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Aug 20, 2018 · Ostomy: Adapting to life after colostomy, ileostomy or urostomy in Digestive Health

A couple of months ago I posted I was going to have an Indiana Cystoplasy Augmentation. It was performed at Cleveland Clinic July 31st. It was a 4.5 hour surgery and my Bladder was expanded from GI Tract and a conduit from my belly button to the bladder. I feel much stronger now and still have two catheters which will be removed on Wednesday. My strength is coming back as I recuperate. I can't say enough great things about the treatment I received at Cleveland Clinic and the surgeon who performed surgery. I should be able to lead a very normal life and resume my activities. I will have to learn how to catherize and hope no problems arise like leaking. While I am not totally out of the woods I am upbeat.

Apr 27, 2018 · Ostomy: Adapting to life after colostomy, ileostomy or urostomy in Digestive Health

I was out there two weeks ago and saw him then. I did have one image with me but he wanted to see the disc with more images to see if it was determined how long stricture was.If it could be cut out it would involve surgeon and robotic surgery. I am being told it would probably not be successful but not conclusive for me yet.

Apr 27, 2018 · Ostomy: Adapting to life after colostomy, ileostomy or urostomy in Digestive Health

Thanks so much for your support and information. I just got images sent to me on tests showing blockage and interpretation. I have seen another surgeon in San Francisco recently since I visit my daughter lives there and he is willing to give me a second opinion.
I still prefer having reconstruction but have been advised it will not be successful. I want to receive his perspective and then plan on proceeding.

Apr 21, 2018 · Bladder Cancer: High grade in Cancer

Curious to know if he has had with this surgery any diarrhea, Vitamin B 12 deficiency, or liver and kidney function issues? Also can your father participate in all outside activities that he wants to do? Thanks

Apr 21, 2018 · Ostomy: Adapting to life after colostomy, ileostomy or urostomy in Digestive Health

Martin thanks for weighing in. I have since added a more recent post today and please respond if you can provide any info or any other sites you recommend . My wife is less than enthusiastic about this surgery and needs more convincing that this is preferred way to proceed. I live a very active lifestyle and hope I can resume it after I recover. Thanks for interest.

Apr 21, 2018 · Ostomy: Adapting to life after colostomy, ileostomy or urostomy in Digestive Health

Urotomy is what I want to do. I have a Suprapubic catheter on now.This procedure was done with no chance to discuss at urologist office since my stricture was practically closed. Since then I have seen three surgeons discussing this surgery and reconstructive surgery. The latter was ruled out after having VCUG test and Urodynamics test and finding out reconstructive surgery might not be successful. Hence I am left with choice Indiana Augmentation Cystoplasty. I am aware of the surgery performed but many questions remain. I am especially concerned about complications resulting from using bowel to divert urine, such as kidney problems, electrolyte & vitamin deficiency, infections, etc. Catherizing and irrigating mucous is there difficulty? What are the challenges with traveling and participating in activities? Will I need any home care? Those are a list of questions that I feel I have insufficient information even though I asked surgeons the above. They are not the most willing to elaborate. By the way surgery if I proceed will be done at. Cleveland Clinic. Thanks for your help. One more request I have been trying to find formal patients to talk to without success. Do you have any links that may help forward it.

Apr 3, 2018 · Ostomy: Adapting to life after colostomy, ileostomy or urostomy in Digestive Health

Back in January 2016 I had surgery for an enlarged prostate. The surgeon performed a prostatectomy . Unfortunately I had many complications scar tissue which led to a supra pubic catheter in November 2017. My stricture and sphincter have scar tissue in an area where it is only seen 1/1000. Also my bladder will not perform for me to urinate and empty. Hence after deliberating I have elected to have Indiana augmentation cystoplasty. Are there any of you who know someone possibly I can relate to since you are in a hospital 5-10 days and home recuperating for up to 3 months-4months. Doctors insist I will be able to resume all my normal activities and travel. Many questions have been answered by hospital doctors but hearing it from individuals that have experienced this directly would assuage my concerns.