There is research on air clearance devices like the Smartvest. It shakes the mucus lose. It decreases hospital visits and exacerbations.
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In Decemeber 2017 I was diagnosed with MAC after a bronchoscopy. I had two more positive specimens with positive MAC diagnosis in January, February. Then in June my doctor told me that the April 2018 specimen was negative and it has been continuously negative since that time. I had no drugs for the MAC. I was using herbs like NAC, Glutithione, Turmeric, and Colloidial Silver. I was so shocked and still am. I just thought I would share this miracle with you since you had this conversation going.
I was told that when we have bronchiectasis, just breathing causes us to burn more calories. So we need more calories to survive. I lost almost 30 pounds in the last year. I felt lousy and lost my appetite and my stomach shrunk. I'm at BMI 20 and make myself eat through the day. We need the reserves to help us through any exacerbation that may come. I had stopped dairy and sugar before this. Now I use coconut milk, coconut milk cheese, and coconut milk ice cream sweetened with stevia, and I've added back more poultry and some meat. I'm also eating some gluten-free pasta with alfredo sauce. And all of this just keeps me maintaining weight, not gaining. It takes 3500 excess calories to gain a pound. I wonder if my body is fully processing the food I eat. Good Luck and keep eating.
Is anyone working with a registered dietician/nutritionist? Has it helped?
Is there a way to search specific topics through this very long collection of entries. When I use the magnifying glass I just get the very top level and not entries inside this string of messages. Just wondering. Thank you.