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Sat, Jul 11 3:49pm · Bronchiectasis: New Diagnosis in MAC & Bronchiectasis

@joanng…I will answer the questions I can and I'm sure others will chime in to help you soon.You can feel better, but it will take some time. I had constant chest and back pain. The constant coughing continued until I found the cause of my lung damage- acid reflux. I had to change my diet and sleep upright. This cut down on the cough after antibiotics, steroids, and postural drainage (see You-tube) My acupuncturist diagnosed and successfully treated nerve pain and now I have been well for 2 years with only the occasional bronchitis.
Many of our members continue to work. I would suggest you analyze your work schedule for energy sappers, take naps and ask to work from home.
I had to retire in order to heal. Since you are 20 years younger, you will have a better chance of continuing to work if you make adjustments. Good luck!

Wed, Mar 11 7:34am · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis

@tinasims… Good for you. It's sad to miss out on visits, but we who are vulnerable need to take charge of our exposures.

Sun, Mar 8 12:21pm · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis

@windwalker…That sounds like a good plan. Limit your time in places where sick people are most likely to hang around. My area in NE PA and NY border has had increased flu and bronchitis cases already. My pulmologist has run out of free inhaler samples.
Stay safe.

Thu, Feb 27 9:09am · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis

@kathyhg …In addition to the usual protections for influenza, I avoid winter doctor visits and crowded areas. I no longer shake hands and use hand sanitizer in the car after visiting every site. If the community infections grow, I'll wear my mask everywhere and postpone visits with grandchildren until summer.

Mon, Feb 17 3:02pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@lynn55.. I found relief from constant cough through acupuncture treatment of nerves. My Dr figured that half my cough was due to irritated nerves and the treatment worked. I use nebulizer asthma treatments and GERD treatments plus sleep upright. No exacerbations for 2 years.

Mon, Feb 3 7:29am · Weight gain while on MAC meds in MAC & Bronchiectasis

@tinaesims… Yes! My doctor says it's the steroids and hormones. I'm 71 and had constant lung infections over 5 years until I got a clear diagnosis of NTM and bronchiectisis and started sleeping upright to reduce acid reflux. I take 3 asthma meds in the nebulizer twice a day. I have PPIs and Zantac by prescription and special diet.I have hypothyroidism, too.
I went on many doctor approved diet and exercise programs and I gained weight. I eat very little and gain weight
.I've tried fasting and get low blood sugar trouble.
Finally Ive gone on the intermittent fasting diet that allows tea and coffee with cream or butter in fasting hours. It's called "Cruise control". No more drop in blood sugar and the weight is creeping off a few ounces a day. I lost 9 pounds in 5 weeks. It's Keto so I can only stay on it for three months.

I recommend getting thyroid levels checked first, then take a look at various fasting regimens.
I know how discouraging it is to have your weight out of your control. Don't give up! New solutions to our problems are being developed every day.

Wed, Jan 8 1:59pm · Acupuncture and chronic cough in MAC & Bronchiectasis

@tinaesims…I have had acupuncture treatments about once a week and found them very helpful. My cough had been constant, but is now rare at times other than postural drainage and nebulizer treatments. Cupping also helped when my lungs were full of fluid.

Dec 10, 2019 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@lindham272…Hi Linda, I use Phillips respironics for 45 and 30 minutes a day. Medicare pays for one every 5 years, but I bought my own after it broke at 4 years.