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Posts (4)

Mar 22, 2018 · I'm wondering about temporal lobe seizures in Epilepsy & Seizures

I understand what you are going through. My son, who is now 37, was diagnosed with temporal lobe epilepsy at the age of 13. While he does not exhibit the extreme Behavior, or report that he has seen God, This Is Not Unusual from what I have read. In fact there is one story of a nun who had thought she was speaking to God for many years until she was diagnosed with temporal lobe epilepsy. In her case she was extremely devastated as it shook her whole world. My son reports that although he has not seen God or spoken to him he has experienced a a form of nothingness that he can only describe as spiritual. Temporal lobe epilepsy has been linked with religious experiences for many people as it apparently triggers seizures in the area of the brain responsible for religious thought. I hope you are able to find a neurologist to work with your son. In my son's case he has never fully accepted his seizure disorder and has refused to see a neurologist. He also would not take his medicine until he was about 24, which unfortunately resulted in more brain damage then he should have had. He is still experiencing seizures as well as severe depression which apparently is related two temporal lobe epilepsy. His seizures have gotten worse over the years. I had hoped that they would become less bothersome as they do with some people. I have noticed that this form of epilepsy is very detrimental to ones personality, and in fact have read about a temporal lobe epilepsy personality syndrome. In my son's case he went from being extremely creative to less so and has become more rigid in his thinking. While he is still an excellent human being and my favorite person on Earth, it has been heartbreaking to watch him go through what he has. I hope your son will be less resistant to treatment and more accepting of his disease than mine has been. I hope you are able to find a neurologist very well-versed in temporal lobe epilepsy because it is a complicated disease and has many side effects such as depression. My heart goes out to you and to your son. If you would like to speak with me more I am open to that and would be happy to help you in anyway I can.

Feb 3, 2018 · After Hep C Treatment in Infectious Diseases

Not sure I am understanding your point.

Feb 3, 2018 · After Hep C Treatment in Infectious Diseases

This all sounds like helpful information while on treatment. But the issue I and others want more information about is about symptoms which have persisted years after completing interferon/ribavarin treatment.

Jan 17, 2018 · After Hep C Treatment in Infectious Diseases

I had hepatitis c (genotype 2a) for 23 years and towards the end was very sick (it was irritating how many health care workers told me that it wasn’t from the hep c that I felt sick because hep c has no symptoms. That is not correct, especially once you have had it that long!). I was treated in 1997 with interferon and Ribavarin, 3 shots a week for 9 months. I am now in remission, virus undetected. They did not say cured back then. My son, aged 36, contracted the virus from a probe that was inserted in his scalp during his birth and was also treated with interferon and Ribavarin. Neither one of us has felt 100% since treatment. He told me he had research this online and had found a mao clinic paper about post-interferon syndrome, but couldn’t find it again later. (He thought it had been purposefully taken down so that people wouldn’t file lawsuits against the makers of the drugs, and so that others would not shun treatment. I’m not sure. But I can not find that paper either, and would love to.) In any case, I was pleased to come across post by others who have not felt well since treatment, and mentioning a diagnosis of post-interferon syndrome, be wise it is validating to those of us who are doctors have dismissed even the notion of it. Does anyone know where I can find that paper, or anything about post-interferon syndrome? Although I am so glad to have cleared the virus, I am still, this many years later, suffering from severe fatigue, some brain fog, achy muscles, back pain and some gut issues, which I did not have before treatment. Any information about this would be great.