended down so far. I wore a body cast for a yr and kids at school made fun of me everyday. I am now 58 yrs old and have never had an issue with my rod or spine. No pain however watching me getting up from sitting on the floor is a sideshow. You adapt and know your limits. I have a scar the complete length of my spine and would wear a bikini in younger years. I have never been ashamed of it. I call it my battle scar. Things were so much more primitive 44 years ago but I had great military doctors

Mar 18, 2018 · Scoliosis - Introduce yourself and meet others in Spine Health

I was 14 when I had my surgery.  My rib cage had fallen down onto my hip bone and if I wasn't in my brace it was painful.  That was when they told my parents I needed surgery right away.  They told us it would take 20 yrs off my life if untreated.  I'm
not saying I never have pain because at 56 the pain was horrible.   You see my rod was fused into my spine and over the years and has made it a solid bone.  I was told i was in pain because the rest of my body was over compensating for what my back couldn't
do.  I was put on Wellbutrin and it has completely taken the pain away. In a good note, she said I will never have osteoporosis because my spine cannot compress.   I guess that is a good thing. 
 I could talk all day about this.  I find it very interesting that the human body  can do so many things.  I wish you the best of luck.  I know pain can make for a miserable day.

Mar 18, 2018 · Scoliosis - Introduce yourself and meet others in Spine Health

I'm sorry your ordeal has not been successful for you.  I had mine done when I 14 in 1974.  I have perfect posture and forget it is even I  there. Yes, there are things I cannot do but as everyone with challenges you learn to know the  extent of what you
can do and how to make it work for you. My rod is the total length of my spine and I can bend over and touch my toes which is amazing.  I am truly sorry for your pain and it is a shame it didn't help you. 

Mar 18, 2018 · Scoliosis - Introduce yourself and meet others in Spine Health

I had mine done at Walter Reed Army medical center in 1974.  At that time is was primitive compared to today.  The couldn't do anything for you after 18 years old because the spine was considered not flexible.   As an adult I am forever grateful someone
could correct my back  but as a 14 year old child I was scared, humilated, and ridiculed at school. Things today are some much easier.  When I had it done there was only 3 hospitals that treated scoliosis.   I wish you all the luck in the world.  You will
be glad when it is all done  

Feb 8, 2018 · Scoliosis - Introduce yourself and meet others in Spine Health

I had spinal fusion with the Harrington rod in 1974 when I was 14. Military doctors performed the 6 hr surgery at Walter Reed hospital. It was a very long year of recooperation for a developing teenager. I could not sit down for a year because my rod went so far down the bottom of my spine. I am now in my late 50s and I am forever grateful for what they did for me. Although in the 70s spinal fusion was so much more primative than it is today.. mine has been in me for 44 years now and my spine is fused into a solid bone. I have awesome posture and am very proud of my scar that is the entire length of my back. I call it my battle scar. The doctors that operated on me were my heros. I had a very badly s shaped spine and it is pretty much straight today. You learn to adapt to what you can or can’t do after this surgery and even though at 14 it was humiliating I am forever grateful to the doctors and my parents for making me have the surgery.