Badges (1)

About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (6)

Wed, May 22 12:41am · Negative sputum results without treatment in MAC & Bronchiectasis

There is research on air clearance devices like the Smartvest. It shakes the mucus lose. It decreases hospital visits and exacerbations.

Mon, May 20 7:13pm · Negative sputum results without treatment in MAC & Bronchiectasis

I have a Big Berkey Water system and got the shower head for the shower to protect my lungs from airborne germs. I like both of them. You can learn about them on youtube.

Mon, May 20 1:04pm · Negative sputum results without treatment in MAC & Bronchiectasis

In Decemeber 2017 I was diagnosed with MAC after a bronchoscopy. I had two more positive specimens with positive MAC diagnosis in January, February. Then in June my doctor told me that the April 2018 specimen was negative and it has been continuously negative since that time. I had no drugs for the MAC. I was using herbs like NAC, Glutithione, Turmeric, and Colloidial Silver. I was so shocked and still am. I just thought I would share this miracle with you since you had this conversation going.

Mon, Jan 7 10:10am · Big 3 and weight loss in MAC & Bronchiectasis

I was told that when we have bronchiectasis, just breathing causes us to burn more calories. So we need more calories to survive. I lost almost 30 pounds in the last year. I felt lousy and lost my appetite and my stomach shrunk. I'm at BMI 20 and make myself eat through the day. We need the reserves to help us through any exacerbation that may come. I had stopped dairy and sugar before this. Now I use coconut milk, coconut milk cheese, and coconut milk ice cream sweetened with stevia, and I've added back more poultry and some meat. I'm also eating some gluten-free pasta with alfredo sauce. And all of this just keeps me maintaining weight, not gaining. It takes 3500 excess calories to gain a pound. I wonder if my body is fully processing the food I eat. Good Luck and keep eating.

Dec 3, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Is anyone working with a registered dietician/nutritionist? Has it helped?

Dec 3, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Is there a way to search specific topics through this very long collection of entries. When I use the magnifying glass I just get the very top level and not entries inside this string of messages. Just wondering. Thank you.