Yes, I will post updates as I have them. Thank you both!!
Member has chosen to not make this information public.
Member not yet following any Groups.
Hi everyone! I follow this Digestive thread but I lurk most of the time and I apologize. I apologize, this may be a little long. If anyone is going through this and have any insight please share your thoughts/comments. I'm 41 y/o. I've had GP and the Vagus Nerve Damage for several years now. Anything I put in my mouth, food and/or fluids I end of vomiting the majority of the time. I've tried several different medications for the GP but none of them really helped. I had my first EGD with Botox injections back in April of this year which after about 2 weeks it seemed to help with the n/v to where I gained weight. I had my second round of Botox injections this past Thursday so I hope this helps. My GI specialist commented on my EGD results and said there was old food lining my esophagus and stomach and she was unable to remove it to see my abdominal lining. It sounded like the old food was like placque build up from old food. I have had more EGD's performed but none of them showed something like this. I am now to follow a full liquid diet and if that doesn't work then I'm looking at getting another J-tube placed. I also have an appointment with another specialist to talk to me about the gastric pacemaker. My abdomen hurts so bad I'm doubled over all of the time and my GERD is so bad even though I have to sleep in a recliner and not next to my husband the reflux is free flowing up my esophagus and out my mouth and nose causing painful sores in the corners of my mouth and in my nose. I had a Heller Myotomy in 2006, which is where they removed the lower section of my esophagus, which a typical person has a sphincter there to prevent food/reflux from going back up but with that procedure that sphincter does not work. I'm constantly nauseated and vomiting/retching. I don't know how to explain these things to my general primary doctor or the doctors in the ER because they don't have a clue as to what is going on with me. My pain is real and noone wants to address it. I was on a pain regimen but my PCP cut me off cold turkey and refuses to prescribe pain medication to me any longer. Can someone give me some insight on how to plead my case to physicians who aren't that familiar with my conditions?
Thank you so much for reading this.
Sep 15, 2018 · Anyone on or have tried Butrans film for chronic pain?? in Chronic Pain
Hi everyone! My name is Michelle and I'm 41 y/o. I have had chronic pain since my original Gastric Bypass Surgery in 2003. I had a revision to my bypass in 2006 and then a reversal in 2015. I have gastroparesis and Vagus Nerve Damage. I also have a history of Fibromyalgia, Migraines and cervical stenosis. I have been on all the narcotic pain medications out there and different combinations of them, some more successful than others but over time I just required higher dosages of the narcotics. I had an appointment with a Pain Management specialist who started me on the Butrans film that you place on the inside of your cheek, 75 mcg twice daily. This medication has given me my life back. Of course, it doesn't entirely take all the pain away but at least it's a tolerable level for me. Has anyone else had success from this medication? I know I can google most anything to research this medication, but how does this particular medication differ from the "regularly" prescribed opioids? I find that massage helps me and NSAIDS, but of course, as a Gastric Bypass patient I can't take NSAIDS and I have a long history of chronic gastric ulcers that use to only develop at the anastomosis site but have since lined my esophagus and stomach leading into my small intestine. I'm fairly new to this board and just curious what other individuals have found that's been beneficial, not short term but long term.
The last time I was seen by a Pain Management Speciallist was in June 2018 and I obtained a copy of my medical records from her office and in a section of her narrative it states this: “In my professional judgement patient qualifies for IPLA exception: patient failed non-narcotic therapy”. I have an appointment with my new Pain Management MD and I feel like when I talk to doctors about my chronic pain that I have to plead my case and ensure them I’m not an adict or anything like that.
I can empathize with you. I have a been suffering from GI problems ever since March 2003 I had the Gastris Bypass surgery. I won’t make this long..so I’ll just post recent issues. I was diagnosed with Gastroparesis about 2-3 years ago and Vagus Nerve Dysfunction 2 years ago, which I’ve probably had longer then that. I almost died in 2015 because I couldn’t eat or drink without vomiting. I had 2 feeding tubes placed and lost 70 lbs. within 2 1/2 months. I couldn’t tolerate the feedings either. My general surgeon who has operated on me multiple times I have been with the past 10 years. He decided the only option for me was to reverse the gastric bypass. It was pure hell post surgery and not a day goes by without nausea, vomiting, abdominal pain and the Esophageal spasms. Those spasms make you double over in pain, it was if I was having a heart attack. I’ve been told there is no fix for the spasms. There is no fix for the Vagus Nerve Dysfunction either which that’s pure hell I have to live with the rest of my life. Symptom management is basically all I can get. I had a hell or myotomy in 2006 which is where they removed the lower region of my esophagus. I’ve had my esophagus dialated more times than I can remember, I’ve had those Botox injections near my pyloric sphincter which helped with my Gastroparesis for a few months. I’m sorry for going on a rant. If you need someone to talk to please reach out.